Myeloma Forum | BADGER | Activity https://forum.myeloma.org.uk/members/BADGER/activity/ Activity feed for BADGER. Mon, 13 Apr 2026 08:23:50 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 b98bf5f021846bc805b7c05c564d10c0 BADGER replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-new-regime-on-monday-20012014/page/6/#post-114498 Sat, 12 Apr 2014 15:14:15 +0100 tom
how dare you party with out me How is the velcade treating you or is it those pesky steroids have they given you a date for the SCT is is still wait and see love to Elaine
Big hugs jo xx

]]> deed33b10680d891e5d1b8fdc14a3f35 BADGER replied to the topic Whoops! Number 3 in the forum Treatment http://www.myeloma.org.uk/forums/topic/whoops-number-3/#post-114497 Sat, 12 Apr 2014 15:07:53 +0100 Hello Andy EVE and david

my every sympathy to you all Andy you hospital sounds on top of things thank goodness cannot say the same of yours Eve and David its a big worry to me what sort of care I will get if I need the hospital again it was pretty good last time but who knows who you will
get another time it seems a bit of a lottery get well…[Read more]

]]> 4ad141b07aa309d5b87a4bb8b4caaee9 BADGER replied to the topic Hi Eve in the forum General http://www.myeloma.org.uk/forums/topic/hi-eve/#post-114365 Tue, 08 Apr 2014 19:02:17 +0100 HI EVE
my home mail address is mamajo.russell3@gmail.com
love jox

]]> 3a824d2aabb11bdab6a30b1e33dc0724 BADGER replied to the topic Goodnews in the forum General http://www.myeloma.org.uk/forums/topic/goodnews/#post-114364 Tue, 08 Apr 2014 18:58:34 +0100 That is good news with your love and care Michael should get better at home good luck and best wishes
regards Jo

]]> b372815964a444b1db30d99f962440a1 BADGER replied to the topic Hi Eve in the forum General http://www.myeloma.org.uk/forums/topic/hi-eve/#post-114323 Mon, 07 Apr 2014 10:27:24 +0100 HI Vicki and Colin
thanks for your kind thoughts I seemed to have managed the MM better than the kidney issues strange but true
Keep well love Jo

]]> dfd76c06d1fb996af9150902e15f2b93 BADGER started the topic Hi Eve in the forum General http://www.myeloma.org.uk/forums/topic/hi-eve/ Thu, 03 Apr 2014 14:07:45 +0100 Hi Eve
it was nice to hear from you are you ok we all ask about slim which is important but how are you its been hard these last few years for you as well My kidneys are hanging on bu a thread as is the sword 3 weeks to the next appointment the fistula went narrow so another 1 1/2 hours with my arm hanging out on an operating table while they put…[Read more]

]]> 3418a4f01594c624c5a774a3de0f6e29 BADGER replied to the topic My Remission is over!! in the forum General http://www.myeloma.org.uk/forums/topic/my-remission-is-over/#post-114036 Wed, 26 Mar 2014 16:36:29 +0000 Hi Eve

my kidney score creatinine 500 I was fine all the time I was on velcade as soon as I stopped the kidneys got worse they cannot explain it so they have put in a fistula dialysis access this has gone wrong and narrowed so they put balloons up the vein yesterday venoplasty full of bruises now
Regards to Slim
love Jo

]]> 22b2bc113fda5aec1b7746cb0634e63a BADGER replied to the topic Good Remission after 5 years- do not give up in the forum Treatment http://www.myeloma.org.uk/forums/topic/good-remission-after-5-do-not-give-up/#post-113990 Tue, 25 Mar 2014 16:59:52 +0000 hi David

great news news your journey has been the same as mine I believe we joined this forum 5 years ago at the same time as you say never give up keep well
Love Jo

