[BADGERParticipant]

Hello Peggy
We have been away to a B&B twice this year one in Scotland and one in Swanage both times people have asked to keep medication in the fridge if you phone some of these b&b's or hotels they will tell you in advance if it is possible or you could hire a cottage they always have a fridge if you want to go abroad there is a cold pack people use for insulin for travelling that also could be ok GOOD LUCK

jO X

[BADGERParticipant]

Hello dear Tom

I am glad you are well and I hope your transplant goes on for years and years so you will not need the extra bag
Love and ((hugs))
Jo x

[BADGERParticipant]

hello Caz
glad you had a good christmas so sorry you have not been well cellulitis
is a horrid thing and can be so painfull i wish you every success for the SCT may it all go well
Love Jo x

[BADGERParticipant]

Hello Jean

many thanks for the link
love Jo x

[BADGERParticipant]

Hello Jean
I am so surprised that some of these good shows dont come to Belfast its a nice city and now the troubles are over I am sure they would be well attended some one should but in a suggestion .I hope you and Frank are keeping well
Love JO X

[BADGERParticipant]

hello Eve

nice to hear from you we have a few days away this week in the New Forest I hope it stays dry.
I love the theatre but not in love with musicals but Geoff is so I treated him he does so much for me he deserved a treat, then I scratched the car and he didnt moan so another treat is due!!
I am still in Plateau only 5% mm cell in my marrow not due another PEP test until end of march so fingers cross if I am clear at the end of april we will book a week somewhere in the Med, we used to love adventure holidays I had my 60th birthday in a camp in the middle of the Amazon jungle in Peru but all that is out of the question now
Regards to Slim
love Jo x

[BADGERParticipant]

Gill
what wonderful news I cannot express how pleased I am for you and Stephen long may it last or even get better something to cheer us all up:-D
Big ((hugs))
Jo

[BADGERParticipant]

Hello Eve
I totally agree with the the statement it a really good way to think
Love Jox

[BADGERParticipant]

Hi Eve and Slim
sorry slim is not feeling so well I hope it is just a blip after coming off meds I felt a lot of withdrawal symptoms when I came off CDT I think the drugs have to work there way out of the system I havn't slept as well since not having Thalidomide. I am still lucky enough to be in Plateau I don't know how long for so fingers crossed the kidneys have now settled down after the food poisoning which nearly finished me off next PEP test march so I have time off at the moment for good behavour AS I have 5% MM cells in my marrow they say good partial remission nothing more but thats better than nothing
Love to you both Jo

[BADGERParticipant]

Hello Phil
congratulations on a good remission I really hope it lasts for years for you
Regards Jo

[BADGERParticipant]

DIA
You are a one off yes very different a medical conumdrum indeed:-/ I really hope you can hold out for the next three weeks I am the other way round if things change it shows up in my urine almost straight away . I saw my consultant the other day and apparently I am still in plateau so fingers crossed I will soon be clear for three years I have been so lucky
I hold my breath every time I go. You sent me an angel I will send one of mine to you her name is Margaret I hope she will watch over you
A Big (((hug)))
Love Jo x

[BADGERParticipant]

Well Dia
lifes a bitch:-( I am so sorry about the short remmission I will be praying for you in the hope your results are right In America they are using carfilzomid a lot I have been reading James Berensons blog and he has great hopes for this drug.:-) It will be a long haul but I would definately go for it you have nothing to lose
A GREAT BIG ((((HUG))
Love Jo x

[BADGERParticipant]

oH Bridget

you are being so brave I hope this works for you I am keeping everything crosssed that it works you deserve a really long break from it all I hope the back ache is just a muscle problem and nothing else after all you have been lying around too much:-D and taking it easy ''What just two loads of washing'' is that all

Love and big (((hugs))):-) 🙂 🙂
Jo

[BADGERParticipant]

Great news eve
lets hope it lasts a real long time so yuou both can get on with your lives and enjoy your travelling again:-)
Love Jo

[BADGERParticipant]

hello Glenn
I dont think we ever really get over the shock ''why me '' I am a bit older than you I retired early one day ok next day in hospital with renal failure double pnuemonia and MYELOMA that was three years ago I managed with the thalidmide and have been in remmission for nearly three years I didnt have an SCT( my choice )as my kidneys were so bad. I was in clinic the other day talking to a man who was diagnosed in 1997 he had an SCT which lasted for nearly five years since then he has been on medication only and none except zometa at the moment so that cheered me up no end
Good luck with the treatment
Love Jo

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