[SlinkParticipant]

Hi everyone, I recall very clearly a well respected haematology consultant from the Royal Marsden advising Myeloma patients to be careful about the number of CT scans/x-rays we have. The reasoning was the overall radiation exposure. Of course, radiation doses are measured over a lifetime and are not considered less or more based on “well it was just the arm etc”. It has been suggested that I have a full body PET CT scan which I am trying hard to justify given all the x-rays and CT scans I’ve already had this year. I understand that the benefit v risk is what matters, but I am unclear what the defined clinical goal is and fail to see how it will change my overall treatment plan. CT does expose one to more radiation than any other form of imaging. How many of you have had the PET CT full body scans? Can you help me justify going ahead with mine please?

[CarolsymonsParticipant]

This has not been offered to me here in London, but Tom mentioned in his post that it had been suggested to him recently. The American Myeloma Facebook page had quite a lot about it recently with concerns expressed about the amount of radiation and the usefulness of the test. From what I understood it seems to have fallen out of favour in the U.S.

Carol

[Author]

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