[bandityogaParticipant]

All going well on velcade. Ian’s FLC have halved from 898 to 490 after first cycle. Great news.

Just returned from a 2 day break package at Rockliffe Hall in Hurwarth. Wonderful hotel with fully accessible shower, toilet etc. Spring break package excellent value.

Maureen

[dickbParticipant]

Good news about the Velcade. Any sign of Neuropathy yet?

[jmsmythParticipant]

Great news Maureen. Always boosting to read. Glad you had a nice break. We are odd to consultant tomorrow. Really hate it. Always scared of what she will say
Take care
Jean x

[bandityogaParticipant]

Dick

Ian had Neuropathy with CTD on previous cycles . He has noticed a slight change in his legs but nothing to be concerned about yet!

Have your FLC reduced?

Maureen

[bandityogaParticipant]

Jean

Hope you got good news today. I dread meetings with consultant too.

Maureen x

[jmsmythParticipant]

Hi Maureen saw the registrar and she was happy with franks bloods. The MRI results were not back (he got it last Wednesday) she said that in most cases it’s a good thing as if there was something wrong the report would come up fast. She said she would phoe with the results as we are booked to go away next Thursday and I want the results before I even think of packing. So here’s hoping she right.

Best wishes to Ian take care
Jean x

[SalParticipant]

Really good start with the Velcade, Maureen.

M’s consultant said that a good initial drop was a good sign. Let’s hope it keeps going in the right direction.

Sarah

[dickbParticipant]

Hi Maureen,

At least you know what to expect from the Velcade, as for me, my consultant tends to stick with the blood figures and so I don’t get to know what my light chains are doing. Maybe I’m just a bit weird where the FLC don’t give a good enough indication of MM.

[bandityogaParticipant]

Jean

Hope the results of the MRI are good and you get away ok. Are you going somewhere nice?

Maureen x

[Author]

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