]]> 26b92e9fa6231e069788f3fab38c6c29 BADGER replied to the topic My Remission is over!! in the forum General http://www.myeloma.org.uk/forums/topic/my-remission-is-over/#post-113989 Tue, 25 Mar 2014 16:51:49 +0000 Hi Mandy

you have had a time of it lets hope now you can get better treatment at the new centre you are lucky to have a good one near
keep well love Jo
Hi eve how are you and slim is slim keeping ok my kidneys are rotten they have now fitted a fistula just in cse not what I wanted but hey ho
Love Jo x

]]> 2b26344e9e84e673f17229b8f255d374 BADGER replied to the topic Whoops! 2 in the forum Treatment http://www.myeloma.org.uk/forums/topic/whoops-2/#post-113589 Sat, 08 Mar 2014 20:37:44 +0000 Hi
At least your hospital are on the ball last time I had pneumonia at the clinic visit I told them I was struggling to breath they told me to take a few paracetamols in hospital for two weeks after that
good luck with the pomaliamide I do hope you make Greece in may
Try to keep well
regards Jox

]]> ba26e4c4ccb8f7aa4753febc3d816d11 BADGER replied to the topic Shingles in the forum General http://www.myeloma.org.uk/forums/topic/shingles-2/#post-113325 Wed, 26 Feb 2014 19:09:06 +0000 HELLO JEAN
I had shingles a couple of years ago it was the most painful thing I have had it was right across my back the doctor should have given him some aciclover not sure how to spell it I was given that but the best relief I had was putting organic cider vinegar on it this really dulled the pain smelt like a chip shop but it worked how are…[Read more]

]]> 6656734b776a2c37257de1c9e8bb2852 BADGER replied to the topic Holiday in the forum General http://www.myeloma.org.uk/forums/topic/holiday/#post-113257 Sun, 23 Feb 2014 20:04:19 +0000 hello Maureen
so glad to see you have managed a break it must have done you both good
regards jo

]]> 8b40d37f02f26cdbbcaa02f3d7c1a069 BADGER replied to the topic Getting Blood Test Results in the forum General http://www.myeloma.org.uk/forums/topic/getting-blood-test-results/#post-113256 Sun, 23 Feb 2014 20:01:49 +0000 HI GRAHAM
you are really unlucky I have CRF caused by MM but both the clinics I go to give me full information every time I thought this would be standard
Regards Jo

]]> 10fc000a5507f1f3bc763c8f46cdbc70 BADGER replied to the topic Advice needed in the forum Treatment http://www.myeloma.org.uk/forums/topic/advice-needed/#post-112388 Sat, 01 Feb 2014 16:40:19 +0000 hi Tigger
I think you mum has had some poor information there are several treatments that will be available to her I have not had a stem cell because of renal damage first treat I had was thalidomide and DEX I got over 3 and a half years remission had velcade treatment last year finished last September which again has put me in remission again I…[Read more]

]]> 46e2724c59d67929ad23cd056672d0d1 BADGER replied to the topic WOW guess who got a "paraprotein not detected"? in the forum General http://www.myeloma.org.uk/forums/topic/wow-guess-who-got-a-paraprotein-not-detected/#post-112387 Sat, 01 Feb 2014 16:30:45 +0000 sorry David
didn’t mean to repeat myself x

]]> ea3a268392d1fbe0c8ee199d8487f731 BADGER replied to the topic WOW guess who got a "paraprotein not detected"? in the forum General http://www.myeloma.org.uk/forums/topic/wow-guess-who-got-a-paraprotein-not-detected/#post-112386 Sat, 01 Feb 2014 16:29:40 +0000 WOW David

wonderful news its what we need to cheer us up long may it last for you as they when the going gets tough the tough get going that’s you
Love Jo

]]> ea3a268392d1fbe0c8ee199d8487f731 BADGER replied to the topic WOW guess who got a "paraprotein not detected"? in the forum General http://www.myeloma.org.uk/forums/topic/wow-guess-who-got-a-paraprotein-not-detected/#post-112385 Sat, 01 Feb 2014 16:29:40 +0000 WOW David

wonderful news its what we need to cheer us up long may it last for you as they when the going gets tough the tough get going that’s you
Love Jo

