Hi All
I just wanted to update you on Chris's SCT as even further evidence of the individuality of Myeloma from person to person. I started a discussion back in May after we were given the news that Chris's transplant had been a failure after only 50 something days.
His pp's were at 19/20 and am happy to report that's of Friday they are 5.7. The last reading was a 60% drop from the one before. We along with our consultant are a bit baffled as to why 4 months after the SCT it should decide to drop so much. They think it may go further still. He is on no medication at all. He is working 3 days a week and feels really good apart from the odd off day.
When we think how devastated we were back in May I hope our consultant will look at Chris's case and maybe allow patients more time to recover before making declarations.
Anyway, we have celebrated and rejoiced and are happy that now he has shown some response things like a mini allo will now be back on the table to discuss at some point as Chris has a perfect unrelated match somewhere in Birmingham.
We've had a great summer with a holiday in Portugal and the most amazing weekend in Paris with four fabulous friends one of whom had cycled from London to Paris to raise funds for Myeloma UK ( 5k in the end)
Our son Cameron has somehow managed to get ten GCSE's despite all of this going on at the most crucial time for him which I think shows a quality in him that should stand him in great stead for the future.
Life , for the moment anyway, appears as normal as it can be and Chris looking like Chris again ! He said he forgot he was ill in Paris for the first time in a long time.
So , my message is never give up, the men in white coats don't know everything all of the time. The human body is an amazing thing and we try and predict how it will behave but we never really know.
Christine Xx
Our blog is christhebarbers.wordpress.com
san 11 years, 1 month ago.
