Hi Jeff Sorry for the delay. It is at the Chase Hotel Ross on Wye. Thats Herefordshire.

Hi Sonia

Its vicki here I see your friend request but I don’t know how to accept it. Happy to but it doesn’t seem to work on my profile. With all good wishes for the SCT. be positive thats so important. I know how difficult it is for you as the supporter too. This website is great to talk, and seek advice and information. The nurses are great…[Read more]

Hi Gill I noticed this and wanted to post a reply. My Colin passed away last August. There just seems to be so many things that I am struggling to enjoy- we enjoyed cooking, eating, drinking, sport. All of those things seems to be a struggle to do now rather than an enjoyment. I know its still early days and I wondered how you have managed to get…[Read more]

Hello Sheelagh

I am sorry to hear of your current situation. My husband Colin had Myeloma. It was a real roller coaster of treatment but the SCT did give him nearly 18 months of remission. Please try to keep positive. I know how difficult it is for the supporter. I was that myself and felt very helpless at times however you have a really…[Read more]

Hello All

Its Vicki Heselton here, Colin’s wife.I just wanted to post in to say that I am so glad you are all doing ok. I think of you all very regularly even though I don’t post here now much. I am trying to make effort in other ways by raising funds to support Myeloma Uk and have a fund raising ball scheduled for April 2016.

I am so glad to…[Read more]

Hi Eve

Hello All, Its Vicki Heselton here. Colin’s wife. The knitting thing looks great but it was never my strength. Eve I can’t believe you are still travelling. You are an absolute star. Hello to all of you I don’t post on here much now but I do think of you all. Tom, Helen, Ali’s Mum, Andy G. I do hope you are all doing well. I am doing a…[Read more]

Dear all

Thanks so much for your kind words and encouragement. Colin is still very weak but I think that part of that is the emotional stress all this brings. He is eating well though which is good.

One piece of good news. We got married yesterday after 17 years together. In 4 days our friends, family and our local vicar ensured we were able to…[Read more]

Hi all

Thanks for your good wishes. It just seems to go from bad to worse. Last Wednesday they took the pic line out. Because Colin’s temperatures were up and down the consultant told Colin, on his own that he had weeks not months to live. We were staggered and still are. I brought Colin home with a bag full of drugs and a foreboding that our…[Read more]

Dear All

Can I just say thanks so much for your kind words and thoughts. It is good to know that there are so many people thinking of us. Its an awful situation to be in. There has been no change in the bloods and just lots of transfusions of platelets and bloods. We are both still hopeful but as each day passes and with more temperatures each…[Read more]

Dear All

The worst seems to have happened. Colin had a bone marrow assessment on Tuesday night as his immune system still wasn’t doing anything. It revealed that his bone marrow was empty of everything good- leaving behind some myeloma cells. Effectively the treatment hasn’t worked. Without the hope of his bone marrow recovering so they could try…[Read more]

Hi Helen and Maureen

Thank you Maureen. I hope that Ians bloods improve soon. Is he well in himself? Sometimes its a slow burn isn’t it. Apparently blood cancers are very complicated (I guess they all are!) but I so hope that Ian will perk up soon and theres a long long remission.

Helen thank you so much for this post, You really boosted me up.…[Read more]

Hi Jeffrey

My colin is the same. He will sleep for England and then will perk up about 9 at night when I am whacked!!. I think tiredness is a standard of this condition plus the side effects of the meds.

Wishing you well

Vicki

Hi there

I don’t have any experience of more elderly diagnosis, but just wanted to drop you a kine to wish you well. I do know of others not in my family, that are pensioners and been diagnosed. They are on maintenance treatment and doing very well- I do hope you Mum will be well. Just take each day as it comes. I think that applies to all…[Read more]

Hi there

my colin was delayed twice. We didn’t realise there could be a delay and it was a real blow and hard to come to terms with as we had psyched ourselves up for what was to come. I do sympathise with you- it was hard. But on a positive note you have got yourself into a position to have an SCT so thats great. Wishing you all the very best…[Read more]

Hi Maureen

Thanks for your message. I haven’t got the hang of doing messages so I thought I would post here. Firstly I did get to the wedding- which was lovely- but very odd going without colin. I had very mised feelings about going but didnt want to let them down. Colin was fine with it.

Colin is still in hospital. Last week was horrible- he…[Read more]

Maureen

So very pleased to hear that. Hope Ian continues to make a good and full recovery and remission.

I am so worried about Colin. He has been in hospital since last Friday. He has had the melphalan but it’s knocked his bone marrow. Despite gcsfs he’s still showing an immune system of 0.00. Worse than that he has a temperature of 38.1 and has…[Read more]

Hi Andy

I’m ok thanks. I do worry that Colin will get so fed up at being so tired all the time that he will just give up. It’s getting harder and harder to motivate him. In terms of the SCT we are just going with the flow because we’d be grateful at the mine to get the condition under control. My family are brilliant and we have some really good…[Read more]