[BADGERParticipant]

Hello Peggy

I hope you have a happy birthday tomorrow I am sure you will get some help with all your meds and your daughter, speak to MacMillan they can be so helpful I was diagnosed with renal failure so not had an SCT but I have managed so far on drugs alone I was diagnosed in jan 2009
Good Luck
Love Jox

[BADGERParticipant]

Tom what is it with you and cucumbers, I like them in a good strong glass of Pymms:-P 😎 😉 Love Jox

[BADGERParticipant]

Hello Gill
welcome to this site not the words you would want to hear, You will find many friends and a wealth of good information and support go ahead have a good drink for your birthday and why not I was diagnose in jan 2009 I was 61 I have been in plateau since may 2009 no SCT due to major kidney damage
GOOD LUCK 😉
Love Jo

[BADGERParticipant]

TOM
You will never be just a mere mail hows the young bride, still keeping you in check

Love Jo:-P

[BADGERParticipant]

Dia
your daughter has a good voice shame someone doesn't pick her up she is to good for tribute bands any way if the Velcade works Majorca is only a couple of hours away
Keep Well
Love Jo8-)

[BADGERParticipant]

Yes fingers crossed for you Jet hopeing all is well with you I have looked at your blog you havn't posted for a couple of weeks
Love Jo;-)

[BADGERParticipant]

Good news Keith

good luck with the SCT fingers crossed for you see you on the other side
well fit and happy

Love Jo;-)

[BADGERParticipant]

Hello gILL
What a shocked state you must be in it took me at least three months before I could come to terms with it I just didnt want to speak about it.
the phone line to myeloma uk is so valuable, there is a specialist nurse to talk to I found it such a help because you feel so alone when you go to the specialist take a pad with all the questions you want to ask, you never remember everything and write down the replys. Check with Myeloma uk
if there is a support group near you its so helpful to actually speak to someone who also has this horrid condition
Take care love Jo

[BADGERParticipant]

Dia

keep on mixing, I am so sorry you have had such side effects lets hope the symtoms get better soon I agree the nursing staff are all about the treatment not you and the effects some times I think we need some pastoral care which is not all that evident thinking of you wishing you a good night sleep
Keep well
Love Jo;-)

[BADGERParticipant]

Hi
sorry you have to join this site but myeloma uk is the very best place to go for information I agree with Kay take a pen and pad and write down all the questions you want to ask you will always forget to ask something if you dont then always write down the answers so you remember when you get home
Love Jo

[BADGERParticipant]

Hi Bridget

glad you are back on line so sorry they have not got on top of your pain
it must be awful to be in pain all day and you dont want to wiped out either it sounds like making a cake but they havn't got the mixture right yet I really hope they do soon, keep in touch love Jo:-/ 😉 x

[BADGERParticipant]

Min

I agree with bridget perhaps the hopital should have offered peter councelling as well as drugs all these doctors look after the body but not the mind, I am really glad he has perked up a bit to make you lunch this could be the start of a new mindset with him hopefully he may become more positive can someone come to your house to give you a break it sounds that you really need one now
Love Jo

[BADGERParticipant]

Hello Angelina

My fingers are crossed too I will send you one of my guardian angels I am sure they will smile on you
Love and a big ((hug))
Jo x

[BADGERParticipant]

Kay

good luck at the hospital dont worry too much about the hair the shaven look is all the fashion I hope all goes really well for you and the Velcade knocks this devil out. When I had chemo my hair got really thin so I had it cut really short more in a boys style left it that way will save time next time always been a bit fat so not much difference there
Thinking of you love Jo x;-)

[BADGERParticipant]

Hello Peter
This method is widely used in America it sounds a much better system
I have a friend who attends a local clinic with me in Stevenage she is on velcade at the moment she asked the consultant she sees who is the head heamotogist about having this method she said that she had never heard of it!!! thats a big worry,as it happens we are both also under UCH we were there on thursday she asked them no problem! you can have it here come up twice a month so it is available we will just have to push for it
Regards Jo

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