Dia
i am so glad you can be positive about the drugs you it might not be so bad to have revlimid treatment I know a lady in my support group who has had revlimid for nearly four years on a low dose now tablets every other day and no steriods at the moment thalidomide and velcade were not any good for her she says that there have not really been…[Read more]

great news Eve

you have had such a struggle so it looks as if there is a bit of blue sky on the horizon I hope the tests prove to be good so that every thing is go for the SCT good luck and kind regards to Slim
Love Jo x

Hello Andy
welcome to this site you will find so much help and encouragement from so many people Myeloma uk is so good and the help line is a god send so many questions that need answers I hope they can sort out your back and give you sme relief from pain GOOD LUCK with your MM journey
Love Jo x

Hello Jean

how is Frank ok did it turn out to be shinglesafter all how are your nerves coping its sunny here today whats it like in Belfast
Love Jo x

Yippee Tom

just the news we need to cheer us up keep going onwards and upwards
Big ((((hug)));-)
Jo x

Hi Jean

when i had shingles they came up as pustles that looked like chicken pox
and boy was it painful I am so sorry to hear about your brother i hope you get some good news soon I am ok at the moment this months bloods were just a check its next months which tell me what stage i am at uptil now i have been in a good partial remission so long…[Read more]

Hello Mavis
its a lovely photo you look really jolly
Love Jo x

OUCH
OUCH OUCH Poor Frank its so painfull I found an old remedy when i had it as the aclovier cream didnt work too well I used cider vineger it took the sting right out smelt a bit like a chip but ity really worked I feel for him How are you Jean good I hope
Love Jo x

Hello Dia

it cheered me uo too
Love and ((hugs))Jo x

Hello Kerry
So sorry to hear about Melvin it must have been such a shock as it is for us all I have been lucky not had bone damage but my kidneys have been badly damaged. This is such a good site for support help and advise and the myeloma help line can be invaluable they are so kind and informed
love to Melvin
Rgards Jo x

Hello Dia

glad you can stay positive although it must be hard. The rev and dex can be a regime its only low dex as i understand it there is a lady in my support group who has been on this regime for over four year and is still in plateau she could not take other meds thalidomide or velcade,fingers crossed for the 5%
Love and (((hugs)):-)
Jo x

Hi Geri

we all try to be brave on the surface but inside I dont always feel it, we have to fight this thing all the way never give in. I have had MM for three yearss went into hospital with pnuemonia and renal failure and as it turned out MM what a shock!! my kidneys are still only 20/25% so I chose not to have a Stem cell as it could of killed…[Read more]

Hi Glenn

great news your tumour has gone what a relief you can now look forward to your SCT good luck with that I hope all goes well with your op Love Jo x 🙂

hi Tina and Geraldine
welcome to this site so sorry you have to join but this is the best place ever for help and support and a shoulder to cry on if you need one
Love Jo x

Hi Dia
glad you are feeling not too bad after your cold I will be thinking of you on monday for a really good result so you can start the new treatment it must be a worring time for you
love Jo x

hello Mal and Bruce

so glad everything has gone well for you its good news you can have the dialysis at home you will soon be rocking down the pub:-) 😀
Love Jo

Hello David

it is something todo with the filtration of the kidneys so I expect they were checking to make sure yours were not being affected
Keep well:-)
love jo

Hi Jet
you must be feeling pretty low at the moment its so hard for you that the transplant didnt work,have you got a brother or sister that could give you a good match. I am ok at the moment thats all any one can say I never had an SCT because my kidneys were so damaged. fingers crossed for a good match for you
Love and (((HUGS)))
jO X

Hello Peggy
We have been away to a B&B twice this year one in Scotland and one in Swanage both times people have asked to keep medication in the fridge if you phone some of these b&b's or hotels they will tell you in advance if it is possible or you could hire a cottage they always have a fridge if you want to go abroad there is a cold pack…[Read more]

Hello dear Tom

I am glad you are well and I hope your transplant goes on for years and years so you will not need the extra bag
Love and ((hugs))
Jo x