Hello Eve and friends

I agree with all the sentiments that have been written this site has helped, encouraged and cheered me up in large measures its true Dia its just like one big family. Keep well everybody;-)

Love Jo

Oh Tom

you are good putting in a new kitchen you must be very handy we put one in a couple of years ago got rid of loads of stuff now I wish we hadn't I love the sun but have to be a bit careful Geoff and I (my old husband!!):-P go for a walk each day in the evening at the moment we do 3 miles most nights I am doing well at the moment keeping…[Read more]

Hi Sharon

just caught up with your post I had the same symptoms with thalidpmide
so I stayed on a 100mgs which I managed quite well I went into remmission after four months april 2009 but I kept on with the thalidomide for a further year as after the intial treatment I seemed to cope with it until I got pn so had to stop . I shook at lot at…[Read more]

hello Dia

my husband has problems with his feet and legs due to diabeties so we bought one of these machines it has proved invaluable there is also a tens attachment for pain which you also might find beneficial

Love Jo x

Hi Bridget

great news to get your ankles back from that I take it your legs are much better my legs swelled up a lot on DEX that drug has a lot answer for one way or another I do hope you can get a holiday from it you will feel much better for a break, as for the weight as long as you feel well what does it matter

Love and (((hugs))));-)
jO X

Hi Ozzy

I have not had an SCT but I have had leg and hip ache someone told me it could be the Steriods as we do have large doses during chemo this could right
Regrds Jo;-)

Hello Tom

I can just see you and the young bride on the tours of britain are your little legs going 10 to the dozen glad you are well dont fall off!!!!

Love Jo 😛

I to would like to wish them both a safe journey lets hope the road is smooth with no sharp turns on the way
GOOD LUCK JET AND KIETH

lOVE jOXX

Dear Sarah

My thoughts and prayers are with you and Gordon I do hope things will improve for him soon it must seem that tears are never ending chin up

Love Jo x

Hello Eve

I was dissapointed to hear about Slims result do you think they have given you the correct information as it seemed he was doing so well it really cheers you up doesn't it! when some consultants say such callous things what Slim needs is positive things not negative I think you have drawn the short straw in what they call the post…[Read more]

Hello Gill
I really glad Stephen is a bit better and home again it nice when someone looks after you and cooks tempting dinners I hope he enjoys them
As for the Thalidamide my consultant told me of the costs when I started which I thought was a huge cost as it has been around for the last fifty years but I was grateful to have it the funny thing…[Read more]

Hello Ivan

I think some times alternatives are as good for the mind as the body I see no reason why you could not take some cumin along with the regular chemo as long as they dont fight I have also seen that cinnamon is another good spice that might help fight cancer if it helps do it the medical proffesion guess it half the time anyway as you…[Read more]

Hello Jet

i also cannot give you any info about SCT as i havn't had one either but I will be thinking about you with fingers crossed for monday

GOOD LUCK and a big (((((hug))))

Love Jo xx;-) 😉

To moaning Min
absolutly!!!
xx:-S

Dia

10th of august well I really call that an urgent appointment I think its a docters duty to treat ill people even if it makes them a bit late did they join the profession to care or what!:-/ it makes me so angry, my bother in law has had a scan and they have found a suspicious lump in his stomach that was two weeks ago his first appointment…[Read more]

Hi Ivan

Good luck with your CDT it really worked for me the only other thing I would say is its much easir to take the steriods with a yogurt in the morning and you will need a laxative as thalidomide can cause constipation.
Did you know how the discoverd that thalidomide worked for myeloma, they were treating someone who had…[Read more]

Hello Ivan

so sorry you have had to join this group,you will be in shock and it will take a while to come to terms with it I dont think anyone truly does, as for crying I also have a close family we all did a lot of that.
This site is so valuable for help and information and the Myeloma uk help line is brilliant there is always a professional…[Read more]

gina
I can understand your anger this is terrible your mum is entitle to ask for a change of consultant and hospital if this is possible for you I would do it, thinking of you
Regards Jo

Hello Bridget

I am so glad you feel enough to post we have missed you have the new bad back pains gone from your back, swollen legs are terrible when I first had the renal failure my legs were like elephants to say the least my kidney consultant told me to drink at least 3 ltres of fluid not just water and try to walk as much as i could this…[Read more]

Hello min

new kitckens are great we had one a couple of years ago it gave me the chance to have a good clear out in fact I chucked things i could do with now so beware,hows Peter doing is he feeling any stronger

Love Jo x