[MemobParticipant]

Hi – my name is Maureen and I am new to this site. My partner, who is French and receives his treatment in France has just been put on the Velcade/Melphalan/Prednisolone regime. He seems to be suffering a lot of pain in his chest region – ribs, sternum etc. Previous to the Velcade he was on Revlimid/Dexamethasone for nearly four years and did really well but then the levels started rising. There isn't as much help in France for us carers which is why this site is so welcome. If anyone can help with side effects and what to expect on this regime I would be very grateful. Thank you.

[tomParticipant]

Hi Maureen

welcome to the site and am sorry to hear about your partner, unfortunately I cant help with this one as all I have had is CTD leading up to a SCT in 2009.

Am sure someone will be along pretty soon and give you the help and advice you need.

Good Luck to you both in the Journey to remission.

Tom Onwards and Upwards

[MemobParticipant]

Thank you Tom. I'm sure others myeloma friends may be able to help. Good luck to all. Maureen

[eveParticipant]

Hi Maureen

Welcome, may I first suggest Ellen Myeloma nurse on here can help,send EMail or phone.!!!

I do not know the chemo combination ,so cannot comment, I do know he should not be in pain,but you do not say what combination of tablets he has to help with pain,plus what damage he has in bones or if pain area is we're lesions were,so it's a bit hard to help.

My own believe is with an illness that causes chronic pain because of damage to bones,should be treated with strong pain medication until the area the pain is in can be treated.

I know when I have been in France it's hard to get non proscription drugs in any quantity at a chemist, so your first port of call has to be his own doctor,for pain relieve,if you consider it is Myeloma related then speak to consultant.

I hope Ellen can help you,let us know how you get on. Eve

[MemobParticipant]

Hi Eve, thanks for your reply. Lucien is on morphine tablets for the pain and is just told to increase the dosage when it gets too much! Main problem seems to be lesions and bone pain. I have spoken to Ellen and she has been very helpful. It is comforting to know that people do care and take the time to reply. I am back to France on Friday for a month – please excuse me if I do not get to reply to people quickly – the internet is very 'iffy' where we are! Thank you again. Maureen

[eveParticipant]

Hi Maureen

I am glad Ellen could help you,it is nice to be able to ask questions and get a different view ,most people on here are Myeloma patients or carers,then family members who need answers.
When Myeloma is first diagnosed,you read the leaflets and think how an earth are you ever going to understand any of it,specially medical jargon, you end up on the biggest learning curve of your life,there is no teacher!! You have to be pro active on this Myeloma roller coaster,the more you learn the better you can help your partner.

Not knowing the system in France it will be a bit hard for people to help with the medical side,but there are a few people on here who have posted in the past,who may be able to help.

We can help to support you,keep your spirit up when you feel down and share with you some of the things you cannot learn from books,there is so much information goes through this site. On the plus side we are all on the same roller coaster no matter which country we live in. Eve

[MemobParticipant]

Thank you Eve. It is so nice to have people to talk to about this cruel disease and to share thoughts and feelings. I really do appreciate it. Thank you. Maureen

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