]]> ea3a268392d1fbe0c8ee199d8487f731 BADGER replied to the topic WOW guess who got a "paraprotein not detected"? in the forum General http://www.myeloma.org.uk/forums/topic/wow-guess-who-got-a-paraprotein-not-detected/#post-112384 Sat, 01 Feb 2014 16:29:40 +0000 WOW David

wonderful news its what we need to cheer us up long may it last for you as they when the going gets tough the tough get going that’s you
Love Jo

]]> 24dfc6c223148fab262606e5cd14c1e9 BADGER replied to the topic Swollen right Leg in the forum General http://www.myeloma.org.uk/forums/topic/swollen-right-leg/#post-112323 Thu, 30 Jan 2014 14:31:07 +0000 Hello David
glad you have got it sorted it just shows you have to be persistant as for you guys it send me mad I often tell especially youngsters excuse me we are not guys my rant for the day
Regards Jo

]]> 4baa181dd60faf15f9e450fa30339cb8 BADGER replied to the topic Whoops! in the forum Treatment http://www.myeloma.org.uk/forums/topic/whoops/#post-112274 Wed, 29 Jan 2014 17:25:11 +0000 HI Andy
sorry not commented for a while just managed to get on the site again Lucky you have Steph to look after you and they managed to catch the infection in time and the low nuets so you know what you are dealing with
Keep well JO

]]> bcd418cbc7bfc9f8f7c9ca575c7d9ffd BADGER replied to the topic Swollen right Leg in the forum General http://www.myeloma.org.uk/forums/topic/swollen-right-leg/#post-112210 Sat, 25 Jan 2014 16:07:48 +0000 Hi David
hope you are well not been able to get on this forum for weeks since they changed the system
sorry not answered your posts before now I would get your leg checked for DVT it sounds like similier
symptons to some one in my clinic they had DVT
Best wishes JO

]]> b6f9bb1ec655efee73b6390788f85077 BADGER replied to the topic Low platelets in the forum Side-effects http://www.myeloma.org.uk/forums/topic/low-platelets/#post-112196 Fri, 24 Jan 2014 16:42:39 +0000 hi Eve

the velcade really worked for me o paras at the moment the kidneys got worse AFTER I finished chemo funny that so much so they fitted a fistular in my arm any way I must be an ornery b*gger as they have improved at the last visit to the clinic My consultant told me of the new improved velcade which is supposed to be even better than the…[Read more]

]]> 3417b1dce859abff314b8f73fc1ff279 BADGER replied to the topic Low platelets in the forum Side-effects http://www.myeloma.org.uk/forums/topic/low-platelets/#post-112188 Fri, 24 Jan 2014 14:44:58 +0000 Hi Eve

sorry slim is still unwell did you know there is Velcade 2 a follow on which is supposed to be even better than the first one I have just or three months ago finished velcade didn’t need platelets at all but had several blood transfusions not been on this site for weeks could not get on every way I tried my son in law did it for me
Love Jo x

]]> dcdef811a9146f0506262b2dfc2f0eb1 BADGER replied to the topic Are we new ?? in the forum General http://www.myeloma.org.uk/forums/topic/are-we-new/page/2/#post-112187 Fri, 24 Jan 2014 14:37:35 +0000 Hi Tom
BACK ON JOHN HAD TO DO IT FOR ME yippee
big hug
Love Jo xxxx

]]> e5876498a672608e2154d49fbf7634cb BADGER replied to the topic Question re HBO in the forum General http://www.myeloma.org.uk/forums/topic/question-re-hbo/#post-112186 Fri, 24 Jan 2014 14:34:52 +0000 hi Scott

how are you doing keeping fairly well I hope I don’t know what they did to this site I have not been able to access it for weeks had to get my son in law to do it My Velcade treatment has worked but my kidneys got worse once the treatment had finished they don’t know why so much so they fitted a fistuler in my arm fortunately had a bit…[Read more]

