Hi Alison, Vicki, Andy, Eve & Tom,
Thank you for such a warm welcome!
I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!
I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.
All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.
I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.
Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!
Thank you all for your advice & warm wishes!
I feel like i have gained a new family!
Love to you all
Antoinette xxxx
Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx
Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx
Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx
Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx
Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number!
Hi Alison, Vicki, Andy, Eve & Tom,
Thank you for such a warm welcome!
I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!
I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.
All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.
I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.
Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!
Thank you all for your advice & warm wishes!
I feel like i have gained a new family!
Love to you all
Antoinette xxxx
Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx
Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx
Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx
Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx
Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number!
Hi Alison, Vicki, Andy, Eve & Tom,
Thank you for such a warm welcome!
I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!
I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.
All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.
I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.
Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!
Thank you all for your advice & warm wishes!
I feel like i have gained a new family!
Love to you all
Antoinette xxxx
Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx
Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx
Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx
Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx
Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number!
Hi Alison, Vicki, Andy, Eve & Tom,
Thank you for such a warm welcome!
I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!
I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.
All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.
I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.
Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!
Thank you all for your advice & warm wishes!
I feel like i have gained a new family!
Love to you all
Antoinette xxxx
Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx
Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx
Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx
Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx
Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number!
Hi Alison, Vicki, Andy, Eve & Tom,
Thank you for such a warm welcome!
I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!
I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.
All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.
I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.
Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!
Thank you all for your advice & warm wishes!
I feel like i have gained a new family!
Love to you all
Antoinette xxxx
Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx
Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx
Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx
Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx
Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number!
Hi Alison, Vicki, Andy, Eve & Tom,
Thank you for such a warm welcome! 🙂
I have have been a nervous wreck and can't see to stop crying! When I look at my kids i cant help feeling angry as to why this is happening now??! On top of it all my mum is in the second stages of heart failure – she's only 53!
I also have been diagnosed with meniere's disease – although not officially as i am waiting for an appointment to have a water test done to my ear. Im taking bethahistine for it at the moment to help with the dizziness. I cant drive at the moment adding to my frustrations.
All of my problems started when i was 6 months pregnant with my son and i suffered with Vertigo and had it for 7 weeks! Then when my son was 4 months old i started to feel very tired felt like i wasn't coping with two small children. So i went to my GP and she did full blood counts. My blood test came back and i was referred to haematology. Long story short, I had a bone marrow biopsy it came back with MGUS. Not knowing much about It my consultant at the time said that this was very good news but they wanted to keep an eye.
I kept having more blood tests every 3 months then my paraprotien went up just slightly over the MGUS level. I had another Bone marrow biopsy and was diagnosed with smouldering myeloma…. I was then referred to Barts and had more tests as my consultant there wasn't convinced that this was the case as all other functions were ok. After more months of testing – Blood tests, MRI and PET scans I was diagnosed on Monday. I have also been told that the Anaemia due to the MM could be causing the dizziness / meniere's to be worse.
Im trying to put it to the back of my mind but is difficult as im not feeling well with the dizziness and feeling lightheaded, tired ALL THE TIME, I feel like im in another aurora! Has anyone else suffered with vertigo or any dizziness before starting treatment?
Its hard trying to get on with my day to day, school run, house chores etc… My husband works full time 6 – 7 days a week and is self-employed – we're struggling as it is with me being unwell and unable to work!
Thank you all for your advice & warm wishes!
I feel like i have gained a new family! 😀
Love to you all
Antoinette xxxx
Alison
I will give Ellen a call. Im glad your mum feels better and good luck with the SCT. Will keep in touch xx
Vicki
I think your right… I do tend to think way to far ahead…. and WORRY! I just wish my dizzy spells would go away and the tiredness then at least i could try and forget about it. Im happy for you that your husband is doing well. I don't think its sunk in for mine. I mention it he brushes it off…. I don't think he is coping well either xx
Andy
Im like you! my consultant said that im known as the mystery lady when the doctors have their meeting.
My Paraprotiens were 19 in Nov and are 26 now but all my other bits like calcium, kidneys, no holes in my bones or lesions etc are ok. Do you know if paraprotiens could naturally reduce? xx
Eve
Thank you for reassuring me that SCT is not as bad. Do they sedate you for the procedure? I was sedated for my second bone marrow biopsy as i had a rough time with the first one. :-/ I read about it and saw the diagram on the info page. I have to say i nearly fell off my chair when I looked at the diagram. I couldn't sleep last night as every time I closed my eyes it was there! I know, who would have thought that I have two kids! my mum never thought that i would LOL! xx
Tom
Im glad that you are doing well after your treatment. And im even more pleased that your SCT was pain free!
I still remember my Bone marrow biopsies – give me child birth any day without any pain relief! Thats how bad it was for me. Keep in touch xx
Ps – age is nothing but a number! 😉
