Hi Pat
yes its does frighten you especially when its difficult to breath lets hope this next round of treatment puts you right so you can get off to Canada and hug that grandaughter Geoff took me to Dorset for the weekend it was a bit wet but a nice break
Take care Love Jo x

Thanks Maureen for your kind wishes
Love Jo x

Hi Eve AVOIDED THE SWORD THIS TIME!
Glad Slim is doing ok Tom and Jean posted on face book and my daughter answered them as my husbands does not do forums i dont know about slim but Geoff is not keen any way starting velcade again on wed:-P
Take care
love Jo x

Hello Rebecca

I was diagnosed in jan 2009 with real failure and MM my kidneys were at about 20% and still are, managed to avoid dialysis but it always hangs over me I chose not to have an sct as I did not want to risk knocking my kidneys out altogether with the heavy chemo needed for the stem cell I got 3.6months remission from CDT and am now…[Read more]

Brilliant news Jean

keep us posted with Franks progress
Love and a Hug
From Jo x

Hello Mango

arnie has also kicked in to me I also hate the moon face i am on the same regime as you about to start cycle 4 i just hope it works I was diagnosed in jan 2009 but was not well most of the year before
Good luck with the Velcade
Love Jo

Sneaky or what! so she can still surprise you it must be love

Love Jo

Hi Ozzy

thats really good news I am on velcade at the moment i hope i get the same effect i have just had 3 cycles just about to start the fourth
good luck for the rest of the treatments
Love Jo

hello Jane
welcome I know its not a place you would want to join but you will get so much help and support when I was first diagnosed in jan 2009 I was lost didnt know where to turn for help advice and support until i found this site marvellous:-) I hope it helps you too good luck with the treatment I had CDT and it gave me 3 1/2 years remission…[Read more]

Hi Dia

a winner as always just keep on top of the game
Big Hug;-)
love Jo

Hello Maureen

I hope all goes well and he is home with you soon
Love Jo

Dear Vcki and Colin

Celebrations all the way wonderful news long may it last;-)
Love Jo

Hello Jean and Frank

the long wait over at last will keep in touch thinking about you all the time GOOD LUCK:-)
lOVE jo x

Hi Maureen

I have not had an SCT I was diagnosed in jan 2009 With mm and renal failure kidneys still only working at 20% I chose not to go for SCT as the heavy chemo would have probably knocked my kidneys out completly didnt want to go on dialysis had CDT and got 3yrs 6 months remission have now started on velcade had three rounds of it so far…[Read more]

Great news Dia

just what we all need to hear a new drug working for you long may it last
lOVE jO X

Hello Maureen

when I had CDT i HAD 100MGS THALIDOMIDE everyday 40mgs of dex 4 times a week as well as a dose of cyclophosomide 250mgs once a week had this for 4 cycles it was the dex that effected me quite badly hope this helps
Jo

hi Vicki

has colin been offered thalidomide as a maint drug I had that and was ok with it, it could suit him better than some of the others
good luck with the remission
Love Jo x

Blooming good news Tom
onwards and upwards as usual keep on the Vodka must be working;-)
Love and Hugs Jo x

Hello Pat

As we say one step at a time dont you feel good when you achieve small things had a hair cut this week going for a colour on friday taking a chance why not#
bIG HUG FROM Jo x:-P