]]> 38a3ed7dbf34e1f905a18cc80a3ec2d6 BADGER replied to the topic I was at Hospital Today and consultant said in the forum Treatment http://www.myeloma.org.uk/forums/topic/i-was-at-hospital-today-and-consultant-said/page/3/#post-101729 Thu, 23 May 2013 20:12:17 +0100 Tom
I bet you both can't wait fingers crossed
Love Jo x

]]> 28a5857abc01ccc9c4c866a144a427a2 BADGER replied to the topic Novel MM drugs in the forum Treatment http://www.myeloma.org.uk/forums/topic/novel-mm-drugs#post-102610 Thu, 23 May 2013 20:10:42 +0100 hi Jean

hope all is well for you and Frank havent heard from you for quite while
Lovc Jojo x

]]> 6ef7512fe09722b1e6d6689decd81310 BADGER replied to the topic Smelling the bluebells in the forum Off topic http://www.myeloma.org.uk/forums/topic/smelling-the-bluebells#post-110784 Wed, 22 May 2013 17:12:01 +0100 you are right Eve the bluebells are beautiful at the moment the woods near us are one carpet of blue and the smell is heavenly it gives you a lift just to see it I am glad Slim managed to get into the woods, any news on his scan! yet are you keeping well
Love Jo x

]]> 3bf18b89375f3eb768f5d84ccb61c39d BADGER replied to the topic I was at Hospital Today and consultant said in the forum Treatment http://www.myeloma.org.uk/forums/topic/i-was-at-hospital-today-and-consultant-said/page/3/#post-101727 Wed, 22 May 2013 17:06:31 +0100 well Tom

I think a double is called for wonderful news for you and Elaine you will be able to sit back and relax for a couple of months
BIG (HUGS):-P
lOVE jO X

]]> c4645fafc389b4c86b2e5de36a1c035a BADGER replied to the topic Well - we got around it! in the forum Off topic http://www.myeloma.org.uk/forums/topic/well-we-got-around-it/page/2/#post-110776 Sat, 18 May 2013 19:39:55 +0100 Sounds a greaT trip David

its a wonder you had the energy to complete it time for a rest now how is the velcade going well i hope:-)
Love Jo x

]]> eceafcbea464f9b999936f02969da441 BADGER replied to the topic Second attempt at Stem Cell Harvest in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-attempt-at-stem-cell-harvest/page/2/#post-102478 Sat, 18 May 2013 19:35:37 +0100 hi Sarah

sorry they could not get enough of those little devils so better luck next time. gave up on my hair and had it all cut off so now its just wash and go my grandson said the other day when looking at photo's i like that one you had hair then gave me a big kiss so kids are cool:-P if they love you is doesnt matter
Love Jo x

]]> 6c2e9a6f446765bf891b346164c5bf9a BADGER replied to the topic Second attempt at Stem Cell Harvest in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-attempt-at-stem-cell-harvest#post-102475 Sat, 18 May 2013 19:30:05 +0100 Hi SCOTT

Dont get down hearted it seems like they are not giving up on you and your body could probably do with a rest let us know how you are getting on keep in touch:-P
Love JO X

]]> ad92c7a8a83c7d9147fd48f0c1be4537 BADGER replied to the topic Three steps back and thumbs up? in the forum Treatment http://www.myeloma.org.uk/forums/topic/three-steps-back-and-thumbs-up#post-102527 Tue, 14 May 2013 16:54:04 +0100 Well Dia

I think this is good news if anything it will buy you a bit of time i am glad your nuets are good and the purdah can end I have the velcade subcut once a week much less side effects PN etc after my sixth cycle UCH want me
to have velcade once every two weeks stretching it it out to 9 cycles less agressive they say then thalidomide…[Read more]

