Myeloma Forum | AngelaSmithies | Activity https://forum.myeloma.org.uk/members/Ang287/activity/ Activity feed for AngelaSmithies. Mon, 06 Apr 2026 22:47:14 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 79a84d2e5ac96d19531eafff16cb2613 AngelaSmithies replied to the topic Myeloma XI Trial maintenance in the forum General https://www.myeloma.org.uk/forums/topic/myeloma-xi-trial-maintenance/#post-136213 Tue, 28 Nov 2017 13:50:00 +0000 Thank you so much Debbie for posting this. It is so helpful and reassuring. My husband was a bit upset at first as he thought this might be the cure! He was very irritable and difficult to live with when he was on the Vorinostat. I definitely knew it was week 1 or 3 of every month so I am very happy he has been taken off it, especially as the…[Read more]

]]> 68826c656f12bbfb0a261e12dbc301c2 AngelaSmithies replied to the topic Back again, in the forum General https://www.myeloma.org.uk/forums/topic/back-again/#post-135854 Thu, 09 Nov 2017 13:56:04 +0000 Hi Richard, sorry to hear the Revlimid is no longer working. That’s all Graham is on now for his maintenance and I realize it won’t work for ever but just glad it’s working for now and he will make it to his 60th in two weeks’ time. We are having a big party. I can remember reading the figures of 50% surviving 5 years when he was diagnosed in…[Read more]

]]> 055cc3321fcad306b60f10d8f4402e45 AngelaSmithies replied to the topic Maintenance alternative to a first SCT in the forum Treatment https://www.myeloma.org.uk/forums/topic/maintenance-alternative-to-a-first-sct/#post-135853 Thu, 09 Nov 2017 13:27:49 +0000 My husband is on Revlimid maintenance as part of Myelomz XI trial following his SCT. His Consultant said that what he is taking would probably cost about £3,000 a month !!!!!! We could never have afforded that ans so glad that he is on the trial. I hope you can get some maintenance that would be good for you on the NHS.
Angela

]]> 1387a3ba81b3398cfdb6f7122e0f3bb9 AngelaSmithies started the topic Myeloma XI Trial maintenance in the forum General https://www.myeloma.org.uk/forums/topic/myeloma-xi-trial-maintenance/ Thu, 09 Nov 2017 13:12:36 +0000 My husband is on the myeloma XI trial and is now nearly 4 years in remission following his stem cell transplant. The maintenance he was randomised for after the transplant were Revlimid and Vorinostat. We saw his Consultant yesterday as he is now stopping the Vorinostat. Apparently it has already been proven on this trial that the Vorinostat…[Read more]

]]> bdf71a262274dc28fca2ed977458e764 AngelaSmithies replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/2/#post-131688 Fri, 27 Jan 2017 11:32:14 +0000 Hi Richard
I too hope you get some good results on Monday. Dr A won’t tell you too much about the next stage as he takes things very slowly which is good because it would be too much to take in all at once and you need to concentrate on what’s happening at the moment and see how you do. The main thing is to get rid of your pain and get your…[Read more]

]]> c1007cfa5cd0a94ee8b8c8087091d124 AngelaSmithies replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/2/#post-131675 Thu, 26 Jan 2017 14:38:53 +0000 Hi Peter. Graham was only admitted to MRI for about 2 weeks. After stem cell transplant was carried out he was allowed home for a couple of days until he started feeling poorly so that was good. He then had to go straight to isolation when admitted as he had a bit of flu. He also had a morning in intensive care and while there rang me for a…[Read more]

]]> 0758c8d00c803be9c880805149f47596 AngelaSmithies replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/2/#post-131650 Tue, 24 Jan 2017 14:54:24 +0000 Hi Richard

We saw Dr Allameddine yesterday for Graham’s 3 monthly appointment. His bloods are still good so he carries on normally with his Myeloma XI maintenance (now 3 years in stringent remission). It’s now 4 years since diagnosis and Graham said to Dr Allemeddine that he was only originally expecting to survive 5 years and then Dr A said…[Read more]

