[eveParticipant]

Hi Everyone

Looking back at Slims time on Dex during ctd and velcade,he started with 40 reduced to 20 after pneumonia and blood clots on the lungs.

Dex 40,hell to live with,played tricks with his mind plus hid how ill he was!!!
Dex 20,I had my Slim back,would have liked him with more energy and the will to eat!!!
Keith 4 days on 40 of Dex then weaning off,may be a good idea as slowly coming off them might lessen the effect.
That,s the way I look at it,and as long as they are checking for side effects it might be the way to go.Eve

[DaiCroParticipant]

Back to the Day Case Unit for blood tests and check up. Eveerything's back to normal in the stomach and bowels, my HGB remains at 9.0 (10.1 on Monday, 9.0on Wednesday) but it should start to pick up now that I am returning to normal. The good news is that my Neutrofils are improving (1.5 on Monday, 2.3 on Wednesday and 3.5 today) todays 3.5 is the highest they have been for months, so I'm happy with that and I am hoping it is an indicator for my Light Chains. 😎 😀

Feeling good going into the weekend, even if I do have Big Ers type rosy cheeks.:-P

Dai.

[eveParticipant]

Hi Dai
Have a nice weekend,summer is suppose to be on it,s way;-)Eve

[DaiCroParticipant]

Come wind and rain, blow and drench,
Drizzle and fan the leaves on the trees
For I am well and well enough
To take whatever you bring with ease
But Summer is here despite your trials
And look the sun has found a space
That I may walk my garden path
Enjoying the warmth from Sol's bright face

Hi Eve,

All's well here and it looks like 'summer is acumin in'. I hope that Slim is improving with each day… Slow but sure and that you are staring to breathe a little easier as you see him improve. 🙂

I hope that you are finding a little time for yourself… You have had to cope with so much recently and you deserve a break… In both senses of the word.:-)

Regards

Dai.

[EvaParticipant]

Dear Dai,
Just wanted to say that my light chains yo-yoed for a few months after my relapse when I was being treated with Thal and Dex. The variations were even greater than yours. My consultant said not to worry. Eventually my light chains settled down. I've been on treatment for a year now since relapse and don't know what will happen next. I'm coming to London to see my onc in about ten days- I live in the north of Scotland. Fortunately, I can walk quite well now that I'm off dex: I was one of these people who reacted very badly to dex withdrawal.
Thinking of you and Janet as well,
Eva

[tomParticipant]

Hi Dai well done you and thanks for sending the sun to us here in Sunny Scunny 😎 but I think av burnt me bald head ?

That "Onwards and Upwards" Chap x

[Author]

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