Hi everyone,
Eva, he was 58 when diagnosed. He developed Neutropenic sepis 2 months into his treatment but responded well to the antibiotics. Hopefully, as you say, this is good indication on how well he can be treated for infection.
Thanks very much for all your comments. They have been really helpful and given us a lot to think and ask about. I have passed them on to my family who have found your courage and compassion very inspiring.
We are going to contact a specialist nurse so that she can further give an understanding of the procedures unique to the hospital.
My Dad is starting to look positively towards the future, thanks to your feedback, and especially your blog Gill. I realise we have a long road to go yet, but at least now we have an idea of what we are facing. Going to start training my Dad on using the internet (he is a technophobe!!!) – might even see him on here writing his own blog!!!
Like your husband Gill, he has damage to his spine which was what indicated MM initially. He has always been very active and had a very heavy lifting job. He is no longer able to work, but still goes out walking which really lifts his spirits. We were initially very protective and would have wrapped him in cotton wool if we could have, but found that the more active he is (and the less nagging from us!!), the happier he is. We realise he has gotten to know his limits. I think what we struggled with yesterday was that he has been quite upbeat and positive throughout and, selfishly, it scares us if he gets upset or down. Goes back to us thinking Dad is always the protector!!!! We aren't the ones going through it so we can't expect him not to be scared or apprehensive but if we can give him information from here which will go some way to alleviate any fears he has, that's a big positive.
Again, am really grateful for you comments. Have introduced my Mum and 2 sisters to the site and they have gotten a lot from it also.
Will keep you posted with progress.
Arlene xxx
