[PatGParticipant]

Good morning everyone.
Well my treatment for AL Amyloydosis starts on Tuesday and thanks to all the posts on here regarding Velcade etc. which promted further reading, I felt I had all the information I needed when discussing this with the consultant yesterday. What a help this forum has been already! Thank you all.
Feeling a bit nervous though even though I am glad that the treatment is finally starting and I can get on with getting better. I hope that I will be one of the lucky ones and not get too many side effects, but to be honest, if it kills the b*****s off, I can cope with them.
One thing in particular that has come out of this is the special, totally unselfish, giving and caring of a friend who has stood in for my partner and taken me to the innumerable hospital appointments necessary just to get this far. The university where I work has been really good in allowing her time off to chauffeur me around and I will hopefully be able to return to work, albeit part-time, when the treatment is complete. I never intended to retire until I was 70 and hopefully will be able to reach this goal.
AL is so similar to Myeloma that the info gained from you all has been a great encouragement to me and I am sure will continue to boost me when I undoubtably have the down times.
Love and hugs to you all.
xx

[eveParticipant]

Hi Pat
AL is similar,it is rarer,I think 600 cases a year,last time I looked and only one hospital Royal Free,there are a few people on here with both Amyloyds plus MM,they usually pop up in related conditions.

It is not knowing that causes sleepless nights,so once you do know you feel you have something to fight,Velcade works for MM.

Its good to know some good things come out of bad things,so good to have a caring friend,I wish you well on your journey .Eve

[VickiParticipant]

Go for it pat. Beat it in to submission 🙂

This site is a godsend isn't it

Vicki and Colin.

[MicheleParticipant]

Hello Pat
After all those tests it must be a relief to know that you've now got the drugs that will put you on the road to remission! 🙂

Of course you'll be feeling nervous about taking them. I was with my first cycle of CTD.
There's no denying that you'll have a mixed bag of days ahead with aches and pains like you've probably never experienced before, but the trick is to take each day as it comes, do what your body tells you to do (rest when you have to) and no matter what, keep that spark of steely determination to tough it out and beat back the enemy!

Let us know how things go and ask any questions that pop up in your mind. We're with you all the way! 😀

Take Care
Michele x

[PatGParticipant]

Hi Michele,
Thanks for your comments. I have just spent the first part of this morning getting jumbo portions of a good hearty stew going in one slow cooker and a similar amount of savoury mince type mixture in the other. Will freeze them down later today because as much as my other half is wonderful and has taken on so much more just lately, we both know that to let him near the cooker for anything else but poached eggs would be detrimental to health for both of us!:-) I feel that I need to make sure that everything is as up to date (domestic wise) as possible, in case I'm not able to do much after treatment – and – I have to keep busy so that I am not thinking too much. I know I will be fine when it starts, it's just this bit that takes some dealing with.
Will let you know how it goes after Tuesday.
Love and hugs to all.
Pat
xx

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