Hi Wendy

good luck for the 10k I am sure you will complete it running or walking it will be an achievement
Love Jo x

Hello Helen
sounds wonderful I hope you holiday is marvellous you deserve a really good time
Love Jo x

Hi Scott

I agree it was a great match kept us on the edge of our seatrs until the last kick I think they should give drogba a new contract he came into football quite late so he should be good for another season didnt see the west ham match as we havnt got sky but I am glad they are up Sam allerdyce is a good manager and he has proved…[Read more]

Hello Antionette

Its ok to cry your life has been turned upside down Why me! I am still asking that I still cry sometimes, mostly at night that seems to be the darkest times
you are still young and there are now so many new treatment being discoved my consultant is hopeful that in the not to distant future MM will become a chronic illness that…[Read more]

Hi Eve

nice to hear from you is slim ok I have planned a week in the IOW with our daughter and grandson we are going in july
Love Jo x

Hi Andy
fingers crossed this is only a blip they do happen sometimes then things settle down
Love Jo x

Hello Jean

sorry Franks results were not good this time but I think deep down you might have been expecting it with all the rib pain he has been having
CDT will probably stop you going abroad but you could probably get short breaks here but he will have to be careful of infections as for gin and tonics I had them all the time only one a day…[Read more]

Dia
fight your corner I know you will not give up I have every faith in you
I agree they dont give up at the first hurdle in america they try and get over what they call blips I think in this country to many doctors are tinkering around the edge where in america they are much more focused on myeloma and specialise much more
Big hug Jo xxxx:-)

Thankyou all for the kind thoughts

Yes TOM the heating is on I am used to the injections as i had to go on insulin for my diabeties as i could no longer take the tablets and thats twice a day
David I have got some geraniums in the green house but still not sure wether to plant them out or not we had a light frost yesterday
Jean I will keep…[Read more]

hi Andy
that sounds like good news you can put up the the terrible BM if it proves your treatment is working keep us posted
Love Jo xx

Well Dia

you never semm to do things by halfs all or nothing a!!! glad you now seem to be on the mend and with the care of nurse Janet will pull though ok its a shame really as you seemed to be doing ever so well upto now
Love and a big (((hug)) Jo x

Hi Peggy
Ouch ouch ouch I hate having the bone marrows had four so far and hate it every time I also have renal failure they say I will have to start on EPO not had it yet but my ferritin is very high now so its not good to keep giving me blood my blood pressure seems to go up and down I call it white coat sindrome keep well
Love Jo x

hello Sarah
so glad to hear Henry is feeling much better its good to know you are able to get out
Regards Jo x

Oh Bridget
so glad to hear from you, you had me so worried it sounds like you are on the mend a bit now so keep it up
Love and a big big ((((hug)))):-) 😀 🙂 😛
fROM jO XXXXX

Hi Andy

sorry you have been unwell glad you are back now good luck with the rev /dex Keep well:-D
Regards Jo

hi welcome to the forum not something you would want to do but welcome have you started chemo yet or are they just monitoring you. You will get so much help and support here and a solution to a lot of your questions dont forget Myeloma uk help line they are so good and will give you good advice
Keep well:-)
Regards Jo x

Hi Tina
hope your journy is a good one I struggled mostly with the dex and had mood swings and found I could not sleep very well I took dEX with yogurt which made it easier to swallow I managed to take 100mgs of thalidamide for a year after CDT until my feet got red hot so I had to stop good luck
And keep well:-)
Regards Jo x

Dear Sally

Welcome to this web site it must have been a big shock when you relapsed
I think its something we are all waiting for it feels like the sword of damacles hanging over me and I know I will be still shocked when it happens
because I think we just hope it will stay away I have not been on Velcade but I expect that will be my next…[Read more]

Hi Trisha

try MIA insurance I have used them a couple of times my insurance is a bit higher than Helen as I also have Chronic renal failure due to MM Mia seem to insure you if you have the Doc's permission to travel their number is
01268 783383 you could get a couple of quotes
Regards Jo x