]]> 0eaf1b7a88dbb3bfbb205821c5f03433 AngelaSmithies replied to the topic I'm so happy! in the forum Off topic https://www.myeloma.org.uk/forums/topic/im-so-happy/#post-131511 Fri, 13 Jan 2017 12:43:23 +0000 Hi Richard, It was great to see a post from you and to see that you are doing so well and learning new skills. I can’t believe it was 3 years ago when you were about to go through the SCT at the same time as my husband Graham. It’s so good that you are both doing so well. Keep it up and I am sure you will see your pension. I am 60 and get my…[Read more]

]]> 88cade3b20c7b667eaaa3772aa4bdd32 AngelaSmithies replied to the topic Newly diagnosed family member - best ways to support them in the forum Newcomers https://www.myeloma.org.uk/forums/topic/newly-diagnosed-family-member-best-ways-to-support-them/#post-131470 Tue, 10 Jan 2017 13:19:12 +0000 Hi Pepz, I agree totally with what Rebecca has said. My husband was diagnosed with Stage 3 and at the time you think it sounds so bad compared to Stage 1. i think Stage 3 was because he had damage in his spine with some collapsed vertebrae and he was originally in agony with his back. However, now he is nearly 3 years in remission following…[Read more]

]]> 9be36988f6f0b01bd2acbc57b126ff3b AngelaSmithies replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/#post-131459 Mon, 09 Jan 2017 14:30:21 +0000 Hi again Richard
Even though my husband has been nearly 3 years in remission he still gets bad chest infections and colds at winter time so he definitely could not have carried on with working as a lecturer in a college full of students. He was 55 at diagnosis and our daughters had been through Uni and now don’t live with us so money pressures…[Read more]

]]> 6f04b84ad3ca67fb380eb5eef9f73731 AngelaSmithies replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/#post-131441 Fri, 06 Jan 2017 13:05:32 +0000 Hi Richard, I hope the Bury Support Group have been in touch with you by now. I wanted to go to their meetings but my husband who has myeloma didn’t want to go so I learned all I could from this forum which was so helpful to us after he was just diagnosed. I used to tell him all the positive things I had learned. He was an IT Lecturer and his…[Read more]

]]> ff4ae8d8062222bb96d03d5451ab7338 AngelaSmithies replied to the topic 3 Years on... in the forum Under 50s https://www.myeloma.org.uk/forums/topic/3-years-on/#post-129299 Tue, 30 Aug 2016 12:28:01 +0100 Hi Scott, I remember you from the early days. My husband was on Ward 44 too and diagnosed 3 months before you. He too is still in full remission and on Myeloma XI trial and taking Revlamid and Vorinostat as maintenance. He is now back at the Royal Oldham Hospital for treatment after his 100 days post transplant. You are doing brilliantly if…[Read more]

]]> b456d3e1b09891c417f197be22361563 AngelaSmithies replied to the topic Zometa in the forum Treatment https://www.myeloma.org.uk/forums/topic/zometa-2/#post-129101 Fri, 05 Aug 2016 11:56:56 +0100 My husband has now been having Zometa infusions for 3 years and says the pain afterwards has lessened to what it was originally. He now makes sure he has lots of water afterwards so he doesn’t get dehydrated. He has never mentioned sore eyes but definitely gets some back pain and other aches.
Best wishes, Angela

]]> 7331a9ad5f010ee8f37233e698117b7b AngelaSmithies replied to the topic GP letters in the forum General https://www.myeloma.org.uk/forums/topic/gp-letters-2/#post-127389 Wed, 23 Mar 2016 13:42:28 +0000 I work at a hospital and once you have said once that you would like copies of clinic letters you should get them automatically after every visit. Just in case though when you arrive for your appointment inform the clerk on reception that you would like a copy of the clinic letter. My husband gets his clinic letters and has never had to ask again…[Read more]

