Hi joe

Just wanting to wish you all the best. My partner Colin was diagnosed age 56 in 2011. It was a real bolt out of the blue! He has had the sct in November 2012 and is in complete remission, we were absolutely scared out of our minds but the medical teams are wonderful and really look after you. On e the sct gets started there’s no where to…[Read more]

Hello all

Sorry I can’t offer any information on the readings, but just wanted to pop on and say good luck with any treatment. My partner Colin was diagnosed in 2011 and had an sct in November 2012.

Just wishing you all the best with a full remission or if mgus that it just smoulders in the background and doesn’t leap to life 🙂

Vicki and Colin x

Hi all

Thanks so much for the replies it’s been most helpful. Contacted nowicantravel and they were v helpful. Told them where we are in Colin’s situation and they were great. We got an annual multi trip for £198 (one trip was 126) so we thought we’d go on the positive! I have answered yes to all the questions where possible and printed it out…[Read more]

Hi Stephen

After 4 cycles of CDT and a SCT, my light chains reduced from 2,200 to just below 20. It’s been almost four years next month since I was diagnosed in March 2010 with myeloma and over these years, my light chains have behaved unpredictably sometimes increasing, sometimes staying at a plateau for months, sometimes decreasing, but now…[Read more]

Hi Eve,

When I read your comments, like others have mentioned, I just didn’t know what to say. I am so sorry this has happened. I’m really sad for you both. It must be so difficult for the both of you trying to live relatively normal lives in such an abnormal situation. I hope Slim is able to live each day as well as he can to best fulfil his…[Read more]

Hi Stephen

Great to hear from you. I was only thinking of you the other day as you were so supportive to Colin and I. I can’t really help with the questions you pose but just wanted to wish you well.

Looking into the future is scary but it’s also good to plan, keep positive and enjoy the moment….

Look after yourself and enjoy those…[Read more]

David that’s Great well done you xx

Vicki and Colin

That’s the words we like pp undetectable

Hi trigger

Would just like to echo what the others have said….it is always a gamble because everyone’s mm is an individual condition. My partner was diagnosed at 56 and had an sct in November 2012. Fingers crossed so far still in remission. I would say that each persons journey through an sct is also individual.

If your mum feels she can go…[Read more]

Hi Andy

Glad you are feeling a bit better. Good old steph on the ball. Glad you are out of hospital and njoying the sun…..what sun! Fingers crossed for the next go at treatment 🙂

Vicki and Colin xx

Hey Tom, glad to hear your treatment is going good, are you supplementing with vodka:-)

Vicki and Colin x

Tom just spotted your blood results, not a clue where I am on this forum! I think figures look good….novice though 🙂

Vicki and Colin x

Hey Tom,

How’s the treatment going? You are amazing! You are a real star and we all need a dose of your positivity…..roll on long remission to you!

Helen, great to hear you are out the other side….result 🙂

Jean and frank, hope all going wll for you guys. Got to get all the messages in as it’s so hard to log in:-)

Vicki and Colin x

Andy

Hope you are feeling better after your stay in hospital…..soon to be back not the drugs to keep the mm at bay? Your thoughts in mm are always thoughtful,and sensible, and boy have you gone through the mill. A beacon for us all…..hope you have the holidays plan as you need more beer and sun to have a go at the pps!

Peter as a long…[Read more]

Hi all

Apart from all of the other detail, eve, one of the messages that I did pick up was that slim is no longer being treated. I’m sorry to hear this as he has gone through so. Ugh, as have you in another sort of way. Wishing you both all the best.

Our experiences have been very positive and we have both been very grateful,for all of the…[Read more]

Firstly David not impressed with the first diagnosis of ‘nothing to worry about!’ Glad you sought a second opinion! When Colin was on revlimid he had to do an injection every day to keep the flow of blood going. I think revlimid side effect is blood clots. He was just lucky that time he was on it 🙂

Hope things are going better for you…[Read more]

Hi Tom,

Jus wondering how you are doing….hope the holiday went well and you are feeling ok? :-). Still struggling with this site as it takes 10 goes to get in!

Hope all ok with you jean and frank 🙂

Vicki and colin

Hi there

Glad to hear Charlie got through the sct, that’s great, shame about the hiccup and collapse! Hope all is well now? Can’t offer any information about the hospital but wishing you all the best with your move and Charlie’s ongoing improvement x

Vicki and Colin x

Hi there,

Just logged in to say hi and wish you all the best with the treatment regime. My partner Colin was diagnosed in October 2011. Like Megan we are still careful about what food we eat and I still get nervous if we have prawns! Colin had a transplant in November 2012 and thankfully so far still in remission.

It’s a tough road for the…[Read more]

Hey Andy and Helen

Great to hear from you….despite the technical problems you are often in my thoughts. As on other posts we have been busy relocating Colin’s mum nearer us. We are hoping for a holiday abroad soon, Colin’s next appt is 5th February so if all goes well there we are off…..somewhere pending travel insurance issues and as long as…[Read more]

Hello all

We too have the log in troubles…..if that we the only thing eh! Not been on for a while as we are moving Colin’s mum down to live closer to us…..to tired to do too much typing tonight and Colin is snoring to my right! 🙂 just wanted to say hi all and hope you are all still battling on 🙂

Where’s that sun!

Vicki and Colin x