Hello Megan
I have some PN which is unconfortable but not painful we have a foot machine that puts electrical pulses in the foot it does help i also rub in coconut oil thats good as well hope this settles for you husband i expect he can do with out all this
Regards Jo x

gOOD Luck Peggy

I hope all goes well for you and you have a successful SCT
rEGARDS Jo x

Thanks Pat for your greetings

I am glad the experience was ok and you are reponding well fingers crossed for 6 cycles not 8 I am not doing to badly on the velcade but it does knock my Hb out so have had a couple of transfusions I hope you and yours have a lovely christmas and you can keep well keep in touch I have a big furry brown fleece on…[Read more]

HI Wendy

saw on your face book no PP really good news you can relax a while yet
Regards Jo

good luck Pat

I hope all goes well glad you are ok on the velcade I have just started second cycle not been too bad except it knocks out my red blood cells so i have had a couple of transfusions keep well and strong 😛
Love Jo xx

Hi Peter

this is very interesting to me as I havnt had an SCT
Regards Jo xx

Great news Dia

lets hope this is the one everything crossed keep well and stay strong
BIG BIG (((HUG)))
lOVE jO XX;-)

Hello Vicki

I am sorry i cannot be me help but my thoughts are with you never give up stay strong
Regards Jo x

Hi Scott

glad you are doing ok on the Bendamustine as we are both in trouble with our kidneys i wonderd how yours are reacting to this treatment because it might be for me down the line
keep well
Love Jo xxx

hello Tom
i am sorry you have had to join us but you will find much help and advice here I havnt had any of these treatments or a sct I had CDT with 3yr and 6month remission have just started on velcade i chose not to have an SCT as my kidneys were very damaged and i didnt want to finish them off completely with the heavy chemo needed
Stay well jo:-)

Well
Dia
here we go again I think Scott is doing ok on this regime and Keith has just started they said this might be an option for me next if velcade doesnt work not thinking about that yet:-P what you really need is a break from meds lets hope this comes soon there have been really good reports about it its not a new drug its been used for…[Read more]

well Tom
🙂
HAPPY BIRTHDAY TO YOUR CELLS AND MANY MORE TO COME WHAT SAY SAY YOU
lOVE TO ELAINE AND YOU:-) lOVE jO X

I did enjoy it Dia I think you should get these poems in a book i think they are lovely
Love Jo xx;-) 🙂 😀

Hi Teds

I make heavy light chains which is an indicater of MM being on the move I have started velcade as my light chains had shot up it was the light chains that helped damage my kidney so its omportant they keep a good eye on it you may be ok but it might be a good thing the doctor wants to see you early
Keep well
Love Jo x

Hi Keith
I am glad you are feeling well at the moment the bloods do seem strange my hb fluctuates between 9.5 and just recently 7.5 i think this much to do with my dodgy kidneys but has been worse since starting velcade Do they think you might get back to normal any time soon i hope this is not it! had my week off from velcade last week and felt…[Read more]

Hi Sarah and Henry

what a tale I really wonder what will happen to some of us in the NHS systems so much laxness and uncaring attitudes make me shudder poor Henry I wonder if he is doing a bit too much working all thosr hours perhaps thats why he has been so open to infection getting a bit run down I hope he feels much better soon
Love Jo x

Loved it dia more please
Love Jo xx

Sounds wonderful Eve

so glad you got there and all is well take it easy and enjoy all that comes along the sun and the sea will do you both good
Love Jo x

Well Dia

C diff lite what ever next seems a pig a of a bug to take this length of time to be rid of it I hope they see sense and keep you on the rev dex combo "sounds like a good group!" a friend in my support group has been on this regime for over four years the last 6 month has been rev alone she also has to take something for loose bowls…[Read more]

All good news Etta

hope it stays that way have a good holiday christmas and new year
Love Jo x