AlexB replied to the topic The Under 50s Group in the forum Under 50s 12 years, 4 months ago
Chris, you have made my week. I look forward to leaving a similar message on a forum somewhere in 2032.
AlexB replied to the topic Coming to terms in the forum Newcomers 12 years, 4 months ago
Hi Kes
I'm 39. I was diagnosed in August too. And I'm on my 5th cycle of PAD. Myeloma sucks. It's a pain (literally), and it won't go away. I'd love to go through a whole day without thinking about myeloma once. I wonder if that will ever happen.
On the other hand. We only live once. I'm certainly not going to sacrifice whatever life I have…[Read more]
AlexB replied to the topic Recently diagnosed aged 28 – EJBones.wordpress.com in the forum Newcomers 12 years, 6 months ago
Hi Emma.
I'm 39 and I feel cheated – it's a tough think to face up to, and yes, a lot to take on (I was diagnosed in July). Definitely get yourself into the under50s by emailing Scotty. There are a few of us youngies around, which is reassuring.
AlexB replied to the topic Starting Padimac trial in the forum Treatment 12 years, 8 months ago
Hi Judy & Helen
I'm sitting staring at the forms trying to understand if PADIMAC is right for me (rather than just have CTD and then SCT). I think – am I right in understanding – that if the PADIMAC response is good then they won't want to proceed to SCT. Though whether one could opt out of the trial, and into SCT, some months on, I'm not…[Read more]
