Hi David

So sorry to hear that you have relapsed. Hope all goes well on the velcade.

Maureen

Hi Eve

Hope you and Slim are coping. It must be hard when the myeloma rears it's ugly head again. How long is it since Slim had his SCT? It is a good idea to keep a diary.How about going for councelling? I have to see the same councellor as Ian this month. I will pray for you both.

Ian has an infection in his bed sore and is on…[Read more]

Hi Eve

Ian first went to the doctor in April last year with backache and in his records he said to the gp that he thought it was something sinister. The gp is quoted as trying to assure him it wasn't. Went back several times and was given pain killers each time. By June it wasn't getting any better and he asked to be referred to a specialist.…[Read more]

Hi Nerys

My husband was daignosed with mm in late October. He had been suffering with backache since April and was sent to a specialist in June who sent him for physio. We had to go private for an mri scan and that was when a tumour on his spine was detected and mm was diagnosed. Like your mum, my husband's legs started to wobble and he had…[Read more]

Good to know that a cure is being sought.

Donations are needed to keep up the good work.

Maureen

Hi Eva

Hope you are well and look forward to hearing from you when you return.

Ian has an infection in his bed sore. I am so frightened he will get sepsis again.

Maureen x

Hi

My husband Ian is still in hospital and we don't know if he will be able to walk or be in a wheelchair. He was 57 last week.I too feel like I have no life. I travel 20 miles back and forth to the hospital each day, and on at least 3 days, twice.

I do pilates on a Thursday morning which is a release for me and sometimes a go for a…[Read more]

Thanks Vicki and Colin

I am now nagging Ian to do more Physio so he can get back on his feet and then home.

Maureen x

Hi you have given us hope for a future. Hope your house move goes well.

Maureen

Hi Eva

Sorry to hear that Slim's myeloma has returned. I hope they will find a cure for it soon as lots of research is being done.

I will have to cut down on my visits to the hospital to once a day on some of the days as it is very exhausting but Ian doesn't understand.

I'll say a prayer for Slim

Maureen x

Well done Peter, you must feel a great relief. Have that glass of champagne when your taste buds get back to normal. You deserve it.

Maureen

Hi Eva

Ian's mum and dad who are in their 80's visit twice a week in the afternoon and some of his workmates usually go in once a week. It gives me a break from afternoon vists and I have more energy to visit at night. My sisters ar eno help. One hasn't spoken to me in 8 years and the other only sends text messages. I have good friends who…[Read more]

Hi Tom

Ian had as good a birthday as possible. I baked him a cake and bought him the series of the wire. He got nice face creams and lots of cards, including one from his work. His nickname was soapy as in oor wullie as he had curly hair and they designed a card with his name and a monkey on the front. He did laugh.

Thanks for your…[Read more]

Hi Eva

Ian's birthday went as well as can be expected. I baked him a cake and bought him the series of the wire on dvd. He also got nice face creams and lots of cards.

We had good news that his light chains are now down to 147 and paraprotiens are now 5 but his myeloma his mostly light chains.

He used to like playing games but has lost…[Read more]

Hi Dai

Hope you have managed to escape the lurgy. I have 2 small grandchildren and I stay away when they have the sniffles as I seem to pick up everything from them, but I love them to bits.

Maureen

Thanks Tom

Hope we get good news about Ian's light chains next week. Bed sore now starting to heal.

Maureen

Thanks Helen

Ian is cranky when he is on the steroids and I am exhausted when I visit twice a day so I'm afraid I haven't got much patience. Trying to get Ian to use his tablet and take his mind of the things that go wrong in hospital. Trying to motivate him more.

Hope we get good news about his light chains next week.

Bed sore now…[Read more]