Hi chris,

Just tuning in to you and Lena, hoping that things are going well for you. Colin has been pretty rough last 2.5 days but picking up a bit now, however struggling with food and drink!. Hope your tummy is starting to settle down after coming off the antibiotics. Wish Colin could eat a bit more,like you! Colins neutrophils are 0.45 we…[Read more]

Hi all,

Well the last 2.5 days have been absolutely awful, Colin seemed so I'll, sick, tummy troubles and looked absolutely awful. Even this morning he sounded so awful. There are problems with eating, drinking,stomach feeling awful, rash however, seen the consultant this afternoon…..neutrophils back up to 0.45 which they are very pleased…[Read more]

Hi all,

Thanks…. You're right it's a slow thing. No worries. Helen you must know colin, he is grumpy already! 🙂 and some of those meds, whatever they are he is talking garbage sometimes! Still they seem to be doing the trick! Hope you are feeling better Helen with that pesky cough.

Ann and Peter, hope you are both well and Peter is…[Read more]

Chris,

That's wonderful. You keep going! Sounds from what you and the others have said you are well on the up!. Colin is looking like a bag of spanners and his hair has started to come out, for the second time!. They are ploughing anti bios in like a rate of knots! So glad you are on the up, pending release at the end of the week eh 🙂

Well…[Read more]

Hi both

We feel for you guys and wow feel very inadequate about what can be said that doesn't sound patronising. To be honest it's hard enough to cope with the diagnosis, without the disability that can come with it. You guys are absolutely wonderful about the way you are managing. The pps have come down in a big chunk haven't they. So that's a…[Read more]

Hi Phil and family,

Sorry ibliza was shut……I thought it was a rave place?

Update on Colin, the rough weekend. Consultant tells us he will start to recover, likely Monday, roll on. He doesn't look great and I'm just waiting for that hair to start coming out. He has eaten a very small amount but I reckon he's a bit like his elderly…[Read more]

Hi chris,

Just wanted to tune in to say hi to you and Lena and hope you are feeling a bit better. Pleased to hear that you are eating a bit because it's so difficult with that mouth and throat isn't it!. Colin is sleeping at the moment. He has a bit of a temperature so trying to sleep it off . Keep going and hope you are making…[Read more]

Tina,

That's an absolute pleasure. I feel humbled by all you guys! I'm sat here with Colin in hospital. He's on the bad weekend before the neutrophils start to recover. He has a bit of a temperature so sleeping at minute. I'm sorry there's not much advice I can give you…..will probably be looking to you for advice when Colin comes home:-).…[Read more]

Hi Debbie,

Colin drove most of the time through his treatment, but like the others it varied depending on whether he felt okish or not. In terms of holidays we did not bother with any when he was diagnosed, mainly because we were too scared because he was in and out of hospital like a yo yo!. We did go to friends in cornwall for 2 days when…[Read more]

All,

Thanks so much for the encouragement, both for Colin the major player, and me the minor part 🙂

Colin was ghastly yesterday, but today to my amazement he sounded a bit better and actually phoned me from hospital this morning for a bit of a chat!. I understand what you mean about those special people, well they all are, but there are…[Read more]

Hi chris,

Glad you are able to be eating a bit more x. And also glad that you are managing to tolerate montezumas!. Slowly but surely on the blood counts. They say they start going up and then boom they are off. Keep enjoying Tesco's finest, at least you are eating, which is more than Colin!

Colins mouth is really bad at the moment, so it's…[Read more]

Hi all,

Helen thanks for your advice, sorry you've still got the cough, blimey it's been going on. The wet weather in Cornwall won't help but hey we don't go to Cornwall for the weather, just the beautiful,scenery etc. We love it there. It seems like a long way away at the minute! I meant to bring coke in today Helen but was in a rush and…[Read more]

Hey Tom,

What a charming picture you paint! :-). I am sure that fills you with glee chris!. Sorry you've got the montezumas, however I seem to recall from dais post he had it for 2 days only, fingers crossed!

As for Colin they've got the sick feeling under control but the mouth is starting to play up so got this gel like mouthwash. He's…[Read more]

Mavis,

Great news and wishing you a lifetime remission 🙂 🙂 🙂

Well done and best of luck. Hooray!

Vicki and Colin xx

Hi both

Have a great holiday, if ever there is one deserved, it's now! 🙂

Vicki and Colin x

Hi chris,

Hope you are feeling ok, and montezumas revenge, if arrived is not too bad. Bet Lena will be glad to have you home :-). Hope you're enjoying the west wing. Hope the antibiotics are doing their job, best of luck. Nearly there for the upwards trend now. Your post made me laugh about the loo roll. At least I've got a sense of…[Read more]

Hi Mari, Tom and chris,

Hey chris, that's so kind of you to respond, especially in 'your condition'.you made me laugh about men sleeping through…..are you sure you've not met Colin before :-). Glad you are feeling a bit better and on the up. They seem to have got colins sicky feeling under control at the moment. Neutrophils 1.4 I think today,…[Read more]

Hi Peggy

My Colin had gcsf injections alone, for the first harvest attempt. That did not work for him. The next go he had cycloprime and gcsf…..that didnt work either. (he has always been stubborn!). His third attempt was gcsf and plerixafor, another injection that guarantees harvest. After all that he only got 2.07m which is enough for one…[Read more]

Hi chris,

Just a little note to say hi and hope things are going well for you. Hope you are enjoying your music. Sorry about the mouth, but the only way is up now as the song goes :-). It's good to compare notes although colins having a real rough ride. The preservative from the 16 bags of cells are making him feel very very sick!

Still glad…[Read more]

Hi Tina,

Can't really give you any advice as we are in the thick of it, at the moment, however just wanted to give you a few words of encouragement. It must be so hard, but just focus on a day at a time. I find that less scary than thinking about months ahead. As all the others have said you will turn a corner!

Vicki 🙂