Treatment recommendation or feedback needed (for Nepal!)

This topic contains 5 replies, has 4 voices, and was last updated by  eve 11 years, 1 month ago.

Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • #103368

    olivers
    Participant

    Dear all,

    I'm British but my mother-in-law lives in the Himalaya in Nepal. She's recently been diagnosed with MM and I've been soaking up as much as I can here and on other websites regarding treatment.

    As you can imagine, when I accompany her to a hospital in Nepal, the conditions are pretty shocking; waiting 7 hours in a queue to see a doctor is the norm. I've been using this website to question everything they say, in order to check that they know what they are talking about. (In a country that is largely illiterate, it's amazing what poorly-educated "doctors" can say.) So thanks a lot!

    The doctor has prescribed Melphalan for her. I'm going to Kathmandu to buy it (it's not available anywhere except the capital).

    My question for people here is whether, as I have read here, Melphalan is an old drug which has generally been replaced by newer medicines? And if so, which ones are they?

    Unfortunately I am based in a country where doctors are very poorly trained and are not well updated on changes in the rest of the world.

    Thanks for your time and any advice you can give me,

    Oliver

    #103369

    san
    Participant

    Hello Oliver, if you ring our lovely Myeloma uk nurse she will i am sure be able to advise you, it must be such a worry for you all and i really wish you well, San x

    #103371

    Mothas
    Participant

    Yes your best bet is to ring the nurse and have as many details of tests results and symptoms as possible because any treatment will be taylored to those.

    #103370

    olivers
    Participant

    Thanks a lot San -it certainly is. I'll give the nurse a ring. Thanks again

    #103372

    olivers
    Participant

    Will do mothas, thanks a lot

    #103373

    eve
    Participant

    Hi Oliver,s

    There are world wide trials for Myeloma,and as Nepal is considered to be a state by the Chinese ,is there no in let that way,might be worth asking Ellen is there any contacts through the Myeloma World with contacts to China to be treated.

    You do not say,how long your moth in law was diagnosed plus how she is affected so it's hard to make a comment,new treatment is very expensive if you have to pay for it,and way beyond the reach of most people,living in your were you are you must realise that.May I suggest you look in the Myeloma Site all the information is there for you to read,plus down load.Eve

Viewing 6 posts - 1 through 6 (of 6 total)

The topic ‘Treatment recommendation or feedback needed (for Nepal!)’ is closed to new replies.