[BADGERParticipant]

Hello Min

sorry Peter has had a rough few days I hope he feels better today men can be very difficult at times I hope he listens to you because you seem to know whats best for him give him my regards
Love Jo

[BADGERParticipant]

Bridget so sorry to hear the news about your father in law please give my condolences to you husband it must be so sad for him I know you will be his rock at this time
Love Jo x

[BADGERParticipant]

Dia
the link works for me ok I did laugh at the real ale bit my husband Geoff only drinks that and the more unusual micro brewerys the better
guess who has to drive on a night out

Love Jo:-) x

[BADGERParticipant]

Oh BRIDGET
what horrible news I am so sad for you lets hope they can sort something out for him I know the Marie Curie nurses are brilliant they helped my sister in law with her mum so she could stay at home
Thinking of you much love Jo x

[BADGERParticipant]

Thanks for that Jet
our you ok and ready for your SCT been looking at your blog Good luck
lOVE jO X

[BADGERParticipant]

Mavis

I didnt get to much bother with CDT a bit of DEX moods (ask my husband) and a bit of constipation last months bloods were paraprotien in a band to fient to measure so I expect than means 0 at the moment lets hope fingers crossed it lasts
Love JO X

[BADGERParticipant]

hello Dia

I am not on any drugs for mm at the moment just sodium bicarbonate and alphacalcidol plus a 4mg steriod all for my kidneys. I had 2 pulses of DEX on their own then 4 pulses of CDT which put me into plateau this was from jan 2009 to april 2009 then i took a small dose of thalidamide for a further year no problems until PN set in nothing since then except a monthly infusion of premidrinate only 30mgs not full dose of 90mgs this is to protect my kidneys.I did have a reduced doses of cyclophosphomide during CDT this also was to protect the kidneys.

Love Jo;-) x

[BADGERParticipant]

Dia
I agree about the dosing I have been reading a lot of stuff from America and the conclusions they come to are most people are over dosed just because it is the recommended dose. I go to UCH once every four months and they are doing a lot of work with people just giving weekly doses of Velcade and coming up with good results they also said to me if CDT worked the best first time they might revisit it if it seemed a good option so it can be done. I decided not to have STC because I didnt want to finish my kidneys off complely which due to the damage could have happened I have been in plateau now for just over two years and last test were good so fingers crossed my MM is measured by Paraprotien and bench jones I go to my local hospital monthly for the blood tests
Love Jo x

[BADGERParticipant]

Dia

big mac mmmmh sounds more like a safari than lunch lucky there wasnt any seagulls they might have mugged you they seem keen on MCD'S 😎 Janet must love your small suprises what will you think of next

Love Jo;-) x

[BADGERParticipant]

Hello Chrissie

I think the treatment which is chemo is very agressive and can leave some people really down, ill and depressed once it starts to work you feel a whole lot better but it is a struggle at first as for the shakes i had terrible ones due to kidney damaged cause mainly by to much calcium in the blood they gave me chemicals to get it out of my system but if you have none or not enough calcium it makes you shake they took all mine out then gave me calcium tablets to build it up again as soon as they got the levels right i stopped shaking perhaps this is what is causing your husbands shakes good luck for your husbands treatment
Love Jo x

[BADGERParticipant]

Thats alright then you had me worried for a while

Love Jo;-)

[BADGERParticipant]

Dia

I see chickens on the horizon lets hope the beast has been kicked into touch all the news sounds positive so fingers crossed
Much love JO;-) xx

[BADGERParticipant]

hello Gill

so sorry stephen is feeling rough but lets hope with everything crossed that this works then it will be worth it give him all our best wishes we are rooting for him:-)

Love Jo x

[BADGERParticipant]

gina

so sorry to hear about your mum I hope the hospital sort out her infection pretty quickly It must be frightening for her and so worrying for you keep your chin up
Love Jo xxx

[BADGERParticipant]

Hello Vicki

I was 61/2 when I was diagnosed had four months of CDT which I managed
very well had a bit of constipation and of cause DEX mood swings which I think most people get I am under Lister hospital in Herts and UCH london
I have been in remission for just over two years I could not have an SCT as MM caused me to have serious kidney damage Good Luck for Dad
Love Jo;-)

[Author]

Posts