]]> 3d6f6ec350bec0d5286d6b8a4032fa8d AngelaSmithies replied to the topic Confused, worried, can anyone help in the forum Newcomers https://www.myeloma.org.uk/forums/topic/confused-worried-can-anyone-help/#post-127034 Tue, 01 Mar 2016 13:41:10 +0000 Hi Mark
My husband was probably smouldering for years and unaware of it. He had many pains with hips and back over the years and put it down to his gout. He was diagnosed at the stage of having had a bad back where he would collapse to the floor and after 5 months of intense back pain and physio that made things worse he had an MRI scan which…[Read more]

]]> 792ae5b2cdb012ccf4bff91b8c3bce75 AngelaSmithies replied to the topic clinical trial or no clincial trial? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/clinical-trial-or-no-clincial-trial/#post-126714 Thu, 28 Jan 2016 14:17:54 +0000 Hi Faye
My husband decided he would go with the Myeloma XI trial and you are then randomised and the computer in Leeds decides whether you are on it or not. He had his stem cell transplant 2 years ago and has been in remission since. He was then randomised again and is now on maintenance treatment which he is coping well with although I…[Read more]

]]> feb073e5646035e2ebfe27acd1cc26c2 Ang287 posted an update: Manchester 10k Getting ready for the Morrisons Mancheser 10K […] https://forum.myeloma.org.uk/activity/p/38847/ Sun, 03 May 2015 19:55:30 +0100 Manchester 10k
Getting ready for the Morrisons Mancheser 10K run next Sunday and all money raised will go to Myeloma UK. Our just giving page is http://www.justgiving.com/AngelaandAlexSmithies1 if anyone would like to sponsor us.

]]> 0 c93be67ae431d7f3a5758185d6dd568f Ang287 changed their profile picture https://forum.myeloma.org.uk/activity/p/38846/ Sun, 03 May 2015 19:53:15 +0100 0 590c4cf022ede7c690df14905ae4f91d AngelaSmithies replied to the topic Myeloma X1 maintenance in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-x1-maintenance-2/#post-121894 Thu, 23 Apr 2015 12:56:09 +0100 Hi
My husband is on the Myeloma XI maintenance treatment. After 100 days post transplant he was transferred back to our local hospital and then it was a few months before he was randomised and it was decided he would take maintenance. He realizes he can say no but wanted to go with what was decided for him by the trial and he said he can always…[Read more]

]]> 4dc85004c08b852ee2d907bdac8d4e67 AngelaSmithies replied to the topic Constant new infections but told pp level dropping? in the forum General http://www.myeloma.org.uk/forums/topic/constant-new-infections-but-told-pp-level-dropping/#post-121775 Tue, 14 Apr 2015 12:14:21 +0100 My husband is also in remission and has been for just over a year. He had one infection after another from about October until January or February and was on antibiotics all the time but he has now been ok for a couple of months so I hope your husband gets a break from this soon. In my husband’s case it may be because his neutrophils are low…[Read more]

]]> c507dd598da09ca35ae2db3fade4e751 AngelaSmithies replied to the topic Memory Lose in the forum General http://www.myeloma.org.uk/forums/topic/memory-lose/#post-121533 Thu, 02 Apr 2015 13:09:54 +0100 Thanks Richard for your advice and you had a teaching job like Graham didn’t you Carol. Definitely best out of it with all the stress. Graham has taken up painting and did singing lessons for a while. He is now learning some new computer languages and says he thinks his memory has improved a bit lately but he agrees that you have to keep your…[Read more]

