Dear Min,
I am so terribly sorry and my heart and thoughts go to you.
Love
Amelie

Just want to send you all my best wishes, I can immagine how you must feel.
Love
amelie

Well done Keith, I am so glad to hear you didn't feel sick.

Thank you so much Carol – your experiences help me a lot!
It is really good to hear that the level can go up without it necessarily has to be a relapse. Hopefully John's will go down again. We will see.
Love
Amelie

Hi Gill,

I have written to the myeloma uk nurse before and got an answer so I will do that again. They are very helpful and write very clearly and easy understandable.

I am thinking much about his way of coping with the disease. He is not denying that he is ill and he shares all informations, but he gives it very little space in his…[Read more]

Thank you Jet, no problem – I got your point!

Dai, that is correct. He is much older than me and a kind of second father. He has a family but for some reason I don't know they don't take part in his consultations and they don't know much about the disease. I have had the thought if I should offer to join him, but it could be a bit awkward. On the other hand he shares all the information he…[Read more]

Hi David,
You are right – it helps just to share the thoughts with others in the same boat.
Good idea to contact the nurse – I will do that.
Hope you got some sleep and had a great trip!
All the best,
Amelie

Thanks so much Eve for your kind words.
It certainly means a lot to have this place to ask questions and to share the experiences with this dreadful disease.
I am sorry Slim couldn't have the SCT.
All the best,
Amelie

Hi Dai,

I have been reading a bit here and there but not as often as before since I felt I needed a little break.

I hope we will get more details soon. How frequently did you have the consults? Until the beginning of the summer John went there every month, but now it is only every 3 months. I wonder if the rise will change that.

I just…[Read more]

Hi Jet,

Thanks for your reply. The information level here is poor and John is not good in demanding answers.

I know every case is unique, but I still benefit from hearing about the experiences of others.

Take care,
Amelie

May I ask when was your sct?

No he didn't get any anti-histamines. They have been recommended on this page before and I have mentioned it for him, but apparently the doctors have other ideas 🙁

Since his sct was a year ago they claim it has nothing to do with the skin problems, but I have a strong feeling they are wrong. Therefore I am…[Read more]

Hi Shirls, he got an auto so it can't be graft verses host – at least to my knowledge.
Thanks for your reply and get well soon!
Love
Amelie

Thanks for your reply Scott – hope you will do better soon!

No one? :-/ Can John really be that unique?

Great to hear, Mari!

My friend is doing very well too. In August, almost exactly one year after he was discharged from the hospital, he will be conducting a great concert. I am so grateful that it is possible.

Bridget, you are not the only one who is lacking skills – I can't swim!!!

Just read your other thread – this is great news!!!

Hi Gill,
Just wanted to say that I am so sorry to read your post and I send you both all my best wishes,
Love
Amelie