[Ang287Participant]

Hi
I am now having problems entering the treatment discussion forum although I can now see the right hand side of the page completely again. I wanted to wish someone good luck for his SCT tomorrow but when I go into the “treatment” discussion forum it logs me out. I then log in, go to discussion forum and it logs me out again. However, I could post something on the “under 50’s” discussion forum with no problems at all. Have you any idea why I cannot enter a discussion forum on treatment on a forum I have been on regularly recently?
Thanks, Angela

[Ang287Participant]

Hi Richard
I am just writing to wish you the very best of luck for your stem cell transplant. I know you go into hospital tomorrow and although I tried to go on to your latest thread of stem cell buddies every time I try to post something it logs me out so I had to send you a message on the newcomers site from ages ago which keeps me logged in.

Hope everything you had to do this week in the lead up to going in has gone well and that it all goes very smoothly and that you are home soon and on the way to a good recovery and a very long remission.
Best wishes, Angela

[Ang287Participant]

Hi everyone, Graham now has his date for going in which is Monday 27th January after going to hospital on 24th to have his line put in. It seems a long time off but I know it will come quickly. Graham’s date is therefore nearer to your’s Carol and by then Richard may well be leaving hospital and ready to go home. Graham has been having quite a lot of hip pain recently but it had subsided again yesterday so he went for a little walk but in pain again today and also started having leg pains when in bed at night which only started on New Year’s Day and are disturbing his sleep. I may ring the hospital tomorrow for some advice on what he can take to help the leg pains.
He is back at work tomorrow so just three weeks left until he goes in for the SCT.
I have found a support group locally and I am going to ask Graham if he wants to go to a monthly meeting where he can meet other people with myeloma and hopefully see a lot of people who are in long term remission but not sure if he will be up for this yet.
Best wishes to everyone and good luck for next Friday Richard.
Angela

[Ang287Participant]

Hi Richard, It’s a pity you don’t live nearer. We could put you in quarantine together and do shifts between us to look after you both. 🙂 I am sure we will all have a better year – it surely can’t be any worse!

[Ang287Participant]

Hi Richard
Hope you have a lovely Christmas day with your family. Grhaham now has a date for consent for transplant which is 14th January so you will already be in having yours done by then. We will presumably get a date for his when we attend on 14th. We had a lovely Christmas day at our daughter’s house yesterday and we are partying tonight at a friend’s. Make the most of your time now before the transplant.
Best wishes, Angela and Graham

[Ang287Participant]

Hi
My problem is that I can never read the end of each line – part of the right hand side of any postings is not available for me to read so I only ever read 3/4 of the line and am missing parts. Do I have to alter any of my settings. I have also tried the new website at work but can no longer access the site there as I used to be able to in my lunch break as when I do it is very slow and then hangs and I give up.

[Ang287Participant]

Hi Everyone
Today Graham had his echocardiogram, his pulmonary function tests and his monthly Zometa infusion. Just waiting for date to go in now but going to enjoy Christmas first. Although he had a lot of pain in his hips and back on Saturday and Sunday this eased off and he is back to working half days this week.
Angela

[Ang287Participant]

Hi Tom
Sorry to hear that your MM has returned. I have enjoyed reading your posts as you are so positive which is what is needed to beat this and I am sure you will continue to do so whatever treatment is decided upon. Graham has just finished stem cell collection and awaiting a date for first SCT and I hope he also gets at least 4 years before it returns. Hope you do as well on your next course of treatment and I wish you good luck.
Best wishes, Angela

[Ang287Participant]

Hi Richard and everyone
My husband Graham finished his stem cell collection yesterday and told me he has had pain in his hips for the last couple of days. As well as MM he also has Gout. Today he has woken up and the pain is still there in his hips so he is back taking 6 Tramadol a day. Has anyone else experienced this? Also, I wonder what happens to all the millions of stem cells that have been made in the past week as only a small proportion of them get collected?
Angela

[Ang287Participant]

