Good luck with your group chelle I attend one in Welwyn Garden City Hertfordshire with my husband who is my carer We have found it so helpfull
just to talk to other people in the same situation

Regards Jo

Tom

you are so cheeky you always make me laugh I agree about the Docs mine are the same its always" we can only make 48 hour apps, can I have one no we are full up phone back tomorrow its an emergency whats wrong with you thats my business and so it goes on. The road trip to scotland was good only two days rain which was in the highlands it…[Read more]

Oh Min
nothing much I can say but I am so sorry you both fought so hard for it end like this my thoughts and prayers are with you

Love Jo

hi Ali

Just got back from holiday so sorry for delay in replying I was diagnosed in Jan 2009 with MM and renal failure at one point just 10% just managed to avoid diaysis I had CDT until may 2009 and apart from premidrinate once a month a lower dose of 30mgs to protect my kidneys and sodium bicarbonate tablets for the kidneys no other tratment…[Read more]

Hello Dia

sorry you are not to well lets hope the anti B's soon sort you out you need to be fit and well for your holiday with your family

Love Jo

PS enjoy your hols x

Hi Tom

I missed your post about the kitchen well done you must be very skilled to fit a new one. We are going up the east coast starting in Durham for a couple of nights then on to Edinburgh then to inverness for a couple of nights then down loch Lomond 3 stops on the way down stopping in Carlisle and Tamworth on the way back we have free…[Read more]

Hello Tom

Where have you been I have missed your cheery face have you be taking the young bride on an exotic holiday or what have you been upto 😛 We are going to Scotland on tuesday I bet we need snorkels and flippers by the look of the forcast oh well onwards and upwards as you would say8-)
Keep well
Love Jox

Hello Dia

I too am old enough to remember 2/6 half a crown that was my pocket money;-)

as for getting confused I am always making journeys up and down stairs forgetting what I went up for going out in the car getting to the end of the road and turning back having forgotten some:-P thing again I think its call senior moments
Love Jo

Hi Gill and Stephen

I am so sorry Stephen is still not feeling so well lets hope he is soon up and walking like he did sfter the first SCT
GOOD lUCK
Regards jO

hi min

dont beat yourself up about your caring skills i dont think peter would be hear if it wasnt for you and your care so chin up and look after yourself

Love Jo

i also cried she was so brave and tried so hard an inspiration to us all Rest in Peace Gaye
Love Jo

Congrats Carol great news keep on letting us know how you are getting on
A lady in my support group was one of the first to get revlimid our MP fought to get it for her, she has been on it for nearly four years and now she has a dose of 15mgs every other day and no Dex she is well and her Para are stil 0 so plenty of hope there

Keep well…[Read more]

I do know what you mean I always feel good after a walk and knowing that I can do it I will do it it does give you small sense of I am in charge.
I also am not allowed to run so it just as well I have never liked it anyway always a tortoise never the Hare

Keep well Love Jo

Hi David

I have exercised since I finished CDT it always makes me feel better my husband Geoff and I usually walk about three miles every day it takes us about an hour not rushing then! we swim some times but I am a bit worried about infections from the public pool any way Mc Millian have said just this last week all cancer suffers should do…[Read more]

Hi Min

When I was first diagnosed and in hospital the food was so vile I was losing weight by the day so my husband and daughter smuggled in my preference large Mac D's cheeseburgers I am sure they kept me alive
Hope Peter is home and well soon

Love Jo:-P

hello bridget

swear and cry as much as you would like this b*****stared disease gets you on the edge of madness you where right about the pain you said it was something different this time again.Have you spoken to them about thalidomide you didnt have it first time round look at Peters results it seems to have worked for him when the other…[Read more]

Dia

you always manage to put into words what many of us are thinking and are not able to put into print as well as you do. There will always be dark days but we should be able to put our shoulders back and face the world never give up,we must fight to live not give in and die;-)

Reards Jo

Hi Gina

glad your mum is feeling a bit better I really hope this is the last of it I can understand her wanting to come home as there is no rest in hospital your own bed is always best but convince her if they think she should stay she must

lOVE jo x

Hello Sally

so sorry to hear about your dad and your mum it must be difficult for you to see the people you love suffering in one way or another if mum is mentally ill there is not much can be done for her until it is recognised
as for your dad the main problem with the treatment can be for some people extreme tiredness it seems to take all…[Read more]

hi Eve

At UCH they offer the injections which go just under the skin subcutainsly
(sorry wrong spelling i am a terrible speller) I know two people who are having it that way it has much less side effects and much easier to administer you should look it up I know you are good at doing that

Regards to Slim
Love Jo x