]]> 31bbed25a63fc7f0b5c37431c983b0f2 BADGER replied to the topic Press pause then wait and see... in the forum Treatment http://www.myeloma.org.uk/forums/topic/press-pause-then-wait-and-see#post-102453 Sat, 04 May 2013 20:25:49 +0100 Dia

I am keeping everything crossed for you I am really glad you are positive and the news about the treatment is sounding better thinking of you
Love Jo x

]]> 19465051d9ab676ac014fdac47a6d2b0 BADGER replied to the topic Prioritising in the forum General http://www.myeloma.org.uk/forums/topic/prioritising#post-95187 Sat, 04 May 2013 20:17:11 +0100 Hello Mavis

I am on the 5th cycle and after the 6th UCLH want me to go on fortnightly velcade and extend the regime to 9 cycles instead of 8 I hope it works can only give it a go:-Dhope you enjoy your trip to see your daughter
God bless Jo x

]]> 4ad7b6056f0ef396fce51b7c20a53a89 BADGER replied to the topic Prioritising in the forum General http://www.myeloma.org.uk/forums/topic/prioritising#post-95177 Thu, 02 May 2013 19:42:15 +0100 Hi Eve
been meaning to ask you how is slim doing is he well now did you manage to get his scan i know you were worried about it
Regards Jo x

]]> d03fed3e1f93030a365d4365ff2cb005 BADGER replied to the topic Prioritising in the forum General http://www.myeloma.org.uk/forums/topic/prioritising#post-95178 Thu, 02 May 2013 19:39:27 +0100 Go for it Pat

If you can afford it why not I am not a great house wife if you dont move things you dont notice the dust we go out a lot if we can Your results sound good so perhaps not much longer for treatment I am on cycle5 get swollen ankles a bit but ok other wise the graduates sound fun they must have tsken you under their wing a surrgate…[Read more]

]]> c20c82c643670fd7d9482edb1de67439 BADGER replied to the topic to SCT or Not to SCT in the forum General http://www.myeloma.org.uk/forums/topic/to-sct-or-not-to-sct#post-95159 Tue, 30 Apr 2013 19:45:44 +0100 Hi Clare

my MM journey was diagnosis in Jan 2009 pneumonia' renal failure and MM had CDT which gave me 3 and a half years remission kidneys still only 20% but hanging on started Velcade at the end of last year hoping to get a good remission again this is very much a personal journy I think at your mums age she needs to take her time and take…[Read more]

]]> 3bf432362d895acf96573012d97791d3 BADGER replied to the topic On Tour in the forum Off topic http://www.myeloma.org.uk/forums/topic/on-tour#post-110741 Mon, 29 Apr 2013 15:49:17 +0100 Have a good time on tour I hope the weather is kind to you
Regards Jo x

]]> f609c6198ea886fc57dc461002ccf6e2 BADGER replied to the topic 70 Today in the forum Off topic http://www.myeloma.org.uk/forums/topic/70-today#post-110752 Mon, 29 Apr 2013 15:47:55 +0100 Hi Jean
aVERY HAPPY BIRTHDAY TO FRANK
i am so glad he is doing well what relief after all the worry all daughters dont like shopping I have two and they hate shopping so I have to go with my sister in law shes a shopaholic! by the time i have spent half a day with her it puts me off for weeks!!!! hope you are keeping well
Love Jo x

]]> f68335faf02364de537e23990afd5f69 BADGER replied to the topic Date for SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/date-for-sct#post-102428 Mon, 29 Apr 2013 15:40:27 +0100 Hi Jacqui and Geoff

Fingers crossed all goes well good luck
Regards Jo x

]]> 81b71ac9c6d175827671d199dd63f35d BADGER replied to the topic ANOTHER SCT JOURNEY ABOUT TO START in the forum General http://www.myeloma.org.uk/forums/topic/another-sct-journey-about-to-start#post-95143 Mon, 29 Apr 2013 15:36:09 +0100 hi Scott
well a new journey begins i am keeping my fingers crossed for you that everything goes well you are braver than me I do hope your kidneys come though ok but you have to take the risk as the chemo wasnt working for you
at the end of the day we have to do what it takes:-P
Love Jo x