]]> b0b87a800b91f7e0d18490951f20450a AngelaSmithies replied to the topic Myeloma X1 maintenance in the forum Side-effects http://www.myeloma.org.uk/forums/topic/myeloma-x1-maintenance/#post-121532 Thu, 02 Apr 2015 12:51:24 +0100 Hi Susie
Graham is on Revlamid (Lenalidomide) 10 mg on days 1-21 out of 28. He also takes Vorinostat 100 mg on days 1-7 and days 15-21 of 28. He was transferred back to our local hospital 100 days after SCT and it was in October 2014 that he was randomised and then started his maintenance treatment. Until then we just assumed he had been…[Read more]

]]> 9d3a150c48bec15b4954ac31eace6561 AngelaSmithies replied to the topic Myeloma X1 maintenance in the forum Side-effects http://www.myeloma.org.uk/forums/topic/myeloma-x1-maintenance/#post-121519 Wed, 01 Apr 2015 12:52:26 +0100 Hi
My husband is on the Myeloma XI trial and after SCT a year ago is soon to start his 7th month of maintenance treatment. His maintenance is Revlamid and another drug which I have forgotten the name of. He has one week per month on no treatment but the other 3 weeks are not so good and generally he doesn’t feel as good as when he was on no…[Read more]

]]> 5f77fa963fa3a77ea27bb7e9dfcc06ca AngelaSmithies replied to the topic Memory Lose in the forum General http://www.myeloma.org.uk/forums/topic/memory-lose/#post-121518 Wed, 01 Apr 2015 12:45:49 +0100 Hi
My husband had auto SCT a year ago and definitely has memory loss since the transplant. He is now 57. He often finds it hard when he is speaking if I interrupt him as he then totally loses the thread of what he is talking about so I have to be so careful when listening to what he is saying. Not sure if this is chemo brain? He is definitely…[Read more]

]]> 373ca76b7b032492617ecdea4023d0a9 AngelaSmithies replied to the topic Side effects of revlimid in the forum Side-effects http://www.myeloma.org.uk/forums/topic/side-effects-of-revlimid/#post-121260 Thu, 12 Mar 2015 12:49:16 +0000 Hi – are you taking Revlimid as part of initial treatment or as maintenance. My husband is taking Revlimid as maintenance along with something else which I can’t remember. He is also on the Myeloma XI trial and was chosen for maintenance while in remission – would have preferred to have been drug free for a while.
Angela

]]> f0ad3aa2e19a651bab1f20b0ca35b18a AngelaSmithies replied to the topic To work or not to work? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/to-work-or-not-to-work/#post-120863 Mon, 16 Feb 2015 13:27:32 +0000 Hi
It’s nearly two years since my husband’s diagnosis now. It was during the first few months thatn I now wish I had had a bit of time off work but we were going through a reconfiguration and I didn’t want to take time off as I wanted to keep my job. It was 4 months of severe back pain before he was diagnosed with fractures of spine and then MM.…[Read more]

]]> 20aa1129c82170c29895b3cbb14d5bf6 AngelaSmithies replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/page/2/#post-120677 Sun, 08 Feb 2015 08:49:08 +0000 Hi everyone. This time last year my husband had had his Melphalan (heavy dose of chemo on Thursday last week and then the stem cells returned on the Friday. As we live near the hospital he was told he could come home until he started feeling a bit poorly so he stayed hom until the Tuesday and he was then in hospital for just over 2 weeks. After…[Read more]

]]> 3fa78bb64b746ebc5884d99f62e1ba3a AngelaSmithies replied to the topic MYELOMA XI TRIAL AND MAINTENANCE TREATMENT FOLLOWING STEM CELL TRANSPLANT in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-xi-trial-and-maintenance-treatment-following-stem-cell-transplant/#post-120360 Sun, 18 Jan 2015 10:55:36 +0000 Hi Tony and Robert
Thanks for your responses. I can understand totally not wanting to go on the maintenance treatment and both me and Graham were hoping that’s what was decided for him. As everything had worked so well for him this far he decided to git the maintenance a go and will probably give it another 3 months before making decisions to…[Read more]

