Wee Mum in Law diagnosed and deteriorating rapidly, any advice for us.

This topic contains 4 replies, has 3 voices, and was last updated by  kar 11 months, 3 weeks ago.

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  • #148495

    dalmatianaddict
    Participant

    Hello,

    My MIL who is 76 has been diagnosed with Myeloma. She’s had a blood test by hematology and is booked in to get a bone marrow biopsy on Monday. We suspect she’s been suffering with pain for a while, she retired at 74 and has always been active albeit she had back pain from osteoporosis. Not long after her retirement she started losing weight, there were recurrent urine infections and she had some unexplained falls. She was admitted into hospital 10 weeks ago and initially they said it was old osteoporosis fractures causing her pain, she was treated for e coli in her urine and after basic physio and being left in bed they discharged her.

    Unfortunately she was admitted again after 5 days with dual incontinence, another urine infection and this time her treatment has been great.

    She had CT scans and an MRI which showed lesions on her spine and her vertebrae which were crushed even further down.
    She’s so poorly and its as if her body is rotting from the inside out. Her bowel movements smell like death, its not like normal poo smell. Her mobility is poor, her muscles have wasted away and we are so worried what the biopsy will show. Will she be able to cope with any treatment? At the moment she’s on steroids to try and reduce a mass of inflammation around the lesions. They want to try and get a biopsy from these spinal lesions but they want the marrow one first.

    The weight she has lost since September is about 3 stone, they haven’t weighed her since she came back in. I should ask about that getting weighed shouldn’t I?

    She has bruises from getting bloods and a canula in that haven’t faded this time, we are trying not to think the worst.
    Has anyone been as low as this weight wise and incontinent and come back from it?
    It’s so hard because I see her everyday and feel that I’m watching her fade away. My Husband, her son, works away 2 weeks at a time and he got such a shock when he visited last weekend. The change in 2 weeks was dreadful.
    I’m so sorry I feel I’m rambling now. I’m hoping she’s in the best place, Ayr hospital, now in a good ward compared to the last one. Her brother passed away 6 years ago and he had Myeloma complications.
    Thank you for reading this far. ❤️

    #148496

    sdfsjdkl
    Participant

    I don’t have any advice to offer you as I am new here but I just wanted to send you my sympathies as this sounds just awful for you all. Sending hugs – there are some such kind people in here who have offered really helpful advice so I am sure they will be in touch.
    Rachel

    #148497

    dalmatianaddict
    Participant

    Morning and thank you Rachael for your reply. Its the unknown that’s the hardest just now. The waiting for Monday then waiting for the results of the marrow biopsy. She’s asked the consultant if I can go with her, I’m dreading seeing her in pain with this procedure. She has covid at the moment, the whole ward has it. Hopefully on Sunday she will test negative and be able to have the procedure.

    #148498

    sdfsjdkl
    Participant

    I do hope they are able to give her pain relief for the procedure. The waiting is dreadful but it’s also terrible to watch someone you love in pain. Sending you all strength and may the time pass as quickly as possible til a negative covid test and more information. Poor thing having covid on top of it all.

    #148499

    kar
    Participant

    Hi
    Really sorry to read about your MIL. It is difficult at best of times to get the diagnosis. My husband was diagnosed in October. He has just had his first cycle of chemo. Luckily his MRI didn’t show many lesions although he still suffers from a bad back. I hope your mum in law can start to get treatment. You can also get radio therapy to help with pain.
    I hope she begins her treatment soon and can begin to feel in less pain

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