Blimey

I'm exhausted just thinking about it liz….medication, injections, thermometers….clacton on sea sounds good (no offence to clacton :-)). You have a great time, all the usual precautions and a bit extra from the consultant 🙂

Enjoy

Vicki and Colin x

Hi Helen

So pleased to hear that your back is no mm, those slipped discs are painful too though! Glad to hear you've got a solution with the hair. Have you considered different colour….again but with less peroxide in. I am sure there are Eco bleaches cos there was that scare about pregnant women dying hair? Not seen my hairdresser friend but…[Read more]

Hi Helen

Like you, our one son started uni 4 weeks after my SCT and the other a year later. We hardly see them now they are living away from home, until they return for holiday periods or phone us for money, help with accommodation problems or lifts back home.

You are right, you never seem to stop worrying about them. You try to offer…[Read more]

Hi Sandie

I think your mom at aged 87 is coping really well with taking her drugs and still managing to look after herself with your help. I know I would have struggled without my husband's help, especially dealing with the side effects of fatigue and bone pain. My husband had to take over all of the cooking, cleaning, washing, etc because I…[Read more]

Hi jean and frank,

Frank happy birthday to you 🙂 🙂 🙂 and so glad you and your family were able to enjoy a meal. Great! Hope you are ok too jean and hopefully settling into a bit of normality…..whatever that is 🙂

Onwards and upwards as Tom would say 🙂

Vicki and colinxx

Hi Helen

I can completely understand your comments about how much you should tell your son about your myeloma relapse especially with his forthcoming exams. Whilst I was going through CTD treatment, my one son was revising and taking his AS levels and the other his A level retakes.

The eldest son was absolutely fine with his A levels,…[Read more]

Hi David

That's a good idea, especially during the times when you have to take quite a few tablets. Jan x

Jacqui and Geoff,

Last lap now before the getting better bit, slowly and surely. Not an easy ride but get the hard bit over and you can start looking to the future. If brother in law has any worries or questions he can post on geoffs behalf….and I old stagers can help where we can 🙂

Who says onwards and upwards 🙂

Vicki and Colin x

Keith and sue

Thoughts and prayers are with you….you are a fighter Keith, one last go! Whatever is best for you

Vicki and Colin x

Good luck with the harvest and sct Scott. Have you had a sct before or your first go? We hope you will sail through it….no pain no gain 🙂 easy for me to say.

All the best

Colin and Vicki xx

Good luck with your operation Mandy….think nice thoughts. You have the support and thoughts of your friends and family….and we cyber friends. It's a long haul but be stubborn…..Mandy 1 myeloma 0 …..:-)

Vicki and Colin xxx

Hi Helen,

Re the hair…..can't you have a colour on it that has less bleach in it? There must be Eco friendly blonde colours out there as some people are allergic to the bleach. I will ask my friend hair dresser and see what she says….worth spending even more money on the hair and shoes etc if it makes you feel better. Get your daughter to…[Read more]

Hi Emma,

So glad to hear you mum is out of hospital and treatment has been effective 🙂 I can understand your mum needing to build her confidence but she has done so well, I also understand your worry about when is it going to come back 🙁 I am the same for Colin but trying so hard to push it from my mind so that we can enjoy ourselves…[Read more]

Hi Sandra

Have a look under the side effects section on this site, because there is a recent post under the heading of Zometa flu with 33 contributions relating to this issue which you and your mom should find informative and useful.

On my initial Zometa infusion, I certainly felt ill several days later with increased bone pain, fever and…[Read more]

Good luck with the velcade Helen!,

If its caught early maybe it can damn well stay down down down 🙂 very thoughtful you are about your boots for your daughter!! You'll need to get Another pair as you'll wear these out damn it 🙂

Vicki and Colin x

Hi sandie

Sorry cant help with the zometa query but hope your mum is feeling better soooon 🙂

Vicki and Colin x

David

Hope you have a great trip to London, and equally hope your pain management is resolved. That's the one thing that gets Colin down! Pain!! So hope you can become a s pain free as possible. Never mind the weather just enjoy your trip 🙂

Vicki and Colin x

Hi Ann

It is strange, yet comforting, that we all experience so many similar situations with myeloma. My husband also arranged a spread sheet for each cycle of tablets. We now have a graph to monitor my light chain levels! But the most useful gift which I was given by my mom was an A5 pill box in which I could place a week's supply of tablets…[Read more]

Here here Mavis!! 🙂

And thanks to all you guys who post on here…it keeps me on the straight and narrow! 🙂

Have a great weekend, and well done Mavis, long may your remission continue!

Vicki and Colin x

Only since my shock diagnosis of myeloma three years ago, I've realised that I have needed to talk about the elephant in the room in order to ensure my partner knows my thoughts about my wishes. However, it's not just one conversation, but an on going series of little discussions and comments

I must admit most of the discussions have come…[Read more]