Myeloma Forum | GrahamLane | Activity https://forum.myeloma.org.uk/members/2graham/activity/ Activity feed for GrahamLane. Sat, 25 Apr 2026 22:37:41 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5f8e3628ecd646bef551990ceec867ea GrahamLane replied to the topic Revlamid and Neutropenia in the forum Treatment https://www.myeloma.org.uk/forums/topic/revlamid-and-neutropenia/#post-129355 Mon, 05 Sep 2016 17:42:02 +0100 Thanks Chris. Sounds familiar. I too was reduced to 5mg after about 3 years or so.

 

]]> 635d6b8709f0cef2ddd79c90ee5f6c2b GrahamLane started the topic Revlamid and Neutropenia in the forum Treatment https://www.myeloma.org.uk/forums/topic/revlamid-and-neutropenia/ Mon, 05 Sep 2016 16:41:35 +0100  

Is anyone else suffering from neutropenia after long term Revlamid use?

I have been on Revlamid maintenance therapy since my SCT 4 years ago. It’s been great, no sign of the myeloma returning but it’s beginning to take its toll. A few weeks ago I had to stop treatment due to a very low neutrophil blood count. And it’s showing no sign of…[Read more]

]]> c6e3047ad0cde5d439dc29695576a11c GrahamLane replied to the topic Facebook pages for Support Groups in the forum Miscellaneous https://leaders.myeloma.org.uk/forums/topic/facebook-pages-for-support-groups-2/#post-49 Thu, 01 Sep 2016 09:25:04 +0100 No, we don’t have one for North Yorkshire. I produce a monthly e-newsletter and reminder of up-coming meeting but most of the group don’t use email let alone Facebook.

]]> 17d155f4d201658ff693fa6179345869 GrahamLane replied to the topic Remission in the forum General http://www.myeloma.org.uk/forums/topic/remission1360843170#post-94381 Thu, 14 Feb 2013 13:39:29 +0000 Tina
Yes I am a fellow MyelomaXI trial it's now in remission. I was randomised onto a different maintenance treatment to yourself though. As well as 10mg dose of Revlimid I also get vorinostat too. 3 cycles so far and my only side effect is itchy skin but I have had this since the SCT last year so not sure what specifically causes it. The medics…[Read more]

]]> 60ebcf093a625606d495c8fed97e40ac GrahamLane replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-/page/2/#post-87156 Thu, 24 Jan 2013 20:18:56 +0000 Lesley,
I can't speak for everyone but the Myeloma XI trial is certainly working for me. I was diagnosed just over a year ago, had 6 cycles of RCD by which time there was virtually no sign of myeloma any more, had my SCT in July 2012 and am now in complete remission but taking maintenance treatment, again as part of the trial, with the view to…[Read more]

]]> ea73d0d8e49d072af66851bef8cc746d GrahamLane replied to the topic Second anniversary visit to haematology in the forum General http://www.myeloma.org.uk/forums/topic/second-anniversary-visit-to-haematology/page/2/#post-94002 Thu, 20 Dec 2012 07:59:45 +0000 Great news Helen, I too had Professor Jackson for my SCT at the Freeman this summer so it looks like he knows what he's doing! We've got all the family arriving for Christmas tomorrow. Slightly different mood from last year's gathering. I was diagnosed a few weeks before last Christmas but now I'm in full remission. I've even got more hair now…[Read more]

]]> c4425fdae7de669bcc1b182d749b6432 GrahamLane replied to the topic revlimid and vorinostat in the forum Side-effects http://www.myeloma.org.uk/forums/topic/revlimid-and-vorinostat#post-104977 Mon, 17 Dec 2012 19:11:49 +0000 Hi Babs
Day 19 and no adverse side-effects yet. Perhaps you were just unlucky and your next cycle will be better.
Graham

]]> de28b0fd5d26fdabeae2f94256534452 GrahamLane replied to the topic Peripheral Neuropathy in the forum Side-effects http://www.myeloma.org.uk/forums/topic/peripheral-neuropathy1355696409#post-105020 Mon, 17 Dec 2012 19:03:09 +0000 Hi Christine and Chris
I too suffer from PN at times but not as severe as in your case. Apart from keeping myself hydrated (as if we don't have to drink enough!) my hospital also offer Complementary Therapeutic Services such as massages and acupuncture into my feet, legs and hands. It works for me!
Graham

]]> 92949f51310234c59cd72a9801c89c81 GrahamLane replied to the topic revlimid and vorinostat in the forum Side-effects http://www.myeloma.org.uk/forums/topic/revlimid-and-vorinostat#post-104973 Mon, 03 Dec 2012 21:19:44 +0000 Babs
Sorry to hear you are suffering side-effects. I too am on Revlimid and Vorinostat, everything okay at the moment but I am only on day 5 of my maintenance regime so just a couple of weeks behind you. Handy to know someone on the same treatment plan and at a similar stage though, I'll let you know if and when owt goes wrong with me.
Graham

]]> ca7998bfce799b4627b704734f1b8157 GrahamLane started the topic Newcomer on trial. in the forum Under 50s http://www.myeloma.org.uk/forums/topic/newcomer-on-trial Tue, 17 Jan 2012 04:32:00 +0000 Now Then everyone,
I've been reading this discussion board a while and have learnt some invaluable insights but been too busy to contribute until now. But I am back on the steroids so have all night – I haven't been this wide awake at 4am since I was 18!

I am 48 and was diagnosed last December after breaking some ribs moving a garden shed…[Read more]

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