Well done Dai, those neutrophils got a wriggle on then 🙂 result!!!!

Keep going 🙂

Vicki and Colin x

Hi jacqui and Geoff

Just wondering how you guys got on at Bristol! I so hope it went ok for you guys? Xx

Vicki and Colin x

Hi jean and frank,

Just thinking of you both and wondering how its going? Is frank home yet? And how are you doing jean x 🙂

Vicki and Colin x

Eve and slim,

This is rubbish and there is no getting away from that! I hope that they can whack it into touch as soon as possible!!!! You are both strong and supportive of each other, and us on this damn site, so it's our turn to support you guys 🙂

Thinking of you and let's hope it's a blip!

Vicki and Colin x

Hi jean and frank,

So glad that frank got out for a bit…..but that's an epic journey for him as he had been whacked with everything you can think of to get through this sct! It will come good but it takes a lot of time. Even now Colin has been rubbish since having that gastroenteritis, came out of hospital Wednesday night and he has been…[Read more]

Hi jean and frank,

I so hope frank got home for a bit today! That will be a real boost to you all! I do believe how knackered you are jean….I am still not right! Colin has stopped the sickness etc but he is very very tired and lethargic…..it seems to be taking an age for him to get back to 'normal'.

These electrolytes that they are…[Read more]

Hi jacqui and jeff

Thinking of you both, hope you are getting on ok with the gcsf injections and very best of luck with the harvest x

Vicki and colin

Hi ner

Just wanted to send you and your mum some words of encouragement. Your mums pps are very low….which is a great preparation ready for sct. There is no hiding the fact that it is a tough road, but so worth it and she will then go from strength to strength!

Take care and enjoy your Easter

Vicki and Colin x

Hi Richard and family,

This diagnosis is a real blow isn't it (understatement ha ha). And harder with a young family, I have heard from friends of friends that Germany is a forerunner in the investigation and treatment of myeloma, so you may find it was a good move.

My partner Colin was diagnosed in October 2011 and had an sct in November…[Read more]

Hi jean and frank,

Just tuning in to see how you guys are doing. How did the assessment on franks kidneys go? Any sign of coming home yet? Would be great if he could be home for Easter. Nice for you and the family 🙂 could you record the united match for frank…..he will have plenty of time to watch it when he is recuperating?

Hope you are…[Read more]

Hi Dai nd Janet,

Nope not neurotic. Every time Colin says he feels off colour the first thing I do is reach for the thermometer! You just can't be too careful. I rather be safe than sorry. Like you say Dai….it's always out of hours when you feel I'll, that is something's remember very well with Colin 🙁

We had our own little foray into a…[Read more]

Hey well done guys that's great news!

Onwards and upwards as that Tom would say 🙂

Vicki and Colin x

Ah jean and frank,

I remember you saying to me once that there is a light at the end of the tunnel, but it's another b train coming!!!

You guys are really going through the mill aren't you. I know the dealing of being so near and yet so far and that you want to get him home :-). Also the struggle with the weather over in your neck of the…[Read more]

Never mind Dai, the neutrophils are just being a bit sluggish! Hopefully they will gird their logins and get a wriggle on! 🙂

Vicki and colin

Hi Lesley

During my chemo, I stopped colouring my hair basically because like you I was so tired and had back pain from my collapsed vertebra. I wish someone had told me to get a haircut asap during cycle 1 or 2 before any possible side effects from the drugs kicked in. I had so many hot flushes and night sweats during treatment that my hair…[Read more]

Hi Eve,

Many thanks for the welcome to the site.

When I was searching for information on the MUK 5 and 6 trials, I found no specific mention of the inclusion criteria requiring participants to have taken Revlimind prior to these trials, but they did specify the maximum number of previous treatments in their inclusion critera, presumably…[Read more]

Hi, This is my first post, but I have been looking at this site for the past year meaning to participate at some stage. The range of help and advice offered on the site is tremendous and much welcomed. At aged 53, I was diagnosed with kappa light chain myeloma in April 2010 and undertook 4 cycles of CDT followed by a SCT in August 2010.…[Read more]

Hi jean and frank

Thinking of you….how's it going?

Vicki and Colin x

How's its going both,

Take care

Vicki and Colin x

Hi jacqui and Geoff,

Wishing you both so much luck with this…..it is nerve wracking. Are you doing the gcsf injections yourselves or is the nurse coming in? Bristol are quite particular about the timings because apparently gcsf has a 12 mobilisation shelf life or something like that?

June does seem like a long way away, but as long as…[Read more]