[ichabodParticipant]

I was diagnosed with MGUS ten years ago. Things have moved on to the extent that I now have small lesions in pelvis and sternum. Chemotherapy has been postponed but I started monthly Zomata in December 2017. I now feel very tired for about a week after treatment with sporadic tiredness thereafter. I wonder how common this is?

[davidainsdaleParticipant]

Hi Fergus

Sorry to hear that you have MGUS. Nearly everyone I speak to with myeloma says they feel tired so I think fatigue just goes with the territory. Fatigue is still an issue for me 6 years on from initial diagnosis.

I was on Zometa for two years, and seemed to have sensitive skin problems for a few days afterwards. I don’t know whether it was the Zometa or some of the other chemo drugs causing it. But as they say with myeloma, it is a very individual disease.

Hope this helps

David

[ichabodParticipant]

Thanks David. I think I have to take on board the individual nature of the disease and different experiences with Zometa. Chemo has been postponed for me for the time being so Zometa is the only drug I am receiving at present. The tiredness is a problem because I still have a busy working life so the decision has been taken to come off the Zometa for a couple of months. That way we will know if it is that or the Myeloma which is causing the tiredness.

Wishing you the best for the future,

Fergus.

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