Hi Richard
Harvesting now completed. It started on Wednesday and ended today. I know sometimes it can take 3 this long and Graham was quite happy with this as obviously he wants to make sure they have enough for 2 transplants. Like you say there is no pain so everyone can be reassured that if my hospital phobic husband can go through this and have it 3 days running and visit the hospital every day this week then there is not much to it. Now and again he had difficulty trying to scratch his face and that’s about the only problem he had and not much of a price to pay for the ability to be able to prolong his life. He is now on a bit of a high and we are out celebrating tomorrow night with friends. Also his immunity is really good again which is brilliant news. His transplant will take place in 4-6 weeks and he is having breathing tests soon.
Have a good weekend
Angela

[Ang287Participant]

Hi Richard
Glad this part is now over for you. Graham went yesterday but there were only 2 million cells per kg. He had to go back at 8.30 this morning for another blood test and this time 8 million so it has quadrupled since yesterday. He now has got go back at 8.30 in the morning and hopefully the cells will have increased again and he can then have the collection so third time lucky hopefully. Graham was having bad pains in his chest at 6.00 am today and thought he was having a heart attack but luckily he was at the hospital not long after and they reassured him this is normal. I will update you again tomorrow.
Best wishes
Angela

[Ang287Participant]

Hi Richard
So you both have a big day tomorrow as Graham will also find out if enough stem cells made and if so he wil go back the following day (although they said sometimes it is possible on a Monday to remove them – they will see on the day). Let’s hope you both have made enough.
Graham started with pain after tea last night and still has it now in his lower back and in his stomach area and he wondered if it is a kidney infection. I have reassured him from what I have read on this site that this is normal and this is good and I suggested getting on all fours and that also helped thanks to Rebecca. He is now in bed resting and timing when he can have his next cup of tea due to not being able to have milk at certain times due to the tablets. It’s so strange seeing him looking forward to a cup of tea rather than a glass of wine.
Good luck for tomorrow
Angela

[Ang287Participant]

Hi Dick
Graham had Cyclophosphamide on Monday 2nd December and started the injections Tuesday 3rd. We watched a video of someone in Ameerica having his first inections just to make sure he did it right. He is doing fine. He has felt nauseous a couple of times but that’s it and not sure if he is having the pain expected. In the middle of the night he said he had some pain and I said good – no pain no gain! However, I expected him to be in a lot of pain and that’s when you can tell it’s working. He goes Monday to find out if enough stem cells have been made and then back on Tuesday to have them collected if enough. Hope you both are successful next week. Good luck also to Carol and Rebecca and anyone else going through this this month. It’s so wierd at the moment as if Graham tells me he is in pain this week I think good which is totally the opposite of the last 11 months. Graham shaved his heair to a number 1 today so is nearly bald now ready for when his hair drops out. We went out with some friends last night but you just have to be careful now where you go and avoid crowds where you might pick up infections as your resistance is now so low. I think that is harder at this time of year.
Best wishes
Angela

[Ang287Participant]

Hi Jo
I’m listening – Tom is an inspiration! Graham you are doing brilliantly and I hope my husband Graham goes through this like you have. Unfortunately he still does not want to listen to anything on this forum even if it’s really positive as he says everyone is different. Graham having injections this week and stem cells removed hopefully next Tuesday. After STC I hope he will be in remission for a very long time like Tom.
Angela

[Ang287Participant]

Hi Megan
It's great to see that your husband Phil is now in remission. It sounds like he had a lot going on prior to the transplant but he got diagnosed 3 months quicker than my husband did which is good.
I will make the best of whatever situation we are placed in and if he is in over Christmas that is great, and if it's after Christmas then it will give him time to have more of a break before the transplant but I don't like the idea of him worrying about it all over Christmas. What will be will be and he has done very well so far.
He has opted for some counselling prior to the stem cell transplant to give him more coping mechanisms as he has always had a phobia about anything medical. Over the last six months he has got used to our local hospital and lost his fear but it is like starting all over again now as we have been transferred to another hospital for the transplant.
Best wishes to you both.
Angela

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