Hi Christine, thank you so much for getting back to me, i just looked at my screen and saw i had your response and i burst into tears…..its so good to know that there is someone out there who can relate to what we are going through. My husband Dave is quite a private person and i have only hinted to him that i have been looking at this website forum as i find it comforting but he did not seem to think it would help. I feel so alone and scared and i know he is too, although up until now he has been so strong, positive and brave through all that he has gone through, his doctors have described him as 'stoic' on his medical records. But after 5 long months we are both exhausted and low. Dave was diagnosed in Feb when he collapsed after a 15 month history of back pain, orginally diagnosed as a slipped disc. From then on we have had the worst time of our lives. He had a collapsed vertabra with suspected cord compression and collapsed with a massive saddle pulmonary embolism and was in HDU for 5 days. He spent 6 weeks in hospital unable to put any weight on his leg bones due to weakness and consequently had two separate kyphoplasty ops, one in march to fix two vertabra and another in may to fix one. He had to learn to walk again and has just now gone from wheelchair to frame to crutches even though stil in some pain in his lower back. Dave completed four cycles of chemo (velcade) before we were told on 22 may that his paraprotein had plateaud and would not be having cycle 5 and 6. The next stage is a stem cell transplant which is due on 8 july, and now we have the added pain on PN which is causing more sleepless nights and feelings of hopelessnes. It is in his feet and legs and very bad and waiting to see if any other medication can help. thank you for listening and i look forward to speaking again Kim x
