Hi Richard
Glad to hear you are out on parole for good behaviour. Graham is hopefully going in tomorrow for his STC. His chest infection has now improved and a terrible rash that he got on his face has now also improved. We were lucky in a way that the chest infection started the day he was due to go in and not the day after.
Graham bought an…[Read more]

Definitely losing it! You are not Carol you are Sarah. I think the fact that graham’s stem cell transplant yesterday has had to be postponed has had a bad effect on me and feel quite stressed this week.
Angela

Carol – I am losing it. I am 56 for the next fortnight and graham is 56 until November.

Hi Sarah,
My husband was diagnosed in May 2013 with fractures in his spine and multiple myeloma. we are both 57.from January to end of april all he was offered was painkillers from his gp and physio but it was not improving and he was eventually diagnosed when his physi requested an mri scan. from January to april 2013 I was going through…[Read more]

Hi Carol
Hope it’s going as well as it can at the stage you are now at. I read out how you were doing to my husband so he would be prepared for when he was due to go in yesterday and glad to see that 5 days after transplant you are finding it manageable despite all the side effects. We were still packing Graham’s bag at midnight on Monday but on…[Read more]

Hi Carol
My husband is just a week behind you. He goes in the following Monday and has Melphalan on the Tuesday and stem cells returned on the Wednesday. Good luck for your treatment and let’s hope you both have a long remission after this.
Best wishes, Angela

PS I wish Graham was going in on Sunday too so that he would be recovering sooner…[Read more]

Glad to hear M is home. Your husband’s spreadsheet takes me back to last May when my husband came home with 2 carrier bags full of drugs ready to start his treatment last May. He is an IT teacher so the first thing he did was make himself a spreadsheet and I went out and bought him a flat screw box that had different sized compartments in it for…[Read more]

Hi Sal
Sorry to hear your husband has been recently diagnosed and is at present in hospital. I hope he is home soon.
My husband was diagnosed in May at the age of 55 following 5 months of really bad bag pain which was getting worse. He had fractures in his spine and had really bad back pain which eased after a couple of months of chemo. He has…[Read more]

Hi Richard
Had problems posting on here last night so had to post to you elsewhere but just want to wish you good luck for today and hope your treatment goes smoothly and that you are soon on the way to recovery.
Best wishes from Angela and Graham

Hi
I am now having problems entering the treatment discussion forum although I can now see the right hand side of the page completely again. I wanted to wish someone good luck for his SCT tomorrow but when I go into the “treatment” discussion forum it logs me out. I then log in, go to discussion forum and it logs me out again. However, I could…[Read more]

Hi Richard
I am just writing to wish you the very best of luck for your stem cell transplant. I know you go into hospital tomorrow and although I tried to go on to your latest thread of stem cell buddies every time I try to post something it logs me out so I had to send you a message on the newcomers site from ages ago which keeps me logged…[Read more]

Hi everyone, Graham now has his date for going in which is Monday 27th January after going to hospital on 24th to have his line put in. It seems a long time off but I know it will come quickly. Graham’s date is therefore nearer to your’s Carol and by then Richard may well be leaving hospital and ready to go home. Graham has been having quite a…[Read more]

Hi Richard, It’s a pity you don’t live nearer. We could put you in quarantine together and do shifts between us to look after you both. 🙂 I am sure we will all have a better year – it surely can’t be any worse!

Hi Richard
Hope you have a lovely Christmas day with your family. Grhaham now has a date for consent for transplant which is 14th January so you will already be in having yours done by then. We will presumably get a date for his when we attend on 14th. We had a lovely Christmas day at our daughter’s house yesterday and we are partying tonight at…[Read more]

Hi
My problem is that I can never read the end of each line – part of the right hand side of any postings is not available for me to read so I only ever read 3/4 of the line and am missing parts. Do I have to alter any of my settings. I have also tried the new website at work but can no longer access the site there as I used to be able to in my…[Read more]

Hi Everyone
Today Graham had his echocardiogram, his pulmonary function tests and his monthly Zometa infusion. Just waiting for date to go in now but going to enjoy Christmas first. Although he had a lot of pain in his hips and back on Saturday and Sunday this eased off and he is back to working half days this week.
Angela

Hi Tom
Sorry to hear that your MM has returned. I have enjoyed reading your posts as you are so positive which is what is needed to beat this and I am sure you will continue to do so whatever treatment is decided upon. Graham has just finished stem cell collection and awaiting a date for first SCT and I hope he also gets at least 4 years before…[Read more]

Hi Richard and everyone
My husband Graham finished his stem cell collection yesterday and told me he has had pain in his hips for the last couple of days. As well as MM he also has Gout. Today he has woken up and the pain is still there in his hips so he is back taking 6 Tramadol a day. Has anyone else experienced this? Also, I wonder what…[Read more]

Hi Richard
Harvesting now completed. It started on Wednesday and ended today. I know sometimes it can take 3 this long and Graham was quite happy with this as obviously he wants to make sure they have enough for 2 transplants. Like you say there is no pain so everyone can be reassured that if my hospital phobic husband can go through this and…[Read more]