[BADGERParticipant]

tom
how dare you party with out me How is the velcade treating you or is it those pesky steroids have they given you a date for the SCT is is still wait and see love to Elaine
Big hugs jo xx

[BADGERParticipant]

Hello Andy EVE and david

my every sympathy to you all Andy you hospital sounds on top of things thank goodness cannot say the same of yours Eve and David its a big worry to me what sort of care I will get if I need the hospital again it was pretty good last time but who knows who you will
get another time it seems a bit of a lottery get well soon all of you
REGARDS jO

[BADGERParticipant]

HI EVE
my home mail address is mamajo.russell3@gmail.com
love jox

[BADGERParticipant]

That is good news with your love and care Michael should get better at home good luck and best wishes
regards Jo

[BADGERParticipant]

HI Vicki and Colin
thanks for your kind thoughts I seemed to have managed the MM better than the kidney issues strange but true
Keep well love Jo

[BADGERParticipant]

Hi Eve

my kidney score creatinine 500 I was fine all the time I was on velcade as soon as I stopped the kidneys got worse they cannot explain it so they have put in a fistula dialysis access this has gone wrong and narrowed so they put balloons up the vein yesterday venoplasty full of bruises now
Regards to Slim
love Jo

[BADGERParticipant]

hi David

great news news your journey has been the same as mine I believe we joined this forum 5 years ago at the same time as you say never give up keep well
Love Jo

[BADGERParticipant]

Hi Mandy

you have had a time of it lets hope now you can get better treatment at the new centre you are lucky to have a good one near
keep well love Jo
Hi eve how are you and slim is slim keeping ok my kidneys are rotten they have now fitted a fistula just in cse not what I wanted but hey ho
Love Jo x

[BADGERParticipant]

Hi
At least your hospital are on the ball last time I had pneumonia at the clinic visit I told them I was struggling to breath they told me to take a few paracetamols in hospital for two weeks after that
good luck with the pomaliamide I do hope you make Greece in may
Try to keep well
regards Jox

[BADGERParticipant]

HELLO JEAN
I had shingles a couple of years ago it was the most painful thing I have had it was right across my back the doctor should have given him some aciclover not sure how to spell it I was given that but the best relief I had was putting organic cider vinegar on it this really dulled the pain smelt like a chip shop but it worked how are you both doing apart from this not posted much lately as could not get on the site son-in-law solved it
Love Jo xx

[BADGERParticipant]

hello Maureen
so glad to see you have managed a break it must have done you both good
regards jo

[BADGERParticipant]

HI GRAHAM
you are really unlucky I have CRF caused by MM but both the clinics I go to give me full information every time I thought this would be standard
Regards Jo

[BADGERParticipant]

hi Tigger
I think you mum has had some poor information there are several treatments that will be available to her I have not had a stem cell because of renal damage first treat I had was thalidomide and DEX I got over 3 and a half years remission had velcade treatment last year finished last September which again has put me in remission again I hope I get a long time off again there are at least 3 more drugs along the line for me so I would advise you to get another consultant I was 61 when diagnosed you need better advice
Regards Jo

[BADGERParticipant]

sorry David
didn’t mean to repeat myself x

[BADGERParticipant]

WOW David

wonderful news its what we need to cheer us up long may it last for you as they when the going gets tough the tough get going that’s you
Love Jo

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