]]> 9791da259a1669fcd1d7046ff03ff967 BADGER replied to the topic Velcade side effects? in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-side-effects1366916455#post-105267 Fri, 26 Apr 2013 19:50:19 +0100 HI Paul
I am also on the same regime as you no real side effects except my ankles swell a bit just a bit of fluid retention so not so bad hate the dex though
I am diabetic so it really plays my sugars up but i can cope with that
good luck for the rest of your treatment
Regards Jo

]]> ac9a8221c94e375a8a1211b0bce75b72 BADGER replied to the topic Being Thankful! in the forum General http://www.myeloma.org.uk/forums/topic/being-thankful#post-95113 Fri, 26 Apr 2013 19:43:25 +0100 Hi Mavis

I agree we have so many things to be grateful for especially the people who create these wonderful drugs that keep us going thank the Lord
Love Jo x

]]> 790c761520215d0725494fa534aa7343 BADGER replied to the topic Mums reaction to Zometa infusion and Thalidomide with injection of Warfarin? in the forum General http://www.myeloma.org.uk/forums/topic/mums-reaction-to-zometa-infusion-and-thalidomide-with-injection-of-warfarin#post-95122 Fri, 26 Apr 2013 19:41:31 +0100 hI Sandie

sorry I cannot help with the Zometa as I dont have it but some people have reported flu like sysmptoms when they first get it but i think they settle down after a while
Love Jox

]]> 61a6f5f11f8f4645b3619dac84bc810d BADGER replied to the topic 2 weeks in hospital in the forum General http://www.myeloma.org.uk/forums/topic/2-weeks-in-hospital/page/2/#post-94822 Fri, 26 Apr 2013 19:38:36 +0100 hi Sandie

I was the same as your mun resistant to the first two antiB'S the good old IV penicillin some times the old drugs are still best how is your mum doing ok now i hope
Regards jO

]]> 1a6c8cc0032508a549dd320db8373ca7 BADGER replied to the topic 2 weeks in hospital in the forum General http://www.myeloma.org.uk/forums/topic/2-weeks-in-hospital/page/2/#post-94819 Fri, 19 Apr 2013 16:32:23 +0100 Hi Mavis

thanks for your kind thoughts I am doing ok now velcade seems ok how are you still in remission I hope
God bless
love Jo x

]]> 05bca822520e46dde5050b2f71fbdf2c BADGER replied to the topic Wife's life on hold? in the forum General http://www.myeloma.org.uk/forums/topic/wifes-life-on-hold#post-95077 Thu, 18 Apr 2013 19:29:30 +0100 Hello Terry
go ahead and blub why not we all do because terrible mm dont give up hope loads of new treatments coming on stream my husband is my carer he does get a bit depressed but he will be with me all the way as i am sure your wife will be for you so try and look forward as someone said to me the other day if you are a good poker player you…[Read more]

]]> 86a86a2f595b617bc59a22197ea65024 BADGER replied to the topic Stem Cell transplant, given go-ahead in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-given-goahead#post-102397 Thu, 18 Apr 2013 19:22:23 +0100 HI mothias

great news wonderful Uclh hope it goes well for you and you get a long long remission:-)
Regards Jo x

]]> 563fb6f175a2343149a2beac92707d9c BADGER replied to the topic Lightly chained to the Roller Coaster Ride in the forum General http://www.myeloma.org.uk/forums/topic/lightly-chained-to-the-roller-coaster-ride#post-94950 Tue, 16 Apr 2013 16:48:44 +0100 HI Helen
i hope you start to get more ups than downs i hope you get your parking space back it must be difficult to work as it is with a bad back hope you are sorted soon

love jo x

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