[BADGERParticipant]

Welcome Alexis and John
glad you have found time to post you are very welcome please tell us about your and Johns journey we will all be interested:-)
Love Jo

[BADGERParticipant]

Hello Aileen

sorry you have had to join this group but welcome you will find all the support and help on this site you amy find it a relief to talk to other sufferes as not many people in the big wide world have heard of it.
Dont forget the Myeloma uk help line they are brilliant:-)

Keep well love Jo

[BADGERParticipant]

Hello Bridget

sorry you had a bad day yesterday lets hope the RT treament kicks in quickly this time and get rid of your pain I am sure UCH will pull out all the stops for you to get the drug and Myeloma uk will be able to help as well chin up thinking of you all the time
Great big (((((HUGS))))
lOVE jO

[BADGERParticipant]

hi Scott

glad you are enjoying the golf Geoff and I walk a lot we usually do three miles every day but we go on a longer walk once a week yesterday we walked five miles its lovely to be outside in the good weather I agree with MacMillan I am sure exercise aids recovery:-) I think the sick feelings are due to the sodium bicarbonate we are both on a high dose with yours being the most it must have an effect on the stomach
Keep well
Love Jo x;-)

[BADGERParticipant]

Hi Gill

good luck with the course I am sure you will soon get into the seing of things:-)
Love Jo;-)

[BADGERParticipant]

Hi eve

you have got it about right except you need to add bread and cheese
chesa bacadilla sorry about the spelling

Cheers love Jo xx8-)

[BADGERParticipant]

Yippee

what good news it has really cheered me up long may it last perhaps you can get to Majorca now to hear your daughter sing
Keep well:-)
Love Jo

[BADGERParticipant]

Hi Scott
thats rather a lot of bicarb does it upset your stomach a bit mine does some times. I forgot I also take on Omeprazole 10mgs and a 75mg aspirin
its a wonder we don't rattle. I agree about the SCT it was not for me if I was a lot younger it might be a different story have a good holiday8-)
Love Jo;-)

[BADGERParticipant]

Hello Helen

congratulations on coming out the other side and feeling well lets hope for a really long remmission
KEEP WELL
Love Jo x

[BADGERParticipant]

hello Gina
so sorry to hear about your gran your mum doesnt need this at the moment
she must be stressed enough as it is, she is so lucky to have you looking out for her
Love Jo

[BADGERParticipant]

Well Bridget

they say every cloud has a silver lining which seems to be the case here so glad it has helped you pain what a good result

Love and HUGS jo xx

[BADGERParticipant]

Hello Scott
thanks we had a good holiday I hope you have a great time in Spain,8-)
I take the premidrinate for the Myeloma to strengthen my bones my sister in law calls it my bone food! I also take sodium bicarbonate tabs for the kidneys 9 500mgs a day also an alpha calcidol 0.25 three times a week kidneys seem stable at the moment When first diagnosed I had to have blood transfusions from jan 2009 until august 2010 every couple of months they said its was because of the weak kisney function I have settled down now my blood stays at around 10.00 I seem to manage with that my consultant didnt want me to have EPO, dont know why? .There is a lady in my support group who has been on Revlimid maintenance for nearly five years she was one of the people who had to fight to get it our MP helped her it really seems to work for her
Keep well:-)
Love Jo

[BADGERParticipant]

Good luck with your group chelle I attend one in Welwyn Garden City Hertfordshire with my husband who is my carer We have found it so helpfull
just to talk to other people in the same situation

Regards Jo

[BADGERParticipant]

Tom

you are so cheeky you always make me laugh I agree about the Docs mine are the same its always" we can only make 48 hour apps, can I have one no we are full up phone back tomorrow its an emergency whats wrong with you thats my business and so it goes on. The road trip to scotland was good only two days rain which was in the highlands it rains sideways there its just as if a bucket of water is chucked over you. I love the new photo it makes you look cheekier than ever
Keep Well
Love Jo xx

[BADGERParticipant]

Oh Min
nothing much I can say but I am so sorry you both fought so hard for it end like this my thoughts and prayers are with you

Love Jo

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