Hi Gill

I've just got John back from a 2 week hospital stay – he had 2 cycles of Velcade then like Stephen took VERY bad diahhorea – you may have read my post "Volcanic Diahhorea"?

He was becoming terribly dehydrated and blethering a whole lot of rubbish as his body wasn't holding enough water in so thankfully was admitted for extra fluids…[Read more]

Yay!! Great news David, what a relief!! Truly wonderful news, and like the others say – its a great start to the week.

Like Jean, I am also jealous you can cycle 5 miles …. I'd need oxygen waiting for me at the finish line!! 😛

I had my bowel removed 10 years back after suffering severe ulcerative collitis – every appointment was…[Read more]

Oh good gracious Eve, you poor soul and poor Slim too – what an awful lot to be going through all at the one time. Bless you both.

I've just got my John home from hospital after a couple of weeks. Some staff were so helpful, others not so much. John had a bad fall down the stairs then has been suffering terribly with diahhorea from Velcade. He…[Read more]

Ooooh, this is a step in the right direction. Excellent!

John has been badly affected with diahhorea from only 2 cycles of velcade so his consultant stopped treatment till he gathered up some strength again. We got him home on Friday after a couple of weeks in hospital.

Next hospital appointment is tomorrow morning (Monday 16th), I will…[Read more]

Bless you Tina, I am so very sorry for your loss …. I can't imagine the emptiness you must feel now after caring for your Pat for so long.

Cherish your memories they don't go away. When you feel ready look out all your old photographs and remember him with fondness, the Pat you knew BEFORE he took ill when your lives turned upside…[Read more]

Hi Sharpy

YES!! Is the answer to your question :o)

My husband John was diagnosed December 2006 with Amyloidosis and Multiple Myeloma.

He started CTD in March 2007 and went into remission in September (after 6 months of treatment). He was NOT eligible for a SCT as he was so ill, like you he had amyloid deposits and was not expected to…[Read more]

Hi Marian, sorry you are having an awful time. I'm Angelina, I care for my husband John who has been fighting MM and Amyloidosis for 4 1/2 years now.

Like you, I thought all the testing was never going to end. John was going to his GP for 6 months or more before diagnosis having urine and blood tests whilst fading away (lost 6 stones and was…[Read more]

Hi Sarah, thanks for your message.

Isn't it funny how things are so different for each individual?! I suppose it would be a boring old world if we were all the same, lol.

Poor John had the nursing staff very busy last night, I hope he is better tonight and actually gets some sleep. Bless him, he's a poor wee soul.

As you rightly say,…[Read more]

Hi Bridget

Have had you on my mind today. Hope you were able to meet with or speak to your nurse today and that you got the help you needed. Hopefully you are a little more at ease and not worrying so much … easy said though and yes, just mere words.

Sending love as always and thinking of you too
Angelina xoxo

Hi Dai, I'm Angelina … returning after a 3 year gap. I look after my husband John who has MM and Amyloidosis, he's been in remission since September 2007 until recently.
Just want to wish you well as you embark on the next stage of your Myeloma journey. Hope Velcade works well for you – John is currently a poor wee soul in hospital after a bad…[Read more]

Hi Jo, hope you are doing okay?
We've had a big roller-coaster ride over the years, still riding it yet! lol
I'm casting my mind back a few years …. after 6 months of CTD Johns cancer went to sleep. They continued with Thalidomide for a few months afterwards to ensure the paraproteins stayed low (just a few months, low number but can't…[Read more]

Hi Min, just back from the hospital visiting John.
Archangel Raphael is the healing angel, you could ask for his help to take away pain and guide the doctors in the right direction to put you on the road to recovery.
Archangel Michael is the angel of strength and courage, you could ask him to sit with you (I am doing that for you just now…[Read more]

Hi Bridget
Just wanted to send my love and some healing thoughts too. Like the others are saying above me here, you may well have got carried away with all the good work you were doing in the house and your body is telling you off and asking rather impolitely to calm down a bit. Although you are more in-tune with your body than any scanner or…[Read more]

Hi Clarabel, nice to hear from you, hope you and your dad are keeping well.
You were asking if John had a SCT – no is the simple answer. He was put on the CTD cycles for 6 months then achieved remission from that alone – given how incredibly ill he was I think the combination of the 3 drugs has worked miracles on him. He was very limited in what…[Read more]

Hi Clarabel, I've recently came back to the forum after a 3 year break so just catching up with all the news and stories etc.
I'm Angelina, I care for my husband John who was diagnosed with AL Amyloidosis and Multiple Myeloma back in December of 2007.
I replied to a previous thread you had in another post but will recap here also. Johns tests…[Read more]

Hi Clarabel, I'm Angelina. I see your post is from February so hopefully you have got all the answers now that you were hoping for.
My husband John was diagnosed with AL Amyloidosis and Multiple Myeloma in December of 2007 (4 1/2 years ago).
Like your dad I felt the tests were going on forever – bone marrow biopsies, x-rays, endless blood tests.…[Read more]

Awe, bless you Bridget …. thank you so much for your kind words and caring thoughts.
I've always said the whole MM thing is like riding on a runaway roller-coaster – there have been so many ups and downs over the years and there is really not much control over what twists and turns are coming next.
Yes, you are partly right about John being a…[Read more]

Hi Tony, hope you are keeping well.
I'm Angelina, I've not posted anything on here for almost 3 years now … my husband John has managed to stay in remission till recently so I'm back on here now reading everyones stories.
John was in a bad way for months till he was diagnosed in December 2007 with both MM and Amyloidosis. He was given the CTD…[Read more]