I have just got back from latest consultancy and am a bit shocked but happy. My consultant and myself decided in June to stop Revlimid maintenance 10mg over 4 years due to constant chest infections in winter after a second SCT in 2021. I was on the same drug for 18 months previous 25mg to get me ready for transplant. After my first transplant in 2014 I managed SCR with normal free light chains for several years before a slow serological relapse by 2020. I have never reached SCR since even after the second transplant. So I had a sense of foreboding going to clinic today without having my comfort blanket revlimid for the last 4 months. Unbelievably my free lights have dropped to within the normal level and the ratio is the same. This puts me in stringent complete remission (SCR) for the first time in 8 years😮. My consultant who is director of haematology was honest enough to say she hasn’t got any answers to explain the reversal other than the strain on the kidneys now off chemo has reset in some way. As others have said this is the strangest disease with surprises around every corner.
Stay safe everyone,
Stanley
