[Anonymous]

Any thoughts please. Henry has been on monthly pramidonate since August 2011 then last week he was put on zometa. The infusion is a lot shorter. No explanation was given really and we never asked (not sure why as I usually ask). Henry hasn't had any side effects. Has anyone else had this change in treatment. He still has no paraproteins and doing well. Consultant is waiting for tests to decide if he can be put forward for funding for immunoglodbin transfusions. I think that will be a long wait.

[HelenRParticipant]

Hiya,
I'm on pamidronate which is what they use at my hospital. I read some research about how zometa has been found to have good results in terms of increased remission etc, so I asked about why I'm not on that. At my hospital it's currently the policy to use P not Z but they're very similar. The research found that Z is better than another type, a different type altogether (let's call it X!!) rather than comparing with P. So maybe P is just as good as Z, it hasn't been proven – hence my hospital sticking with it.

I think Zometa is more expensive, have a feeling that's why! So if I were you I'd be fairly pleased with the change 🙂 also as it's quicker!

But if you do find out more, let us know!

Helen

[tomParticipant]

Hi Sarah and Henry

Its always strange when Meds change with no discussion :-S and am sure you do always ask?.
But I was on Zometa and had that for two years post SCT, just had flu like symptoms for a few of the treatments.

Sarah, Frank keep eye out for Jaw problems as it can have problems on the Jaw bone.:-/

Keep well.

Love Tom Onwards and upwards xx

[Author]

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