Thank you Ann Tom Alison Scott and Helen
for your replys it sounds quite easy so hopefully I will get on with it
I go to clinic every month so they will not need to blood check me it will done on each clinic visit

Love Jo x

Hi Keith
sorry you are feeling so unwell, When I was first diagnosed i was already a type 11 diabetic but very well controlled only two small tablets a day as soon as dex kicked in it was insulin for me as it shot the sugars though the roof coming of of dex and a sugar high feels like the worst thing going but the insulin did help control it a…[Read more]

hi Ann
thanks for the reply they gave me a demo and it all looked straight forward it seems it can only be delivered to the house i dont know if it is expensive or not i hope it works better for me than keep having transfusions
love jo

Good luck Tom

we know you are a star any way even if you dont get on it
Big hugs Jo x

Hello Elfriede
I have travelled a bit since being diagnosed in Jan 2009 I do not have bone damage but my kidneys are only about 15% We have been to Jersey Ibiza
grand Caneria and Skiathos I always get doctors permission to travel and full health insurance from MIA travel and take some anti B's with me I am always careful while on holiday we have…[Read more]

Hello Dia

sorry you are still not feeling to well when i had the bad stomach bug last year it turned out to be compilabacter my consultant got me to take a stool sample to the lab so they identify which bug it was as some bugs only respond to certain anti b's this may be the case with you
Hope you feel better soon
Love Jo x

Hello Eve

good news that slim is now feeling much better i am sure the news will be good and at last you can both get away what a relief light at the end of the tunnel at last:-) Regards to Slim
Love Jo x

Hello Michele
and welcome it is marvellous to hear good news i am sure you will be a great help to others

Keep well Jo

hi Scott

glad to see you are ok did you have a good holiday in spain, is the golf going well. I chose to go the vein way if i have to (fingers crossed i can hang on) because they said i could be trained to used the machine at home so I though 4 days off was better for me
Keep well:-)
Love Jo x

Hello Dee

I was admitted to hospital with pnuemonia and renal failure and what turned out to be MM i had cdt from the start and it was touch and go with my kidneys i did not have dialysis it may come in the future but at the moment my kidneys function between 15 and 20% I have been in good partial remmission since april 2009 as long as your…[Read more]

Hello Joe

what a brilliant thing to do i know your dad will be with you every step of the way and though your whole life he will be the angel sitting on your shoulder
Love Jo x

Great news Paul
after all the set backs you are ready to go I wish you the very best of luck for now and the future
Love Jo

Hello Charlie

welcome so sorry you have had to join but you will find such help and support here I would not have got through many times without it I cannot tell you about treatments except CDT many are not open to me as MM caused me to have real failure it has worked quite well for me as a stem cell transplant is not an option for me. I have…[Read more]

Hello Tom
I wish you all the luck in the world I am sure you will make it
love and ((hugs))
Jo x

dear Liz and Kev

what wonderful news a new granddaughter she will bring more light into your lives
Love Jo x

Hello Suea

this is terrible these people didnt no shouldnt be consultants see if your GP can refer you to one of the teaching hospitals Kings or UCH both in London but centres of excellence the one at UCH is jointly run by McMillan
you could also contact them direct very best of luck let hope next time we hear from you it is better news
Love Jo x

Hello Jen

good news about your dad lets hope this is the start of a better time for him give him my regards
Love JO X

Hello Eve

nice to hear from you we are going to the IOW next week with Hazel and Adam
so get the wellies out! The next London info day is in Oct so hope to see you there regards to Slim:-)
Love Jo x