Thanks a lot for your reply!
John had serious skin problems and he has been regularly to the dermatologist who checked for everything including AIDS (!), but they never saw any link to his MM which I find VERY strange since I have read numerous reports from mm patients telling about different skin problems.
However they finally gave him…[Read more]

Thanks for the explanation and your good wishes – we will pray for you as well.
Love
Amelie

Oh I hope I am not confusing things. Cardamom is a common spice which is used for cakes ore Indian food. From what I can google cardamonin comes from cardamom:
http://natural-field.en.alibaba.com/productshowimg/455860924-212284429/Manufacture_98_cardamonin_cardamom_extract_.html

OMG – that is funny! I have made a lot of cakes for John and we started joking that is was his medicine. If cardamom is effective it might be true! 😀
Thanks for posting!

Thanks Kay, that is nice to hear!
What exactly is HB?

I am looking very much forward to hear what the doctor said on Tuesday. It is going to be a tough couple of days though – on Monday my favorite aunt is having a heart surgery 🙁

Thanks a lot for your replies.
His PP has been raising for more than 3 times, but everything else seems to be perfect, so the doctor didn't seem worried last time.

Today John was less concerned and said the pain could just be old age, just like you said Tom. The pain in his ribs isn't new, already when he was in the hospital he was told they…[Read more]

Just wanted to send you my most positive vibes!

Great news, congrats!

Thanks again to all of you for your very informative answers.

Somewhere else I read about someone who had bone damages with a paraprotein level of 3 and here I am reading about patients living well with very high levels. So it must mean that paraprotein alone says very little about the condition.

John had severe bone damage with a…[Read more]

Happy birthday to all of them! Each of them deserves a cake!

Hi Jean!

So it means that Frank has been living with a paraprotein between 21 and 30 for 5 years without a sct?
This disease keeps surprising me… When John was diagnosed his paraprotein was 37 and 2 vertebraes were gone. How comes that 37 was very serious for John while Frank can live with 30 without treatment?
Thanks for writing – it is…[Read more]

Dear Bridget, thanks for your reply. I absolutely agree with you, that we should not be over fussy. As you might remember John is my old friend and not my husband. We see each other a couple of times a week and we don't always speak about myeloma. He knows that I am worried but one of the reasons I use this forum is that I don't want to talk too…[Read more]

Just wanted to send my best wishes and thoughts.
I hope you will be able to make the journey.
Love
Amelie

Thank you very much both of you for your replies.

Apparently John had to squeeze the information out of the doctor who finally said, that John's case looks to be a normal case where the myeloma is back within 3 years from sct.

I know this isn't exactly bad compared to patients who are fighting with failed treatments, but I can't stop being…[Read more]

Last week John had his monthly blood test and meeting with the doctor. The M level is still rising – now it is more than 5, but the doctor still doesn't seem worried.

I am extremely worried. Has anyone else experienced a rising M level, which according to the doctore isn't serious?

Hi Dai,
Great to read about your experience. May I ask if a second sct has been considered for you?
I know they collected stemcells enough for 3 sct's for John and he had one, but it was hard to him and I am fearing the day they say it is time for the second one.
Best wishes,
Amelie

Ok – thanks a lot!

Wher to find Shapie's last post? Tried to seach but I can't find it.
Love
Amelie

Very well done David!!!