Glad to see there is now some info from this end, thank you Ellen 🙂
UAMS state that Morgan holds more than $10 million of research grant funding from various governmental and private philanthropic sources.
That is certainly a good amount of fuel & will undoubtedly enable him to put his worthy expertise toward the benefit of others.

Hi Karen
Three days into cycle 5 now & pleased to say theyve been amongst the best since treatment begun 🙂

I am however, still struggling with fluid retention so am very short of breath & cannot walk far at all. I was prescribed furosemide for this but had a very bad reaction after just one tablet. I discovered the next day that furosemide…[Read more]

What an absolutely uplifting & inspiring thread !!!

I do hope that other newcomers like myself, whatever their age, manage to locate it & find it as rewarding as I have.

Enormous thanks to everyone who has contributed and of course my very best wishes go out to you all.

Ange

Hi Vicki
The steroids more often than not do provide a response & immediate relief of pain & inflamation whatever the cause, so until there is a much firmer diagnosis, please try to not worry too much. From what Colin has endured there could be a number of contributory factors to the inflamation & discomfort and I hope all turns out well. I'm…[Read more]

In response to your earlier comment Chris, yes, yes, yes, your ramblings have been of enormous help to me, this has to be amongst one of the best threads that I have followed, so a BIG thank you & of course everyone else who has contributed too. I am so pleased that things have turned a corner & I look forward to more threads 🙂
Ange

When I had a brain hemorrhage back in 2005, I learnt that in addition to being a good provider of potassium, bananas are a great brain food too, and that certainly helped me to cope when my life was on the line back then too, so its bananas all the way for me again now. Fantastic news on your bloods Andy, especially the neuts & PP's, really…[Read more]

Hi Stewart
I was diagnosed age 56 at the begining of August this year & like you opted for the Xl trial & was randomised for CDT. Just started cycle 5 & m protein now down from 43 to 11, so its good to see you progressing so well too 🙂 It is very hard on wives, husbands, partners & families, but there is endless support from really nice people…[Read more]

Hi Mike
I was diagnosed stage 3 in August this year after several years of back pain & then repeated chest infections throught 2011 resulting in pnuemonia in December. Things gradually got worse from then on, rib pain begun during May/June and although the August diagnosis was one that I would have much preferred not to have had, it was a huge…[Read more]

I am in full agreement that a positive attitude & outlook is important & extremely beneficial and this is something that comes with time following a diagnosis.

However, with regard to feeling down and utterly depressed, which can be as a result of many factors for each individual, I disagree entirely that it is a matter of "choice". While it is…[Read more]

Hi Karen

Thalidomide (as with dex withdrawel) can cause tremors & as your dose has been increased (normal procedure under the CDT arm of the Xl trial), I suspect it could be the culprit, or at least a contributor & I would definitely mention this to your consultant, who may then decide to revert your dose back to 2 capsules.

Bamboozled,…[Read more]

Hi Karen

Another newcomer here, I am 56 & having had symptoms for the last couple of years, I too was eventually diagnosed in August & my initial treatment is also under the CDT arm of the Myeloma Xl trial.
LgG Lamba MM was confirmed when various tests revealed anemia, renal failure, bone lesions to upper legs, hips, ribs (1 fractured) &…[Read more]

Edited as posted in the wrong place :-/