[goffy1957Participant]

Further to my previous post my consultant wants to start me in Zoledronic maintenance
Bearing in mind I had a nasty lenalidomide rash four weeks ago which occurred four months into DRD treatment.
Are there any members on here having this and does it have any nasty side affects ??
If so how often is it given and does it have long term benefits
I don’t presently have bone pain ! Fingers crossed

[12fern34Participant]

I have been on this infusion for three years every two months and I have not had any side effects…… good stuff👍

[12fern34Participant]

I have been on this infusion for three years every two months and I have not had any side effects…… good stuff👍

[rabbitParticipant]

Hi Goffy,

Responses to myeloma treatments vary so much. This was my experience:

After 3 months of chemo, I had read about zoledronic acid (also known as Zometa) but it had not been prescribed. They had forgotten until I reminded them!

Zoledronic acid – not sure if you know this from your post – is a bone strengthening drug. Myeloma cells damage bones. However, standard advice is to see your dentist first.

A day or two after my first dose, my energy levels disappeared in an instant. I learnt that that was the side effect of it for me, lasting about 24 hours. After a couple of monthly cycles of this, I negotiated with my consultant to have Zometa only every 3 cycles.

After 2 years it was stopped: this is not unusual, depending on how the patient is getting on.

[Author]

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