]]> 37c1c4d5c135294630f24eb92879fd29 Ang287 changed their profile picture https://forum.myeloma.org.uk/activity/p/37161/ Sun, 18 Jan 2015 10:41:01 +0000 0 8997cb85498aa13d19b9113da1ba1bb1 AngelaSmithies started the topic MYELOMA XI TRIAL AND MAINTENANCE TREATMENT FOLLOWING STEM CELL TRANSPLANT in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-xi-trial-and-maintenance-treatment-following-stem-cell-transplant/ Fri, 16 Jan 2015 14:12:14 +0000 Hi
Is anyone on the Myeloma XI trial? My husband Graham had a stem cell transplant in February 2014 and is now in full remission. He was doing well and building his strength up and doing a lot of walking. He was then randomised in September 2014 and is now on maintenance treatment of Revlimid and Vorinostat (Lenolomide). He has just started…[Read more]

]]> 226ea86e146e998019f78c1c1297b9bf AngelaSmithies replied to the topic Christmas. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/christmas-2/#post-120089 Tue, 23 Dec 2014 12:39:52 +0000 I agree Richard. We will do a toast too. Hope you are keeping well.

]]> 5b679cc26a3f05f3bcd80c0c0894c01c AngelaSmithies replied to the topic Graham's Christmas Video 2013 in the forum Off topic http://www.myeloma.org.uk/forums/topic/grahams-christmas-video-2013/#post-119976 Mon, 15 Dec 2014 22:50:04 +0000 Thanks Simon – same to you. Have a good one. Graham was preparing for stem cell transplant this time last year and we even wondered if he would be in hospital over Christmas but in fact he went in for STC in February. He is still in remission and I hope he is for a long time to come 🙂

]]> cfbfe2d3449ab97571c3973f5fa406e9 AngelaSmithies replied to the topic Advice required - dilemma in the forum General http://www.myeloma.org.uk/forums/topic/advice-required-dilemma/#post-119975 Mon, 15 Dec 2014 22:46:09 +0000 I looked at your posting to see what your dilemma was with regard to multiple myeloma. However, I was totally surprised by your posting. You are definitely on the wrong forum to discuss the problems that you have. This forum is for people and their families who have multiple myeloma and I suggest you raise your question elsewhere.

]]> 9d7b9d2cdac868b2f9327a526246940d AngelaSmithies replied to the topic Graham's Christmas Video 2013 in the forum Off topic http://www.myeloma.org.uk/forums/topic/grahams-christmas-video-2013/#post-119539 Tue, 18 Nov 2014 12:57:22 +0000 Glad you enjoyed it Jean. The drummer is my mother (aged 77). She sang the best too. I think she missed her way!

]]> 231184b0e438ae345e981fd07b709dff AngelaSmithies started the topic Graham's Christmas Video 2013 in the forum Off topic http://www.myeloma.org.uk/forums/topic/grahams-christmas-video-2013/ Mon, 17 Nov 2014 13:12:33 +0000 This is a video of our family (including our 2 daughters and my mother). We had this done after my husband had completed 6 months of chemo and 2 months prior to his stem cell transplant in February. Our youngest daughter organised it for us as a treat for us. Not watched it for a year

Angela and…[Read more]

]]> 52540e51bbf24600cc0e7f369263e788 AngelaSmithies replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/#post-119202 Fri, 31 Oct 2014 14:36:50 +0000 Hi
My husband aged 56 had his stem cell transplant in February this year. When he came home from hospital he spent the first week upstairs so he was near the bathroom and didn’t have to manage the stairs at first. I was at home all of that first week. For the next 2 weeks I worked half days so I was still there to prepare meals for him and make…[Read more]

