Hi Gaye
when I went to the myeloma open day in London there was a lecture from a visiting proffesser from America, who spoke about varius treatment and Pomalidomide was one of them he said that the results were very positive sometimes on their own and some times combined with a steriod he seem to think it was going to be one of the next best…[Read more]

Happy new year David and to all the friends in this group may it be a happy and healthy one for you and all your loved ones
Jo:-)

Hello David

We went to Ibiza last sept and insured throught a company called MIA throught the agent J D Travel its a company that specialises in insurance for very ill people even if they dont feel very ill just the related illness that people have.We went throught the terms and conditions and they seemed very fair you must hold an EHIC card…[Read more]

Hello Bridget

So glad you are feeling better never pleasant in hospital your heart must have sunk when they said the velcade didnt work but you need to get rid rid of that tumer first and be rid of pain then on to the next step Revlimid seems successful for most people but I am afraid it will probably be with DEX again but if it works which it…[Read more]

Ros
so sorry to hear micheal has passed away my thoughts are with you

Jo

Hello Gill
so sorry this d.a.m.n thing has reared its ugly head again I have been reading the reports from america and it looks like so many new treatments are being tested so even after a second SCT there will be much hope of new things being used glad about the champagne we must all stay positive or we might go under I have not been able to…[Read more]

Hello Gaye
I am glad your biopsy went well I have only had three and dread the thought of the next one I shall ask for a sedative, my bone the doctor said was difficult to aspirate so they have to dig deeper so its good to hear doctor cared about the pain level. All our snow in Hatfield Herts went at the weekend but it has been so cold with…[Read more]

Hello Kathleen

We can never win can we at the moment I am at least two stone over weight because of the steroids what ever I eat seems to put weight on me the season now is comfort food steamed puddings you can get induvidual ones dumplings stews with lots of beans and potatoes hot c:-) rumpets and butter all really fattening but I suppose…[Read more]

Hello Norman

I have had a monthly infusion of Parmidronate for the past 18 months the first few times caused a bit of bone ache in my legs but since then I have been fine only problem is I have deep veins so it takes two or three digs to find one
Keep well Jo

Hello Kathleen

so glad you made to this new site as for normal who is normal here
not many of us
Keep well Jo 😎

HELLO DIA
TRIED TO ANSWER YOU WITH A FEW ASTERIX WOULD NOT POST SO MIND YOUR P'S AND Q'S
kEEP well
Jo 😉

thank you Dia

I am a complete muffin where computers are concerned

Hope you are well
Love Jo:-S

Hello Gill
glad you have arrived we still are missing a few friends lets hope they get here soon
Jo x

Thank you

sorry for being a bit dim but I dont seem to able to bring one down any advise please, I hope you are well
Love Jo

ps JUST READ DIA POST i AM A BIT DIM XX

Hi Kevin you have had a bad year lets hope its the last of it constipation is awful some one wrote on this site a few weeks ago about a home enima called Microalax have you tried that
Keep Well Jo

Hello John

glad you found the site have just managed to find it myself not good at adding the picture yet

Regards Jo

Hello Dia

Just managed to arrive thanks to the web team looking forward to more witty ditties
Regards Jo