Very Aggressive Myeloma? Very active six months ago now need help out of bed

This topic contains 2 replies, has 3 voices, and was last updated by  johnhnry 2 weeks, 3 days ago.

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  • #152268

    jackie2026
    Participant

    I was diagnosed about a month ago after repeat GP visits from November onwards.
    Saw the NHS Consultant again this week, he said my bone marrow biopsy was 80-90%, Spine nothing urgent in the cord, but evidence of Myeloma and a lot of other age degeneration.
    He did not like that fact that I have paid for a full body MRI privately that he could not see.
    He seemed unaware that my ribs/sternum are the main pain issues even though this was discussed at my earlier appointment.
    Hence my interest in seeing a full body MRI, which would include those areas.
    My ribs/sternum area very painful and particularly as I now have a cough which is making me choke too.
    My digestion seems to have gone to sleep with all of the stress from this diagnosis.
    I am feeling quite frightened having gone from a fit person to someone who my partner has to help out of bed in the morning.
    I still have to wait until next week to know more about the full body MRI privately before treatment.
    Just feed up with it all today.

    #152315

    blobgob
    Participant

    I fitted arm supports to the side of my bed to enable me to get up! Without them I would have to lie there all day!

    Hospital might even supply them if you ask.

    #152634

    johnhnry
    Participant

    Very aggressive myeloma can progress quickly, causing extreme weakness, bone pain, fatigue, and difficulty getting out of bed. Patients may also experience anemia, infections, or kidney problems as the disease advances. Early diagnosis and fast treatment are important to improve quality of life and manage symptoms effectively. Doctors often recommend chemotherapy, targeted therapy, or stem cell treatment depending on the condition. Family support and proper medical care can also help patients regain strength and mobility. Regular monitoring is essential because multiple myeloma can change rapidly within months. Awareness about serious illnesses is important for healthcare websites and online medical resources. Many healthcare businesses now invest in professional Dubai Web Design services to build trust and provide patient-friendly information online. A strong Dubai Web Design strategy helps clinics create responsive websites that improve communication with patients and caregivers.

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