]]> e7a3aeb6147b6519ab5219571368589e AngelaSmithies replied to the topic Help needed! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/help-needed/#post-117334 Wed, 30 Jul 2014 18:53:26 +0100 Hi Sarah, good luck with your fundraising and I hope your Dad goes into remission after his treatment. My husband who is 57 now was diagnosed May 2013 after fractures of his spine were seen on an MRI scan after 4 months of intense back pain. There was never any question on whether he would go for the trial or not and he asked for it and…[Read more]

]]> 45d1bc693873c0a75e5d173522532aba AngelaSmithies replied to the topic Baby Injections. in the forum Off topic http://www.myeloma.org.uk/forums/topic/baby-injections/#post-117066 Fri, 25 Jul 2014 12:50:10 +0100 Hi Tony
Can you remember when you started the baby injections. My husband had his SCT in February 2014 and hasn’t had an injections yet. We go abroad in September and just wondered if he needs some before then. His GP have had no letter asking them to start them and I have chased up the hospital to ask them for a protocol of what he needs and…[Read more]

]]> 10bf69dcc49924590c73f4e00d05a0ad AngelaSmithies replied to the topic went to consultant yesterday in the forum Newcomers http://www.myeloma.org.uk/forums/topic/went-to-consultant-yesterday/#post-116587 Sat, 12 Jul 2014 15:44:38 +0100 Hi Robbo
My husband was diagnosed at 55 with Stage 3 myeloma and fractures in his spine. His pain was terrible and initially he could easily collapse to the floor with the pain. He had to sleep for 6 months in a recliner chair as he could not lie flat. For 3 months he had to undergo very painful physiotherapy prior to his diagnosis but…[Read more]

]]> b66ae2fbac0716efbc9be84ae6209b36 AngelaSmithies replied to the topic Myeloma Matters in the forum Carers http://www.myeloma.org.uk/forums/topic/myeloma-matters/#post-116586 Sat, 12 Jul 2014 15:21:56 +0100 Brilliant article Sarah. You are both similar ages to us. My husband had his STC in February and now in complete remission. His job was restructured 9 days after his STC so he took redundancy. I wondered if he goes for a new job if he needs to divulge his medical condition. I have carried on working full time and I think this helps me and I…[Read more]

]]> f7d2939242b5951fd412542954ccfbf5 AngelaSmithies replied to the topic BUPA Manchester 10K run - sponsors needed in the forum Off topic http://www.myeloma.org.uk/forums/topic/bupa-manchester-10k-run-sponsors-needed/#post-115296 Sat, 24 May 2014 19:36:15 +0100 We did the run in awful hot weather. We have so far raised nearly £300. If anyone wants to sponsor us after the event I think the just giving page will be open for a few more weeks. Graham was told yesterday that he is in full remission so hoping this lasts a long time.

Richard – sorry to see your STC was not as successful but hope you are…[Read more]

]]> e52afb2c9a691eac2c8fb953ca02e03e AngelaSmithies started the topic Graham is in full remission in the forum Treatment http://www.myeloma.org.uk/forums/topic/graham-is-in-full-remission/ Sat, 24 May 2014 19:27:07 +0100 I am very pleased to be able to say that after being diagnosed with stage 3 multiple myeloma in May 2013 and stem cell transplant February 2014 we were told yesterday, following his bone marrow biopsy 6th May, that Graham is in stringent full remission. He will therefore now be referred back to Oldham for continuing care and not sure whether he…[Read more]

]]> 93594009093144cee2daae7a39c1370f AngelaSmithies replied to the topic BUPA Manchester 10K run - sponsors needed in the forum Off topic http://www.myeloma.org.uk/forums/topic/bupa-manchester-10k-run-sponsors-needed/#post-114852 Sun, 04 May 2014 12:51:08 +0100 Hi Richard
The only results we were originally interested in were the neutrophils coming above 1 so that he could go out again. When we were last at the clinic we asked about paraproteins etc but were told that the tests were inconclusive yet so have not officially been told that his bloods are clear of the paraproteins. We won’t get result of…[Read more]

]]> c7eceae9d253be561475867c1b38ab9a AngelaSmithies replied to the topic BUPA Manchester 10K run - sponsors needed in the forum Off topic http://www.myeloma.org.uk/forums/topic/bupa-manchester-10k-run-sponsors-needed/#post-114845 Sun, 04 May 2014 09:19:05 +0100 Thanks Megan – I will need the good luck and I am very optimistic that the bone marrow news will be good.

