Amelie replied to the topic Michael is dying in the forum General 14 years, 4 months ago
Dear Roz,
I am terribly sorry to read this – it must be so hard for you. Please receive all my best wishes.
Love,
Amelie
Amelie replied to the topic eczema in the forum Side-effects 14 years, 4 months ago
Thanks again – you have been a great help!!!
Amelie replied to the topic Revlimid Maintenance Therapy in the forum Treatment 14 years, 4 months ago
Thanks for your replies!
Mari as far as I have understood Revlimid has less side effects than Thalidomid, so maybe it would be worth fighting a bit for it? When given as maintenance it is only a low dose.
Love,
Amelie
Amelie replied to the topic eczema in the forum Side-effects 14 years, 5 months ago
Thank you! He is going to see his doctor next week, so I will tell him to ask for the Citrazine.
Amelie replied to the topic eczema in the forum Side-effects 14 years, 5 months ago
Thank you Bridget, I will tell him to ask them.
Love Amelie
Amelie started the topic Revlimid Maintenance Therapy. in the forum Treatment 14 years, 5 months ago
I know I have written about this several times before, but it keeps popping up in my mind and now there was a new article on myelomabeacon.org
As far as I have understood the doctors don't completely…[Read more]
Amelie replied to the topic eczema in the forum Side-effects 14 years, 5 months ago
Thank you! Do you feel any side effects from Citrazine?
My friend has been lucky not to have any infections since his SCT. However it is bleeding when he is blowing his nose.
Amelie replied to the topic eczema in the forum Side-effects 14 years, 5 months ago
Hi David,
Thanks for your reply! I just read about Betnovate and one of the side effects should be itching??? Did they tell you about that? It seems strange.
Best regards,
Amelie
Amelie replied to the topic Musings from Ward 9 in the forum Treatment 14 years, 5 months ago
Hi David, hope your happiness level will raise soon again! Although 5 isn't that bad taken into consideration what you have been through!
John had his sct in beginning of August and he is already back working half time and doing well so this can work miracles.
Wish you all the best!
Amelie
Amelie replied to the topic Not so good today in the forum Treatment 14 years, 5 months ago
Dear Kevin,
I am so sorry to read this. I wish you all the best. There are so many treatments now, I am sure something else will work better for you.
Love,
Amelie
Amelie replied to the topic eczema in the forum Side-effects 14 years, 5 months ago
Hi Peter,
Thank you so much for a very helpful reply – I will instantly recommend the antihistamine and Doublebase to John.
Good luck to you too!
All the best,
Amelie
Amelie replied to the topic eczema in the forum Side-effects 14 years, 5 months ago
Thanks a lot for your reply!
He didn't get revlimid so far, but maybe the stuff could work anyway.
Has anyone an idea about what could have caused the itching?
Amelie started the topic eczema. in the forum Side-effects 14 years, 5 months ago
My friend John who had a successful sct in the beginning of August is now suffering from an itching eczema on his body. It is very unlikely to be a side effect from the melphalan since it is less than one per thousand who experiences that. For a while the doctors thought it could be a side effect from the transplant itself, but now they don't know…[Read more]
Amelie replied to the topic David's SCT in the forum General 14 years, 5 months ago
Good luck from me as well!