Myeloma Forum | AmandaMorgan | Activity https://forum.myeloma.org.uk/members/AMorgan123/activity/ Activity feed for AmandaMorgan. Sat, 11 Apr 2026 14:18:44 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 1a6a4aa0e8e34adbe029850ab0de0a7e AmandaMorgan started the topic Benefit Assessmsent / Claim - Where do I go from here? in the forum General http://www.myeloma.org.uk/forums/topic/benefit-assessmsent-claim-where-do-i-go-from-here/ Thu, 16 Oct 2014 19:58:12 +0100 My husband had a letter from the DWP today to say that his DLA is being stopped as he currently doesn’t score a high enough mark on their points system for PIP. Along with losing DLA, he also has to send back his Blue Badge.

FYI: My husband was diagnosed with Multiple Myeloma (blood cancer) in August 2012* and was given a life expectancy of…[Read more]

]]> eda6469c046d704a3c2712d0646ff0f9 AmandaMorgan replied to the topic Myeloma Charity Car Boot.... in the forum General http://www.myeloma.org.uk/forums/topic/myeloma-charity-car-boot/#post-118285 Tue, 23 Sep 2014 13:15:54 +0100 Thank you Sharon for all your tips. I will definitely take them all on board. Sending lots of (((HUGS))) for your chemo journey and hope that you get your energies back soon.

As I have so much stuff, and a first minor step, I will be supplying/selling some items at the Myeloma UK Charity Bazaar being held this Sunday (28th) between 1-4 at…[Read more]

]]> 6af18c846de53f6f452a2284130795e5 AmandaMorgan started the topic Myeloma Charity Car Boot.... in the forum General http://www.myeloma.org.uk/forums/topic/myeloma-charity-car-boot/ Sun, 21 Sep 2014 14:01:37 +0100 Hello All

After attending the (inspiring) Infoday in Birmingham yesterday, I woke up this morning with the idea that I would like to do a car boot event to raise the awareness and funding for Myeloma UK.

My house is FULL of good quality and useful clothing (some with tags still on), shoes (some never worn), electrical equipment (still…[Read more]

]]> ae8eb6e5391c6c175ed5da59bf8f5760 AmandaMorgan replied to the topic Need advice please in the forum General http://www.myeloma.org.uk/forums/topic/need-advice-please#post-94333 Thu, 07 Feb 2013 18:58:06 +0000 FYI: information taken from:

http://www.adviceguide.org.uk/nireland/healthcare_ni/healthcare_nhs_healthcare_e/nhs_patients_rights.htm#DischargefromhospitalEnglandWalesandScot

Discharge from hospital
In England, you should not be discharged from hospital until your care needs are assessed and arrangements made to ensure that you will…[Read more]

]]> 5308fcadef6fa9b6361750a416012454 AmandaMorgan replied to the topic Anyone Near Cannock? in the forum Carers http://www.myeloma.org.uk/forums/topic/anyone-near-cannock#post-106497 Sun, 21 Oct 2012 11:53:32 +0100 Hello Lorna!

This is fantastic news (the fact that you live so close, not the illness) 🙂 .

I'll send you an email with my contact details and we'll set up a get together.

I look forward to meeting with you soon.

A. Xxx

]]> a247a516b163add007e8b03be260b348 AmandaMorgan started the topic Myeloma XI Trial (MXI). in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-xi-trial-mxi Sun, 21 Oct 2012 11:48:48 +0100 Good morning

Is anyone on the Myeloma XI Trial ?

My husband Bob (58) is on the 9th week (3rd cycle) of this trial and I'd like to touch base with other patients and carers to compare notes and share experiences.

He's being treated at Good Hope Hospital, near Birmingham, and I understand this trial is also running at Heartlands.

It…[Read more]

]]> 04454c26e4cfbb4d6dd5f17d548ec1ef AmandaMorgan started the topic Anyone Near Cannock?. in the forum Carers http://www.myeloma.org.uk/forums/topic/anyone-near-cannock Sun, 21 Oct 2012 11:27:09 +0100 Hello all

Are there any Carers or Patients living near Cannock, Staffordshire?

My husband, Bob (58) was diagnosed with MM 8 weeks ago and although we're both coping with the disease and the Myeloma XI Trial treatment, I'd like to meet up with people in a similar situation and have face to face chats.

I currently feel very isolated as a…[Read more]

]]> 4893e96b33d99aa22175badd6b44f7c6 AmandaMorgan replied to the topic A BIG Hello in the forum Newcomers http://www.myeloma.org.uk/forums/topic/a-big-hello#post-86637 Sun, 21 Oct 2012 11:05:36 +0100 Thanks all for the great welcome.

Just an update on Bobs' progress.

Bob starts his 3rd 28-day cycle of medication today.

He's in good spirits and very little pain as he's on full dose morphine, oral morphine solution and paracetamol.

The Myeloma XI trial is going well and the 4-weekly Zometa infusions are working (although they…[Read more]

]]> 65a62367219e2dfbf9ed09acf5daed20 AmandaMorgan started the topic A BIG Hello. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/a-big-hello Sat, 01 Sep 2012 16:09:35 +0100 Just to say a BIG hello to everyone on this forum.

My husband (58) was recently diagnosed with MM Stage II and after scanning through some of the discussions, I find it to be a very welcoming and positive place.

When I get more than 5 minutes to spare, I'll take a more thoughtful look through the discussions and see what tips I can pick…[Read more]

]]> 1345a7c8270ea6548077608ae399d030 AmandaMorgan started the topic Myeloma XI Trail. in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-xi-trail Sat, 01 Sep 2012 15:48:45 +0100 Hello,

My husband was confirmed as having Stage II Multiple Myeloma on the 21st August (after initial tests began on the 13th August) and started the above trial on the 26th August.

He is 58 years old and has been off work for more than 16 weeks now with what we initially thought was a bad back.

Is anyone else on the same trail as I would…[Read more]

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