Update from hospital appointment today

This topic contains 2 replies, has 3 voices, and was last updated by  eve 11 years, 6 months ago.

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  • #102411

    jeapal23
    Participant

    Well I got to see Mikes X-rays, he has lesions on his humorous, rib, which has broken and spine. These are the places Mike gets pain. They have said he is 2nd stage myeloma. Came away from the hospital with all the drugs for the first cycle of chemo on the 29th. I'm feeling better about things as we have to fit this and stop crying into my boots.

    #102412

    DaiCro
    Participant

    Hi Jean,

    After suffering 2 spontaneous fractures, small but painful nevertheless, one on on the very top of my left arm and the other about 10 inches away on my scapula, I was given a meeting with a consultant from a neighbouring and bigger hospital, QMC. I should say that by the time this meeting took place both fractures had more or less repaired themselves. This was no thanks to my medics who had ignored my complaints for nearly 3 months until I stamped my foot and threw my toys out of the pram… then they sent me for a simple x-ray which proved me right. (I had said from the beginning that I thought they were fractures and the medics said they were most likely muscular). :-/

    Janet and I attended the meeting at our hospital and the visiting consultant turned out to be the Head Consultant of Orthopaedic Medicine from Queens. He was absolutely marvellous. He showed us a complete set of x-rays of my skeleton (I had a complete body scan of x-rays a week previous… 17 in all). He pointed out the latest 2 and 22 other lesions of various sizes and degrees around my body… including a quite large one in my right arm, an inch or so above my elbow, and another in my left femur, which he said had been flagged 3 years ago and was the most serious inasmuch as it was expected to break in two at anytime (prognosis 3 years ago). I told him that I was seriously surprised as neither area had ever given me an ounce of trouble. He laughed and said it was often the case… the big ones behaved and the small ones stung like buggery (his words) a bit like cuts. 😀

    He said that if he was 10 years younger and freer to jump in and start zapping, he would have a field day on my skeleton… he would bring sandwiches and a flask no doubt. 😀

    We agreed that there were so many sites that unless or until they started to bother me we would hold off on any treatment at all. He also said that if something went wrong on a more serious scale he would give treatment immediately, within 24 hours… and then amazed me and Janet by giving us a card with his private number. He gave us both a promise that he would carry out the work himself or if he was not available for any major reason, his 2nd in command would. 😎

    So that's how we left it… I have 24 lesions of various degrees spread around my body of which exactly none are presently bothering me. Sometimes, either between treatments or when I am overtired and overreach myself, I get a short, sharp reminder by way of pain or cramp… I prefer the pain… the cramps can take a couple of minutes to wear off and often hang around for a day or two but I know what they are and by taking care and morphine I see them off. 🙂

    Don't worry too much, Mike will soon learn coping mechanisms, through posture, working out what he can and no longer cannot do, along with the type and dosage of various painkillers. Let's hope that like me his lesions never develop into anything too serious… but if they do I am sure that the orthopaedic Doctors he is referred to will soon have him sorted and back on his beat. 😎

    Regards

    Dai.

    #102413

    eve
    Participant

    Hi Jean

    Pleased you are feeling better,you got to see the x rays,that's more than I did,it pays to ask questions or in my case be a pain in the a——–s.keep asking as Bridget use to say,knowledge is power.

    Is you husband on trials???

    Take your boots off its spring,if you cannot cope emotionally ,go to see doctor ,nothing worse than blubbering to people who do not understand,saying that WE DO..it,s only at the start you need them,then you grow a thick skin. Love Eve

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