]]> 60bc25126064850f26ec5c0b3ed2bd73 AngelaSmithies started the topic BUPA Manchester 10K run - sponsors needed in the forum Off topic http://www.myeloma.org.uk/forums/topic/bupa-manchester-10k-run-sponsors-needed/ Sun, 04 May 2014 08:47:25 +0100 Hi Everyone
It’s now a year since my husband was diagnosed with multiple myeloma. He had his stem cell transplant in February and goest back to hospital on Tuesday for a bone marrow biopsy to see if this has worked and he is in remission – keep your fingers crossed. He is doing well and gaining weight.
The last year has been so hard for all of…[Read more]

]]> 350f1601f79ab760836f22331eeaaa73 AngelaSmithies replied to the topic Ready for Transplant! in the forum Under 50s http://www.myeloma.org.uk/forums/topic/ready-for-transplant/#post-113693 Sat, 15 Mar 2014 09:51:51 +0000 Hi Scott, How have you gone on since last week? Graham went back yesterday and like you his neutrophils have dropped to 0.8 He had an injection like you did yesterday and has to return next Wednesday afternoon. He is also a bit anaemic so this is what is causing his dizziness now and again. It is now 5 weeks since transplant and he is still…[Read more]

]]> 6427dcc4ef0629264417a56e834be969 AngelaSmithies replied to the topic New to forum in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-forum-2/#post-113586 Sat, 08 Mar 2014 18:05:26 +0000 Hi Jane
It’s so good to read a story like yours. I read it out to my husband Graham who had his 1st STC a month ago aged 56. After I read your story he said what are you smiling about. He won’t go on the forum but I read out all the positive things I see on it to him. Like you our daughter is getting married this year so he needs to get himself…[Read more]

]]> 0e4bd8779528b2f953e4b6caf027a47a AngelaSmithies replied to the topic Ready for Transplant! in the forum Under 50s http://www.myeloma.org.uk/forums/topic/ready-for-transplant/#post-113584 Sat, 08 Mar 2014 17:45:35 +0000 Hi Scott, Hope you are continuing to improve since your last post. Graham has now been home for 2 weeks but very slow improvement. He is so breathless whenever he tries to do anything and has started feeling nauseous recently although manages to eat well (about half the portions he used to have). He didn’t want to go to MRI yesterday morning as…[Read more]

]]> e3955f8e7eb8d333d2a2c0073c581386 AngelaSmithies replied to the topic Buddy's wanted - Stem cell harvest - Dec 2013 in the forum Treatment http://www.myeloma.org.uk/forums/topic/buddys-wanted-stem-cell-harvest-dec-2013/page/5/#post-113578 Sat, 08 Mar 2014 11:04:25 +0000 Hi Richard and Carol
it was a month last Thursday since the stem cells went back and according to doctor yesterday at check-up everything going ok but Graham was very nauseous yesterday and I tried to cancel appointment but they said it best to go so we did. He is still very tired and breathless. He is on anti-virals but there is one he can now…[Read more]

]]> f384646fcf416f167169707e465941b6 AngelaSmithies replied to the topic Happiness- 42 days post SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/happiness-42-days-post-sct/#post-113577 Sat, 08 Mar 2014 10:56:50 +0000 Hi Carol, great news about your bloods – the time has flown and glad to hear your happy news. It’s now a month since Graham’s STC and he has now been home 2 weeks today. It’s not getting much easier but I know it takes time. Let’s hope we get the same news as you in another month. I think he is finally fighting off the flu bug he came home…[Read more]

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