Hi Helen

I mad an appointment with my gp today to discuss councelling as I think it will help me. Ian had councelling when he was not in the land of the living so I have requested that he has it again.

We are talking more now (switiching off the tv) and we are both very emotional. Ian's fear is that he will not walk again while mine's is…[Read more]

Hello Dai

Ian has been depressed this week and a little tearful which is hard for me to watch. I am finding it hard coping. How do you cope? I went back to work part time but I don't know if I did the right thing. Work isn't stressful but I find it difficult not to be emotional. I find I am anxious, heartbroken to see Ian cannot get out of…[Read more]

Hi Dai

It has been a hard week for us both. Ian has been depressed and has been a little tearful. He thinks he won't walk again. I have been feeling anxious, sad and lonely andd have gone back on my tablets. How do you cope? I went back to work part time but my heart isn't in it anymore. I will persevere a few weeks and see what happens…[Read more]

Hi Gill

I can sympathise with you. I also had the worst Christmas ever. My husband Ian was told on Christmas Eve that he would need another operation (3rd since 29 October)to take out the pin in his spine as the wound was not healing quickly enough. I started crying on the morning of Christmas Eve and didn't stop until Christmas was over.…[Read more]

Hi Dai

Thanks for your reply. Ian had only one cycle of CTD as he had the infection in his spinal wound and had to stop the chemo in order that the wound might heal. He did have a good response but was totally ga ga. Hopefully it was the infection and he will be ok on CTD this timeas as his anxiety has gone and we have now come to terms with…[Read more]

Hi Eve

Ian is a little anxious to restart chemo as he had severe side effects from CDT. He will be in hospital as he isn't walking yet but we are hopefull that with good physiotherapy and rehabilitation he will have some mobility.

He is being moved to a hospital nearer our home but I will have to look out for him as he was an inpatient…[Read more]

Hi Jo

Thanks for your reply. Ian is a little anxious starting chemo again as he had severe side effects from CDT. Does he have to have strong doses of steroids?

He isn't walking yet so he will be in hospital but we are hopefull he will get some mobility when he receives physiotherapy and rehabilitation.

Hope you are keeping well.

Maureen

Hi Keith

My husband will start taking Velcade on Wednesday. He is a little anxious as he could not tolerate the CDT. Hopefully he will not have severe side effects.

Maureen

Hi Dai

Thanks for your reply. Ian is a little anxious at staring chemo again as he could not tolerate CDT. He is not walking yet but hopefully it won't be too long until he goes for physiotherapy and rehabilitation. It will be nice when he comes home.

Maureen

Hiya there..

I am really sorry to hear of your diagnosis but please don't lose faith. My name is Kerry, it's my partner Melv that has Myeloma. He is 39 years old.

Myeloma seems so complicated doesn't it? So hard to get your head around but there is so many treatment options as I'm sure that you have found today.

How did your appointment…[Read more]

Hi Stewart

Venessa can contact me if she wishes. I too am struggling to come to terms with Ian's MM. The doctor has prescribed diazapan for me and I take it when I need it. It makes me feel calmer but I also believe that god will look after us. What age is Elsie?

I had a down day today, shopping in the supermarket, a nightmare. What do…[Read more]

Hi Stewart

My husband was daignosed in October at the age of 56 with MM. It has been a great shock to us. I cried continually for the fiorst 3 weeks. The doctors has given me vallium which I take when I need it. I stay strong when I visit my husband in hospital.

Do you live in Scotland as you are a hearts fan.

Maureen

Hi David

Ian is in better spirits and is eating better. His psinal wound is looking better and he is moveing his left leg and alos has movement in his left leg but his hands are weak.

I am thinking positively and we will try and have as nice a Christmas as possible. He is allowed a small glass of champagne. It will be very hard as this is…[Read more]

Hi Angie
Stumbled onto your message. We live in Dunblane and my husbnad Ian has been diagnosed with MM on 24 October. He had to have a spinal operation as his spine started to crumble when the steroids started attacking the tumour. He has had to return for further surgery to the Western General in Edinburgh as his wound is infected. He is…[Read more]

Hi Sue

I am still positive that there is light at the end of the tunnel. At the moment my husband is still in hospital as his psinal wound is still slowly healing. I am spending Christmas with my son, daugher in law and my 2 granddaughters. They have been a great support for me.

Have a nice Christmas in New Zealand and god bless

Maureen