keznmel replied to the topic Scared…everything is happening! in the forum Newcomers 12 years, 9 months ago
Thank you everyone for your lovely kind thoughts and words of encouragement. It's such a tough time for us.
I hope this finds you all well. Please keep in touch x x x
keznmel replied to the topic Scared…everything is happening! in the forum Newcomers 12 years, 9 months ago
Thank you Bridget,
I hope you are feeling well. Yes, Melvin had radiotherapy for the plasmacytoma on the spine and is having infusions every 4 weeks….however, we are not sure what the next plan is now that he has multiple fractures. He is in hospital at the moment on Iv morphine and antibiotics and the Dr's are having a MDT meeting later…[Read more]
keznmel replied to the topic Scared…everything is happening! in the forum Newcomers 12 years, 9 months ago
Hi Mavis…Sorry for late reply.
Thank you for your message. I hope you are feeling well.
Melvin is also having bone strengthening infusions every 4 weeks…but he still has these new fractures. His levels seem to have spiked a little but not out of control. He is still in hospital on IV antibiotics and morphine but is having more movement…[Read more]
keznmel started the topic Scared…everything is happening!. in the forum Newcomers 12 years, 9 months ago
Hi there…
My name is Kerry and I'm 36 years old. My partner of 16 years, Melvin was diagnosed with Multiple Myeloma in December 2012. In December 2010 he had a plasmacytoma of the l4 vertabrae. He is currently in hospital with pathological fractures to the ribs and a blood clot on the lung and is in terrible pain. We are waiting to hear what…[Read more]
Meike replied to the topic Velcade 6 – Yippee! in the forum Treatment 13 years, 2 months ago
Fantastic News Dai! Here is too a very long remission time!!
David was supposed to start his 6th cycle today but he has been admitted feeling under the weather. So they are waiting to see whats what and do a few tests and a scan.
Hope the last two cycles are being kind to you!!
Love
Meike
Meike replied to the topic Peter in the forum General 13 years, 2 months ago
Dearest Min,
I don't know what to say. Peter's passing has come as complete shock and so sudden. My heart goes out to you and your family! You are a remarkable woman who has been supporting her husband in the most loveable way. You are also incredible at advising, helping and supporting other members of the MM family. Please keep strong! And…[Read more]
Meike replied to the topic dad just diagnosed at 48 in the forum Newcomers 13 years, 3 months ago
Hi All,
Sorry we have not been here in a while?things have been a tad busy. Thank you all for your kind and encouraging words! David has now completed his 4th cycle of Velcade and by the look of it will be doing an other 4 before preparing for SCT?
The last couple of weeks have been difficult for David. His pain levels in his back have…[Read more]
Meike replied to the topic dad just diagnosed at 48 in the forum Newcomers 13 years, 4 months ago
Hi Dai,
Thank you so much for your very encouraging reply!
David has started his 3rd cycle of Velcade on Friday and had a couple of good days on Dex, we even took a trip to our local B&Q yesterday for some manly shopping. He took great delight in using one of those electric scooters they have in store for people who are not so…[Read more]
Meike replied to the topic dad just diagnosed at 48 in the forum Newcomers 13 years, 5 months ago
Hello everyone,
I'm Christin's mum.
To say the least this has been some roller coaster ride so far. The side effects of the steroids are not very pleasant but we can manage..just need to stay calm! Its the pain that David is in is very concerning and hard to watch someone you love being so uncomfortable! We are having an appointment on…[Read more]